Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Debbie, I just looked again and I do see some improvement starting. I think the plan you have is the best way to go. CAROLG > Well, I'm sure you have all read about CT recommending a band for > Brielle. Such a hard decision when the chief neurosurgeon from St. > s Hospital and a cranial facial specialist/neurosurgeon at > Children's Hospital of Philadelphia both feel she does not need a > band. The dr. from CHOP is calling me today to discuss this. We are > seeing great results in PT (she is rolling, tolerating more tummy and > has such great movement to the right side) and with the cranialsacral > therapy. We are working hard with repositioning and have only been > doing it since May 1st. I feel like progress has been made. We are at > the moment, going to hold off on the band and repo. for a few more > weeks. We will travel to CT when she is 6 mos, revisit the specialists > and go from there. This was such a hard decision to make. Do you > think I am being foolish? I know the results you all have had from > your bands. Your input has helped so much. Her pictures from May 1st > and May 15th are under Brielle B, I think there has been progress what > do you think? I'm scared to do the wrong thing. Thank you, Debbie > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Debbie, I just looked again and I do see some improvement starting. I think the plan you have is the best way to go. CAROLG > Well, I'm sure you have all read about CT recommending a band for > Brielle. Such a hard decision when the chief neurosurgeon from St. > s Hospital and a cranial facial specialist/neurosurgeon at > Children's Hospital of Philadelphia both feel she does not need a > band. The dr. from CHOP is calling me today to discuss this. We are > seeing great results in PT (she is rolling, tolerating more tummy and > has such great movement to the right side) and with the cranialsacral > therapy. We are working hard with repositioning and have only been > doing it since May 1st. I feel like progress has been made. We are at > the moment, going to hold off on the band and repo. for a few more > weeks. We will travel to CT when she is 6 mos, revisit the specialists > and go from there. This was such a hard decision to make. Do you > think I am being foolish? I know the results you all have had from > your bands. Your input has helped so much. Her pictures from May 1st > and May 15th are under Brielle B, I think there has been progress what > do you think? I'm scared to do the wrong thing. Thank you, Debbie > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Thank you Carol. I am going to take photos tomorrow and get them up this weekend. I don't think I'm imaging the progress. I want the best for her and if I thought that she really needed it now, we would be there in a heartbeat casting her. I'll keep you posted. Thankyou, Debbie and Brielle > > Well, I'm sure you have all read about CT recommending a band for > > Brielle. Such a hard decision when the chief neurosurgeon from St. > > s Hospital and a cranial facial specialist/neurosurgeon > at > > Children's Hospital of Philadelphia both feel she does not need a > > band. The dr. from CHOP is calling me today to discuss this. We > are > > seeing great results in PT (she is rolling, tolerating more tummy > and > > has such great movement to the right side) and with the > cranialsacral > > therapy. We are working hard with repositioning and have only been > > doing it since May 1st. I feel like progress has been made. We > are at > > the moment, going to hold off on the band and repo. for a few more > > weeks. We will travel to CT when she is 6 mos, revisit the > specialists > > and go from there. This was such a hard decision to make. Do you > > think I am being foolish? I know the results you all have had from > > your bands. Your input has helped so much. Her pictures from May > 1st > > and May 15th are under Brielle B, I think there has been progress > what > > do you think? I'm scared to do the wrong thing. Thank you, > Debbie > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Also, if CT is not recommending it - then that's good b/c the doctor I saw expressed that CT is sometimes too quick to band and it is important to treat what caused it if possible such as extensive pt for tort b/c banding alone may fix the flatness but if the child still has tort then he will regress. anyways, we will definitely support whatever decision you make - you clearly have your childs best interest at heart and seem to be doing everything