Guest guest Posted January 10, 1999 Report Share Posted January 10, 1999 That all makes sense. Except the " peer group " thing. I cant do anything interactive. If I come in contact with anyone I dont know. I get very nervous. Then it happens. It sucks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 1999 Report Share Posted January 10, 1999 Hey yasmin, Im sure they can see how depressed I am. I havent smiled since I was diagnosed and told that it might not go away for 30 years. I was on alot of meds...took them for months and months. Nothing worked. So now I refuse to waste my time and my parents money on shit that does not work. Do I pray? No. I have. Got tired of it. He can see what the hell I'm going through. Oh well...pe@ce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 1999 Report Share Posted January 10, 1999 Hi Joyce. Sports are what I want to do. I want to be active. Real active. I want to compete. I want to be able to be on ESPN with all the people who have worked as hard as I have. Its just not fair. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hi Seth, Many of us have responded to you and you are not alone. Please don't think you are. WE understand. I am 31 now but I first experienced CU when I was 15 so I can understand how you have become limited as to what you can do and how you feel alienated and alone. At my age now, I can explain my condition to other adults and only hope they can comprehend somewhat, but at 16 years old, it's very difficult for your peers to understand. I was hospitalized at 15 years old (because the doctors didn't know what else to do!) and put me on 80 mg of Prednisone dialy and none of my friends understood my illness and I did not know how to explain it. I was at a point where EVERYTHING caused me to break out, including sweat and exercise. I woke up every morning looking like the 'Elephant Man' because of all the swelling in my face. Believe me when I tell you that there is hope and that this may not last forever. The high and prolonged dosages of prednisone allowed me to go into remission for several years. There is a medical reason that you have this problem, it is not something you have to accept and live with forever. Keep searching and keep hoping. You may find your cause and maybe even a cure. This group can point you in the right direction in seeking answers. Keep reading and educating yourself. Please don't give up hope, that's what keeps us all going. My prayers are with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hi, Seth. Yes, this disease, or disorder, or condition, or whatever the heck you want to call it, SUCKS. Especially for someone so young, at what has got to be the most difficult time of life (I would never be a teenager again for anything - ugh!!). But you cannot let it get to you, allow it to control you. I work at home, online, and spend hours at the computer. Keeping my mind and especially my hands busy helps me to not scratch, and sometimes I even forget the little damned devils. I've been at this game now for almost 13 years. Before that, as a kid I used to get eaten alive by mosquitos - at least that's what my parents thought it was back then (they're simple folk, what can I say?). Now I think I was hiving even back then. I've been scared, I've been angry, and I've been depressed. I think everyone here has been. I have literally camped out in the parking lot of a hospital because I tend to go into shock when my hives get going too strong. My throat closes to the point I cannot breathe, and I need emergency treatment. Everywhere I go I carry a pharmacy in my purse. Some days I wake up in so much pain I can barely move. I'm only 38 (I know that probably seems ancient to you, but believe me it isn't), and some days I feel 10 times my age. Sometimes I have to use a cane to get around. I have borderline osteoporosis (well, for all I know it's probably full-blown by now), weight gain, and broken teeth, all thanks to years of high doses of prednisone. I hive and swell in heat, from sweat (exercise-induced urt.), from physical pressure (dermatographia), delayed pressure, and for no f-ing reason. I guess what I'm trying to tell you is I, like everyone here, KNOW where you're coming from. This disease is a big pain in the neck, turns your life totally upside down, but you know something? Somehow, you get through it. Sometimes I don't quite know how we do it, but we do get through it. A hive free day for someone is reason to celebrate around here. People in general don't really understand this thing, unless they've lived it. If I see one more person (I'm thinking of certain in-laws here) roll their eyes because I feel lousy, or hear one more stupid " Well, have you tried this or that? " from someone who doesn't have a clue, I think I'll go crazy. I know they mean well most of the time, but it gets to a person after years of it. Some of the crazy suggestions I've gotten over the years - and to think of the ones I've tried!! Preparation H does not make hives go away - been there, done that. And all a sulphur and pine tar plaster will do is stink the place up (my grandmother suggested that one). Regarding the homeschooling - I homeschooled my daughters through the first semester of 9th grade, even while sick with this condition. Do you belong to a support