Re: Talked to the ped, got a referral! Dr Madsen/Dr Proctor

[Guest guest]

Hi Mish & welcome:

I think I've heard of these 2 drs mentioned in our gropu before. I've

added them to your subject line to grab more attn!

It's great your ped is so wonderful. Mine is as well. A lot of

members aren't as fortunate as we are!

Tough to say if your ins will cover a helmet or band. It SHOULD be

covered, but we all know how ins. companies can be! grrr

Some do, some don't. Have you called to ask yet?

Keep us posted!

Debbie

p.s..I see you're on " No email " now so I hoep you're not receiving

emails any longer

--- In Plagiocephaly , " cjwrcw " <michele_walsh@y...>

wrote:

> Can I just say, I really love our ped. He has always been so

> responsive whenever I have had to call him about our issues. I

feel

> like I call alot with this baby, and said, " Hi, time for my weekly

> call! " He replied, " Oh, please, you *never* call! "

>

> So, he gave me the name of the neurosurgeons at Children's in

Boston,

> Dr. Madsen(sp?) and Dr. Proctor. He seemed to go on more about the

> first, but said take an appt. with either. They are in the same

> group. Any opinions?

>

> I inquired as to his experience on insurance coverage should we be

> looking at banding. He oferred up that we could certainly " spin "

it

> on

> the muscle imbalances and tort to try to get it covered and thought

> if he needs one it *should* be covered(in his medical opinion).

>

> How does that sound? I also want to say thanks for all the quick

> responses yeasteray. Seems like a great group here. I have

derrived

> alot of support fo our food allergies on another board and seems

this

> will be just as nice. mish

[Guest guest]

As cooperative as my Dr. would be(and hopeful-he is young, lol), I

suspect a fight for coverage, if we choose banding. I used to cast

and fit orthotics for feet and they were never covered. DME rarely

is, and I am sure this would be the same, especially if " cosmetic " .

However, I can see that this could cause TMJ issues down the road,

and maybe other problems. That would cost alot more.

The ped was saying there could be ramifications of the muscle

imbalances and he would work with that should we need to go that

route.

The positive side is I think we can get a script and a band *if we

want it*. Sounds like some folks have trouble with just that part of

the process. Of course, I hope we hear that it will all be fine!

But that is wishful thinking. In looking at the pictures, Ds looks

like many of the " parallellogram " type plagio kids. I know it is

noticable because my friend said very honestly she noticed it and

urged me to call my ped. Not like her to do that.

I understand things need to move quickly, but when is the ideal time

to decide on banding? If everything is in place and we see the

neuro, can we wait and see until 6 months? Just wondering. Then

again, I dread the thought of my poor guy wearing it in the summer.

Oh well. I am getting ahead of myself.

Thanks, michele

> > Can I just say, I really love our ped. He has always been so

> > responsive whenever I have had to call him about our issues. I

> feel

> > like I call alot with this baby, and said, " Hi, time for my

weekly

> > call! " He replied, " Oh, please, you *never* call! "

> >

> > So, he gave me the name of the neurosurgeons at Children's in

> Boston,

> > Dr. Madsen(sp?) and Dr. Proctor. He seemed to go on more about

the

> > first, but said take an appt. with either. They are in the same

> > group. Any opinions?

> >

> > I inquired as to his experience on insurance coverage should we

be

> > looking at banding. He oferred up that we could certainly " spin "

> it

> > on

> > the muscle imbalances and tort to try to get it covered and

thought

> > if he needs one it *should* be covered(in his medical opinion).

> >

> > How does that sound? I also want to say thanks for all the quick

> > responses yeasteray. Seems like a great group here. I have

> derrived

> > alot of support fo our food allergies on another board and seems

> this

> > will be just as nice. mish

[Guest guest]

Hi Michele,

Wow, your ped sounds wonderful!! Where you do you live ? I had

the completely opposite experience fighting everything! I just got

your email too and think you're going the right route by seeing one

of the neuro guys to rule cranio out. As far as your ins goes, Dr.

Madsen wrote us a great letter of med necessity that is in Hannah's

plagio kids folder. We have BCBS of MA HMO and had our DOCbands

covered in CT. We had initial denials on both though. How would

you rate your son's severity? You are absolutely right that getting

a script is often the biggest hurdle for some families, so that is

great that you have a probanding ped. As far as timing, the earlier

the better b/c that's when the skull is the softest and is growing

the fastest. Before 6 mos is really the ideal time. Hannah was

banded at 4.5 mos and you can see a three week progress picture in

her folder that shows how absolutely amazing that first month of

progress was. After that things slowed down. She wore her first

two from May until November, so she did have it throughout the

summer. Of course she's much more comfortable in it now with the

weather we're having, but she tolerated it fine in the summer too.

Lots of babies have bouts w/heat rash, but lots get it in the colder

months too. When we made our initial appt w/Dr. Madsen we got in

w/in 10 days! I hope you get in quick too!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> > > Can I just say, I really love our ped. He has always been so

> > > responsive whenever I have had to call him about our issues.

I

> > feel

> > > like I call alot with this baby, and said, " Hi, time for my

> weekly

> > > call! " He replied, " Oh, please, you *never* call! "

> > >

> > > So, he gave me the name of the neurosurgeons at Children's in

> > Boston,

> > > Dr. Madsen(sp?) and Dr. Proctor. He seemed to go on more

about

> the

> > > first, but said take an appt. with either. They are in the

same

> > > group. Any opinions?

> > >

> > > I inquired as to his experience on insurance coverage should

we

> be

> > > looking at banding. He oferred up that we could

certainly " spin "

> > it

> > > on

> > > the muscle imbalances and tort to try to get it covered and

> thought

> > > if he needs one it *should* be covered(in his medical

opinion).

> > >

> > > How does that sound? I also want to say thanks for all the

quick

> > > responses yeasteray. Seems like a great group here. I have

> > derrived

> > > alot of support fo our food allergies on another board and

seems

> > this

> > > will be just as nice. mish