possible!! > > > > > > > Well, I'm sure you have all read about CT recommending a > > band > > > > for > > > > > > > Brielle. Such a hard decision when the chief > neurosurgeon > > > from > > > > > St. > > > > > > > s Hospital and a cranial facial > > > > > specialist/neurosurgeon > > > > > > at > > > > > > > Children's Hospital of Philadelphia both feel she does > not > > > need > > > > a > > > > > > > band. The dr. from CHOP is calling me today to discuss > > > this. > > > > We > > > > > > are > > > > > > > seeing great results in PT (she is rolling, tolerating > more > > > > tummy > > > > > > and > > > > > > > has such great movement to the right side) and with the > > > > > > cranialsacral > > > > > > > therapy. We are working hard with repositioning and > have > > > only > > > > > been > > > > > > > doing it since May 1st. I feel like progress has been > > made. > > > > We > > > > > > are at > > > > > > > the moment, going to hold off on the band and repo. for > a > > few > > > > > more > > > > > > > weeks. We will travel to CT when she is 6 mos, revisit > the > > > > > > specialists > > > > > > > and go from there. This was such a hard decision to > make. > > > Do > > > > > you > > > > > > > think I am being foolish? I know the results you all > have > > > had > > > > > from > > > > > > > your bands. Your input has helped so much. Her > pictures > > > from > > > > > May > > > > > > 1st > > > > > > > and May 15th are under Brielle B, I think there has been > > > > progress > > > > > > what > > > > > > > do you think? I'm scared to do the wrong thing. Thank > > you, > > > > > > Debbie > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Hi. CT did recommend that we band Brielle Here measurements were 7mm between fullest point to flatter point. 3mm difference midface ear to eye and 5mm difference ear to base of nose. The ortho said that she was concernece with the ears and back of her head. My doctors say to wait, so that is why I'm confused. Where are you from and what doctor said that CT is sometimes to quick to band? Thanks, Debbie > > > > > > > > Well, I'm sure you have all read about CT recommending > a > > > band > > > > > for > > > > > > > > Brielle. Such a hard decision when the chief > > neurosurgeon > > > > from > > > > > > St. > > > > > > > > s Hospital and a cranial facial > > > > > > specialist/neurosurgeon > > > > > > > at > > > > > > > > Children's Hospital of Philadelphia both feel she does > > not > > > > need > > > > > a > > > > > > > > band. The dr. from CHOP is calling me today to > discuss > > > > this. > > > > > We > > > > > > > are > > > > > > > > seeing great results in PT (she is rolling, tolerating > > more > > > > > tummy > > > > > > > and > > > > > > > > has such great movement to the right side) and with > the > > > > > > > cranialsacral > > > > > > > > therapy. We are working hard with repositioning and > > have > > > > only > > > > > > been > > > > > > > > doing it since May 1st. I feel like progress has been > > > made. > > > > > We > > > > > > > are at > > > > > > > > the moment, going to hold off on the band and repo. > for > > a > > > few > > > > > > more > > > > > > > > weeks. We will travel to CT when she is 6 mos, > revisit > > the > > > > > > > specialists > > > > > > > > and go from there. This was such a hard decision to > > make. > > > > Do > > > > > > you > > > > > > > > think I am being foolish? I know the results you all > > have > > > > had > > > > > > from > > > > > > > > your bands. Your input has helped so much. Her > > pictures > > > > from > > > > > > May > > > > > > > 1st > > > > > > > > and May 15th are under Brielle B, I think there has > been > > > > > progress > > > > > > > what > > > > > > > > do you think? I'm scared to do the wrong thing. > Thank > > > you, > > > > > > > Debbie > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Hi. CT did recommend that we band Brielle Here measurements were 7mm between fullest point to flatter point. 