group in your area? We worked hard to make sure the kids all had plenty of time to spend with peers, had different clubs and activities, field trips, whatever. There used to be (I think they're still out there) an online support group for homeschool families. I don't remember their name, but if you like I can ask around and get the info for you. Hang in there. Keep researching and educating yourself about this. Knowledge is power. Demand that doctors listen to you; if they don't perform their job like they should, FIRE them and find someone who does. And keep your chin up!! Air hugs, Jackie _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Dear Seth I think we all battle depression with this mess that seems to get the best of us at times. Im only 36 and half the time i feel like im 86. I never feel good and break out everyday sometimes it is alot worse than other times. It has been almost 2 years and they have not been able to find out what is wrong with me. I was put in the hospital New Years Eve with Pnemonia and have been very sick. Im now seeing a Internal Medicine Dr and he is very curios about my Chronic Urticaria. He wants to review all my test that has been runned on me by all the Drs that i have been too and he is running some on his own. Maybe it was a blessing that i was put in the hospital and found this Dr. He seems very curios about my illness and is going to try to help me. He was not taking any patients and he took me own so im praying he will help me find a cure for this mess. Hang in th! ere. I will keep everyone posted. Therese in SC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Seth and others experiencing depression.....Just a thought- I am taking Atarax for DPU (delayed pressure urticaria) and just wondering if maybe a med. like this could help you also. It is a mild anti-depressant with positive effects for the urt. Was prescribed for urt. not depression but Hey guess killed 2 birds with 1 pill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Seth, My heart goes out to you. I kind of know how you feel as my daughter can't go outside either. I am 700 miles away from our closest relative and just moved to a new town/state and don't know a single soul. I am wondering if you can talk to your parents about this? What meds are you on? Do you pray? Have you told your doctor that you're feeling depressed? Seth, I am so sorry to know that you are alone. But you have this group ) Is there anything I can do for you? Please hang in there. Hugs~ depression > Is anyone battling depression along with the urticaria? I am. I used to race > dirtbikes. I even got sponsored. I used to be a sponsored skateboarder. I > was geting close to sponsored at rollerblading. I was a very active person. > The hives now limit me to my computer. Im home schooled. I have no friends. > I just wish I had someone to talk to other than seeing text on a screen. I > want this to all be over. I dont know how much more I can handle before > something bad happens. Its all fucked up. Excuse my french. I dunno. Sorry > about this...just felt like saying something. Pe@ce > > Seth > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Seth, Please feel the many wishes that are sent to you from this group. You will find support. When you feel ,down reach out and someone should be as close as their computer. Please speak to your parents or dr about your feelings..there are meds that both help depression and cu and they bring some relief. Copy as much of the advice as you can and bring it to your dr. Sometimes they need help too!! I do understand how difficult it has been for you in giving up your athletics..I have a son who is involved in wrestling and this has consumed his free time . Then he went to college and found out that there were many things he could do besides this. Many were not based on sports. Please keep reaching out..you sound like you have the drive to excel at what ever you put your mind to. Maybe with this computer experience , you will be the next " microsoft wizard. " Thinking of you!! Joyce depression > > > > Is anyone battling depression along with the urticaria? I am. I used to > race > > dirtbikes. I even got sponsored. I used to be a sponsored skateboarder. I > > was geting close to sponsored at rollerblading. I was a very active > person. > > The hives now limit me to my computer. Im home schooled. I have no > friends. > > I just wish I had someone to talk to other than seeing text on a screen. I > > want this to all be over. I dont know how much more I can handle before > > something bad happens. Its all fucked up. Excuse my french. I dunno. Sorry > > about this...just felt like saying something. Pe@ce > > > > Seth > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > If you do wish to unsubscribe then you can click on the following link: > > <mailto:urticaria-unsubscribeegroups> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > This list is in the service of those who suffer from Chronic Urticaria > (hives). We strive to support and lift each other as a worldwide > cyber-family. > > > > We share whatever needs to be shared to help one another in our struggle > with Chronic Urticria. > > > > Any posting that is off the main topic of Chronic Urticaria, we post with > a prefix of NCU -. This is done out of