Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 My son Dylan, is 10 months old. He was first diagnosed with positional plagiocephaly at 4 months old. He was seeing our family doctor at the time. I have had friends with babies who've had flat spots on their heads and all of their heads rounded out. So, when he was six months old, our doctor referred him to a cranio-facial surgeon to see if a helmet was needed. We felt as if our doctor was being too aggressive and didn't want to believe that Dylan might need a helmet. So, at 8 months, we switched Dylan to a pediatrician to get a second opinion. She recommended a helmet. He just received his Orthomerica Starband on Friday and has adjusted so well to it. He barely even notices it. My husband and I are not doing as well. We are having a hard time seeing our little baby with a helmet covering everything but his face and ears. I had no idea it would be so big! I don't really have any questions for the group but would like to hear how other parents have adjusted to this. Thanks, Beth Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi Beth, Welcome to the group!!! I am also from GR, as are a few other members. The bands are much harder for us parents than our babies. But don't worry, you will adjust in a very short amount of time. It gets to be such a part of them that when the band is off for a bath that they don't look like the same baby. Are you planning on decorating the band, or did you get one of the patterned STARbands? If you have a plain one, I would recommend decorating it. It helped me get over the clinical/sanitary look that it had and it helped others approach us when we were out and about. Welcome again, and if you come up with any questions, ask away! - mom to Aidan > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi Beth & welcome to our group: You must be going to MFB for Dylan's STARband?! I'm in GR as are several other members, small world! I too had a very very difficult time seeing my Abby in her band for the first couple wks even. I even cried about it, meanwhile, she was happy as a clam & couldn't have cared less. You'll soon adjust to it, trust me, if I did, you will! After the first couple wks or so, I no longer noticed it as it became a part of her! I'm glad Dylan is doing so well in it. He's on his way to a rounder head. Please keep us posted on his progress. Debbie Jenison, MI > > > My son Dylan, is 10 months old. He was first diagnosed with > > positional plagiocephaly at 4 months old. He was seeing our > family > > doctor at the time. I have had friends with babies who've had > flat > > spots on their heads and all of their heads rounded out. So, when > > he was six months old, our doctor referred him to a cranio- facial > > surgeon to see if a helmet was needed. We felt as if our doctor > was > > being too aggressive and didn't want to believe that Dylan might > > need a helmet. So, at 8 months, we switched Dylan to a > pediatrician > > to get a second opinion. She recommended a helmet. He just > received > > his Orthomerica Starband on Friday and has adjusted so well to > it. > > He barely even notices it. My husband and I are not doing as > well. > > We are having a hard time seeing our little baby with a helmet > > covering everything but his face and ears. I had no idea it would > > be so big! I don't really have any questions for the group but > > would like to hear how other parents have adjusted to this. > > > > Thanks, > > > > Beth > > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi Beth, I'm new to the group also, and I am hoping to get my 4 month old son Jaden casted next month for headgear. For me, seeing him daily w/ a flat spot on his head, not knowing if it will round out or not (even tho our parents seem to think it will along w/ his pede, and hearing about how all OUR friend's kids have rounded out) is very hard on me. I'd rather see my son temporarily in a helmet NOW than have him w/ a flat head for the rest of his life, possibly suffering from TMJ or other effects from the plagio because I didn't treat him. When he comes home w/ that helmet on, I am going to be thinking to myself that it's a temporary adjustment that will last him a lifetime. And knowing that will help me get thru the days I look at him and feel sorry for him (or more for myself for having a child that needs headgear because his head's not round, as if it's MY fault, when in fact the pede should have informed us at every wellness check that this is something we should have been on the lookout for!). Plus, like all the other mommies are saying, the added " safety factor " w/ having their babies in a helmet is only a plus in that should they bump their heads, they will be protected. Remember, it's only temporary. ~Amy, mommy of Jaden 4 mo's (soon to be diagnosed and casted) Northeastern Minnesota (howdy neighbor!) > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.