3mm difference midface ear to eye and 5mm difference ear to base of nose. The ortho said that she was concernece with the ears and back of her head. My doctors say to wait, so that is why I'm confused. Where are you from and what doctor said that CT is sometimes to quick to band? Thanks, Debbie > > > > > > > > Well, I'm sure you have all read about CT recommending > a > > > band > > > > > for > > > > > > > > Brielle. Such a hard decision when the chief > > neurosurgeon > > > > from > > > > > > St. > > > > > > > > s Hospital and a cranial facial > > > > > > specialist/neurosurgeon > > > > > > > at > > > > > > > > Children's Hospital of Philadelphia both feel she does > > not > > > > need > > > > > a > > > > > > > > band. The dr. from CHOP is calling me today to > discuss > > > > this. > > > > > We > > > > > > > are > > > > > > > > seeing great results in PT (she is rolling, tolerating > > more > > > > > tummy > > > > > > > and > > > > > > > > has such great movement to the right side) and with > the > > > > > > > cranialsacral > > > > > > > > therapy. We are working hard with repositioning and > > have > > > > only > > > > > > been > > > > > > > > doing it since May 1st. I feel like progress has been > > > made. > > > > > We > > > > > > > are at > > > > > > > > the moment, going to hold off on the band and repo. > for > > a > > > few > > > > > > more > > > > > > > > weeks. We will travel to CT when she is 6 mos, > revisit > > the > > > > > > > specialists > > > > > > > > and go from there. This was such a hard decision to > > make. > > > > Do > > > > > > you > > > > > > > > think I am being foolish? I know the results you all > > have > > > > had > > > > > > from > > > > > > > > your bands. Your input has helped so much. Her > > pictures > > > > from > > > > > > May > > > > > > > 1st > > > > > > > > and May 15th are under Brielle B, I think there has > been > > > > > progress > > > > > > > what > > > > > > > > do you think? I'm scared to do the wrong thing. > Thank > > > you, > > > > > > > Debbie > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Well this is a first for me. Cranial Tech has an EXCELLENT reputation and turn away many, many parents whose babies are too mild to band. In order for a DOCband to work there HAS to be a certain degreee of flatness. If a baby is too mild there won't be any holding point, making it impossible for an active band to work. I wonder how much this doctor really knows about Cranial Tech, I don't think very much. > > > > > > > > Well, I'm sure you have all read about CT recommending > a > > > band > > > > > for > > > > > > > > Brielle. Such a hard decision when the chief > > neurosurgeon > > > > from > > > > > > St. > > > > > > > > s Hospital and a cranial facial > > > > > > specialist/neurosurgeon > > > > > > > at > > > > > > > > Children's Hospital of Philadelphia both feel she does > > not > > > > need > > > > > a > > > > > > > > band. The dr. from CHOP is calling me today to > discuss > > > > this. > > > > > We > > > > > > > are > > > > > > > > seeing great results in PT (she is rolling, tolerating > > more > > > > > tummy > > > > > > > and > > > > > > > > has such great movement to the right side) and with > the > > > > > > > cranialsacral > > > > > > > > therapy. We are working hard with repositioning and > > have > > > > only > > > > > > been > > > > > > > > doing it since May 1st. I feel like progress has been > > > made. > > > > > We > > > > > > > are at > > > > > > > > the moment, going to hold off on the band and repo. > for > > a > > > few > > > > > > more > > > > > > > > weeks. We will travel to CT when she is 6 mos, > revisit > > the > > > > > > > specialists > > > > > > > > and go from there. This was such a hard decision to > > make. > > > > Do > > > > > > you > > > > > > > > think I am being foolish? I know the results you all > > have > > > > had > > > > > > from > > > > > > > > your bands. Your input has helped so much. Her > > pictures > > > > from > > > > > > May > > > > > > > 1st > > > > > > > > and May 15th are under Brielle B, I think there has > been > > > > > progress > > > > > > > what > > > > > > > > do you think? I'm scared to do the wrong thing. > Thank > > > you, > > > > > > > Debbie > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Well this is a first for me. Cranial Tech has an EXCELLENT reputation and turn away many, many parents whose babies are too mild to band. In order for a DOCband to work there HAS to be a certain degreee of flatness. If a baby is too mild there won't be any holding point, making it impossible for an active band to work. I wonder how much this doctor really knows about Cranial Tech, I don't think very much. > > > > > > > > Well, I'm sure you have all read about CT recommending > a > > > band > > > > > for > > > > > > > > Brielle. Such a hard decision when the chief > > neurosurgeon > > > > from > > > > > > St. > > > > > > > > s Hospital and a cranial facial > > > > > > specialist/neurosurgeon > > > > > > > at > > > > > > > > Children's Hospital of Philadelphia both feel she does > > not > > > > need > > > > > a > > > > > > > > band. The dr. from CHOP is calling me today to > discuss > > > > this. > > > > > We > > > > > > > are > > > > > > > > seeing great results in PT (she is rolling, tolerating > > more > > > > > tummy > > > > > > > and > > > > > > > > has such great movement to the right side) and with > the > > > > > > > cranialsacral > > > > > > > > therapy. We are working hard with repositioning and > > have > > > > only > > > > > > been > > > > > > > > doing it since May 1st. I feel like progress has been > > > made. > > > > > We > > > > > > > are at > > > > > > > > the moment, going to hold off on the band and repo. > for > > a > > > few > > > > > > more > > > > > > > > weeks. We will travel to CT when she is 6 mos, > revisit > > the > > > > > > > specialists > > > > > > > > and go from there. This was such a hard decision to > > make. > > > > Do > > > > > > you > > > > > > > > think I am being foolish? I know the results you all > > have > > > > had > > > > > > from > > > > > > > > your bands. Your input has helped so much. Her > > pictures > > > > from > > > > > > May > > > > > > > 1st > > > > > > > > and May 15th are under Brielle B, I think there has > been > > > > > progress > > > > > > > what > > > > > > > > do you think? I'm scared to do the wrong thing. > Thank > > > you, > > > > > > > Debbie > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 I don't think he was trying to diminish Cranial Tech's rep - he was just emphasizing the fact that banding alone and banding too early is not enough if the plagio is caused by torticollus - b/c you'll end up with regression if the tort is not addressed. He actually agreed that they have a great reputation and recommended it, along with a few others in my area. Although, it does seem that everyone who has used Cranial Tech is very happy with them which is very comforting. Also my experience with them thus far (we haven't got to casting yet) has been great - they have been very helpful in trying to get ins to pay and providing me informative paperwork and general support - I do think it is an advantage that this is all they do and I am glad to hear that they turn away people who don't need it. Thanks for the info!! > > > > > > > > > Well, I'm sure you have all read about CT > recommending > > a > > > > band > > > > > > for > > > > > > > > > Brielle. Such a hard decision when the chief > > > neurosurgeon > > > > > from > > > > > > > St. > > > > > > > > > s Hospital and a cranial facial > > > > > > > specialist/neurosurgeon > > > > > > > > at > > > > > > > > > Children's Hospital of Philadelphia both feel she > does > > > not > > > > > need > > > > > > a > > > > > > > > > band. The dr. from CHOP is calling me today to > > discuss > > > > > this. > > > > > > We > > > > > > > > are > > > > > > > > > seeing great results in PT (she is rolling, > tolerating > > > more > > > > > > tummy > > > > > > > > and > > > > > > > > > has such great movement to the right side) and with > > the > > > > > > > > cranialsacral > > > > > > > > > therapy. We are working hard with repositioning and > > > have > > > > > only > > > > > > > been > > > > > > > > > doing it since May 1st. I feel like progress has > been > > > > made. > > > > > > We > > > > > > > > are at > > > > > > > > > the moment, going to hold off on the band and repo. > > for > > > a > > > > few > > > > > > > more > > > > > > > > > weeks. We will travel to CT when she is 6 mos, > > revisit > > > the > > > > > > > > specialists > > > > > > > > > and go from there. This was such a hard decision to > > > make. > > > > > Do > > > > > > > you > > > > > > > > > think I am being foolish? I know the results you all > > > have > > > > > had > > > > > > > from > > > > > > > > > your bands. Your input has helped so much. Her > > > pictures > > > > > from > > > > > > > May > > > > > > > > 1st > > > > > > > > > and May 15th are under Brielle B, I think there has > > been > > > > > > progress > > > > > > > > what > > > > > > > > > do you think? I'm scared to do the wrong thing. > > Thank > > > > you, > > > > > > > > Debbie > > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Toral, I would agree with . Ct has been the leader in this treatment all along and thier experience is based on many years of research and studies. Any time you google any info. about plagio, you come up with a study to back it done by the research team from CT. I think what some may percieve as quick to band, is actually CT knowing that the window of opportunity for the best possible correction is very small and isn't that what thier product is all about. You have to remember most docs are just learning about this and some are just going to be against it all