respect for those who do not wish to > read such postings. > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Sorry, Seth, but someone has to say it - LIFE AIN'T FAIR. No one ever said it would be. If it was, children wouldn't be dying of cancer and AIDS, people who should be enjoying their golden years wouldn't be struggling with the aftermath of a stroke, hatred and prejudice wouldn't exist, and the weather would always be perfect. Don't sit there and blame your hives either - most athletes never hit the big time. Perhaps you are meant to do something else, something greater. We all have our niche; you thought it was sports, but maybe it isn't and you have to continue searching. Stressing about it only brings more misery - wallowing in depression only makes you feel worse. Everyone is entitled to their own private pity-party once in a while, but don't let it last too long and take control of you. YOU stay in control of this. Hugs, Jackie ----Original Message Follows---- Reply-To: urticariaegroups To: <urticariaegroups> Subject: Re: depression Date: Sun, 10 Jan 1999 14:46:29 -0800 Hi Joyce. Sports are what I want to do. I want to be active. Real active. I want to compete. I want to be able to be on ESPN with all the people who have worked as hard as I have. Its just not fair. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Seth, I think you may have misunderstood a point I wanted you to consider.In telling you about my son , I wanted you to know that I know the kind of person it takes to achieve what you have. It was my hope that you could use that same fortitude to seek answers and to reach out to your parents or someone to help you through this very rough time. No one has to go through this alone ,even though we think and it feels as if we have to. I sense that you feel that this could go on forever, and there were days when I felt that way , too. I reached out to this group and listened to their stories. By doing that I learned that I had to take responsibility for my treatment and I badgered my dr to try things he had not done before. I am happy to say that I am now in remission and have not had a hive in 60 days or so...no ,I don't know why I had these hives again only that I am not allergic but probably have an autoimmune problem yet to be diagnosed. I have had hives on and off since I was a toddler. Every time I have broken out with hives I have had a huge load of stress precipitate it, but the hives stayed when the stress went away. So...Seth....I did not expect this remission....I am happy I am in in it ...you,too, may find an answer or a remission but don't give up the fight!! Sometimes it may be an innocent remark made by a member that is a light bulb moment for you and you say " aha that is something I could try " . I also had to try many drug combinations, I was so disappointed when the zyrtec/zantac combination did not work for me like it had for others. I , too was ready to give up, but then I had support from this group to try again. The drugs that eventually worked for me were atarax, allegra and zantac along with 3 months on prednisone. I am not recommending prednisone ,but for me it worked enough to change my focus from myself to getting back to work and my life.(Side note- It is ironic that I am talking to you about drugs in this way.My son would be in shock!) Seth, I only know that when life looked its bleakest for me ,a member on this site said some times you have to take the path least chosen and use the treament others say not to. I did that and I have had success. It did help to have someone tell me that it was ok . I think it was then, that I accepted this condition and was more able to look for answers. Seth, I know that I can't fix you or make it go away..but I will check my e-mail daily and will be here for you. Please reach out to your parents. They want you to help you ,too and they need to know what you are thinking and feeling. Maybe if they read the info on the urticaria site , they can help you research .Stay tough! Joyce Re: depression > Joyce, Im happy for your son. That someone can get through this...but you > dont understand. I like sports alot. I cant play because of my condition. If > i start to sweat or exert energy I break out and itch. So I dont really > think I can focus on sports. I cant focus on shit when I wake up and have > nothing to look forward to. > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Hi I never realized that Atatrax was used for depression. I have been using it for CU. It has been quite helpful. But I do get depressed when I have flare ups after being clean for a while. I had the stomach virus last week and I broke out with huge hives and swelling after being ok for at least 4 weeks. It is so discouraging when you think you have it licked. I also take zantac twice a day. Keep in touch Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 He was on the wrong anti-depressant! Did he tell his doc? Which drug was he talking? He should have only felt better. He should also be on Vitamin D. Have you read the research on Vit D and MS? Also Vit D is vital in treatment for SAD (Seasonal Affective Disorder).There are anti-depressants on the Wal-Mart $4 generic program. You don't have insurance? What kind of treatment is he on for his MS? There are programs to help