together, and feel the need to undermine anything that goes against what they have been recommending for thier patients so they don't look bad. CAROLG > > > > > > > > > Well, I'm sure you have all read about CT > recommending > > a > > > > band > > > > > > for > > > > > > > > > Brielle. Such a hard decision when the chief > > > neurosurgeon > > > > > from > > > > > > > St. > > > > > > > > > s Hospital and a cranial facial > > > > > > > specialist/neurosurgeon > > > > > > > > at > > > > > > > > > Children's Hospital of Philadelphia both feel she > does > > > not > > > > > need > > > > > > a > > > > > > > > > band. The dr. from CHOP is calling me today to > > discuss > > > > > this. > > > > > > We > > > > > > > > are > > > > > > > > > seeing great results in PT (she is rolling, > tolerating > > > more > > > > > > tummy > > > > > > > > and > > > > > > > > > has such great movement to the right side) and with > > the > > > > > > > > cranialsacral > > > > > > > > > therapy. We are working hard with repositioning and > > > have > > > > > only > > > > > > > been > > > > > > > > > doing it since May 1st. I feel like progress has > been > > > > made. > > > > > > We > > > > > > > > are at > > > > > > > > > the moment, going to hold off on the band and repo. > > for > > > a > > > > few > > > > > > > more > > > > > > > > > weeks. We will travel to CT when she is 6 mos, > > revisit > > > the > > > > > > > > specialists > > > > > > > > > and go from there. This was such a hard decision to > > > make. > > > > > Do > > > > > > > you > > > > > > > > > think I am being foolish? I know the results you all > > > have > > > > > had > > > > > > > from > > > > > > > > > your bands. Your input has helped so much. Her > > > pictures > > > > > from > > > > > > > May > > > > > > > > 1st > > > > > > > > > and May 15th are under Brielle B, I think there has > > been > > > > > > progress > > > > > > > > what > > > > > > > > > do you think? I'm scared to do the wrong thing. > > Thank > > > > you, > > > > > > > > Debbie > > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Your doctor is right that treating plagio isnt' going to " fix " the tort too. Cranial Tech's orthotists are either Pt's or OT's though and are not only aware of this, but they'll teach you the stretches. Even though tort was ruled out in my daughter they still recommended doing the stretches. And yes, they do have a great reputation, which wouldn't be the case if they banded needlessly. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > > > > > > > > > > Well, I'm sure you have all read about CT > > recommending > > > a > > > > > band > > > > > > > for > > > > > > > > > > Brielle. Such a hard decision when the chief > > > > neurosurgeon > > > > > > from > > > > > > > > St. > > > > > > > > > > s Hospital and a cranial facial > > > > > > > > specialist/neurosurgeon > > > > > > > > > at > > > > > > > > > > Children's Hospital of Philadelphia both feel she > > does > > > > not > > > > > > need > > > > > > > a > > > > > > > > > > band. The dr. from CHOP is calling me today to > > > discuss > > > > > > this. > > > > > > > We > > > > > > > > > are > > > > > > > > > > seeing great results in PT (she is rolling, > > tolerating > > > > more > > > > > > > tummy > > > > > > > > > and > > > > > > > > > > has such great movement to the right side) and > with > > > the > > > > > > > > > cranialsacral > > > > > > > > > > therapy. We are working hard with repositioning > and > > > > have > > > > > > only > > > > > > > > been > > > > > > > > > > doing it since May 1st. I feel like progress has > > been > > > > > made. > > > > > > > We > > > > > > > > > are at > > > > > > > > > > the moment, going to hold off on the band and > repo. > > > for > > > > a > > > > > few > > > > > > > > more > > > > > > > > > > weeks. We will travel to CT when she is 6 mos, > > > revisit > > > > the > > > > > > > > > specialists > > > > > > > > > > and go from there. This was such a hard decision > to > > > > make. > > > > > > Do > > > > > > > > you > > > > > > > > > > think I am being foolish? I know the results you > all > > > > have > > > > > > had > > > > > > > > from > > > > > > > > > > your bands. Your input has helped so much. Her > > > > pictures > > > > > > from > > > > > > > > May > > > > > > > > > 1st > > > > > > > > > > and May 15th are under Brielle B, I think there > has > > > been > > > > > > > progress > > > > > > > > > what > > > > > > > > > > do you think? I'm scared to do the wrong thing. > > > Thank > > > > > you, > > > > > > > > > Debbie > > > > > > > > > > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Hi