those without insurance. I'll send an email about that in a few minutes.Hugs)))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Depression My husband is seriously depressed, in the winter it gets worse. Does treatment for depression really help? He tried in the past at hated the med side effects. Any thoughts or advice on where to go with this? No insurance, limited income? He is getting to the point were self care is not being done... Thanks, Sara Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi Sara~ My husband has depression. He hates taking his meds too. But, since I can not live with his behavior when he's not taking his meds, he does so reluctantly. I think the reason he doesn't like to take them is because for the first couple of weeks, there are some icky side-effects. It's because his body/ brain has gotten used to going without seretonin(sp) for so long. The meds are replacing what the brain is lacking. That is also the same effects that occur when he tries to stop taking the meds. He goes through withdrawl type symptoms. But, once the medicine in in his system he does start to feel better.. He'll take his meds for a couple of weeks, and complain the whole time. Once the meds have kicked in, he'll do just fine. But, should he run out of meds, he puts off getting them refilled, then he goes through the nasty withdrawls as his system is losing the seretonin. And then of course, he thinks he doesn't need them. I know, long way to go about answering your question. Long-story-short...Yes, I do think that meds helpf for depression, even if it is seasonal. If your husband has a limited income and no insurance, he can go to the mental health clinic. I know the one in our town goes by a sliding scale. Love and blessings... Valsfrazie3 wrote: My husband is seriously depressed, in the winter it gets worse. Does treatment for depression really help? He tried in the past at hated the med side effects. Any thoughts or advice on where to go with this? No insurance, limited income? He is getting to the point were self care is not being done...Thanks, SaraEuphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi Sharon, Yes no insurance, ugh!!! He is on Rebif for his MS and MS lifelines is covering the costs there. I am unsure which antidepressant he was on in the past that made him feel worse, I would like him to call his doctor and get a script for an antidepressant what I dont know is where to start with what meds and costs, in terms of suggestions to the dr or will the dr just made a suggestion to us? > > He was on the wrong anti-depressant! Did he tell his doc? Which drug was he talking? He should have only felt better. He should also be on Vitamin D. Have you read the research on Vit D and MS? Also Vit D is vital in treatment for SAD (Seasonal Affective Disorder). > > There are anti-depressants on the Wal-Mart $4 generic program. You don't have insurance? What kind of treatment is he on for his MS? There are programs to help those without insurance. I'll send an email about that in a few minutes. > > Hugs))) > Sharon > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. > > > > > > Depression > > > > > > > > > > > > > > > My husband is seriously depressed, in the winter it gets worse. Does > > treatment for depression really help? He tried in the past at hated the > > med side effects. Any thoughts or advice on where to go with this? No > > insurance, limited income? He is getting to the point were self care is > > not being done... > > Thanks, Sara > > > > > > > > > > > > > > > <!-- > > #ygrp-mkp{ > border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} > #ygrp-mkp hr{ > border:1px solid #d8d8d8;} > #ygrp-mkp #hd{ > color:#628c2a;font-size:85%;font-weight:bold;line- height:122%;margin:10px 0px;} > #ygrp-mkp #ads{ > margin-bottom:10px;} > #ygrp-mkp .ad{ > padding:0 0;} > #ygrp-mkp .ad a{ > color:#0000ff;text-decoration:none;} > --> > > > > <!-- > > #ygrp-sponsor #ygrp-lc{ > font-family:Arial;} > #ygrp-sponsor #ygrp-lc #hd{ > margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} > #ygrp-sponsor #ygrp-lc .ad{ > margin-bottom:10px;padding:0 0;} > --> > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text- align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text- transform:uppercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text- align:right;padding-right:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a{ > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc{ > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font- size:100%;line-height:122%;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o{font-size:0;} > .MsoNormal{ > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > .replbq{margin:4;} > --> > > > > > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Val I completely hear you and feel you, in the same boat here! Thanks for sharing. > My husband is seriously depressed, in the winter it gets worse. Does > treatment for depression really help? He tried in the past at hated the > med side effects. Any thoughts or advice on where to go with this? No > insurance, limited income? He is getting to the point were self care is > not being done... > Thanks, Sara > > > > > > > Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
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