Debbie, I have not read all the replies to your post but I wanted to reply to you because I am in the Philly area. I wanted to share my experiance. My son got a starband about six weeks ago. He was 7 and half months old. We got the band from Harry J. Lawall & Son in Philidelphia. It was great because they have a scanner and so no casting. In just six weeks we have seen tremendous results and are very happy we banded. Anyways, Our son was much older then your son and so we strongly felt we needed to band sooner then later. We felt the neurosurgeon at CHOP to be very anti-band. They (especially the nurse practioner there) harped on repostioning even after we told them we wanted to band. We were not impressed but we did talk them into giving us the prescription anyways. We were just back for his follow up visit and they were happy with his progress. That being said your DD is still young and I would keep with your plan to continue repositioning. You can still choose to band after your DD is 6 months. In the end we banded for three reason, 1. We were not happy with his head shape and he had noticeable assemtry. 2. We felt repositioning would not guarentee correction or be as effective at our son's age as the helmet. 3. Our insurance covered most of the cost. We had only to pay 875 dollars out of pocket. We found it to be a very hard decision and we found the professionals were not much help to us in making the decision. In the end we went on our instincts. If you have any questions for a fellow Philly area mom just email me Take Care! Patti Mom to Ian starband 4-18-05 torticollis 95% resolved --- In Plagiocephaly , " Deborah B " <aguinesslover@h...> wrote: > Well, I'm sure you have all read about CT recommending a band for > Brielle. Such a hard decision when the chief neurosurgeon from St. > s Hospital and a cranial facial specialist/neurosurgeon at > Children's Hospital of Philadelphia both feel she does not need a > band. The dr. from CHOP is calling me today to discuss this. We are > seeing great results in PT (she is rolling, tolerating more tummy and > has such great movement to the right side) and with the cranialsacral > therapy. We are working hard with repositioning and have only been > doing it since May 1st. I feel like progress has been made. We are at > the moment, going to hold off on the band and repo. for a few more > weeks. We will travel to CT when she is 6 mos, revisit the specialists > and go from there. This was such a hard decision to make. Do you > think I am being foolish? I know the results you all have had from > your bands. Your input has helped so much. Her pictures from May 1st > and May 15th are under Brielle B, I think there has been progress what > do you think? I'm scared to do the wrong thing. Thank you, Debbie > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Hi Debbie, I have not read all the replies to your post but I wanted to reply to you because I am in the Philly area. I wanted to share my experiance. My son got a starband about six weeks ago. He was 7 and half months old. We got the band from Harry J. Lawall & Son in Philidelphia. It was great because they have a scanner and so no casting. In just six weeks we have seen tremendous results and are very happy we banded. Anyways, Our son was much older then your son and so we strongly felt we needed to band sooner then later. We felt the neurosurgeon at CHOP to be very anti-band. They (especially the nurse practioner there) harped on repostioning even after we told them we wanted to band. We were not impressed but we did talk them into giving us the prescription anyways. We were just back for his follow up visit and they were happy with his progress. That being said your DD is still young and I would keep with your plan to continue repositioning. You can still choose to band after your DD is 6 months. In the end we banded for three reason, 1. We were not happy with his head shape and he had noticeable assemtry. 2. We felt repositioning would not guarentee correction or be as effective at our son's age as the helmet. 3. Our insurance covered most of the cost. We had only to pay 875 dollars out of pocket. We found it to be a very hard decision and we found the professionals were not much help to us in making the decision. In the end we went on our instincts. If you have any questions for a fellow Philly area mom just email me Take Care! Patti Mom to Ian starband 4-18-05 torticollis 95% resolved --- In Plagiocephaly , " Deborah B " <aguinesslover@h...> wrote: > Well, I'm sure you have all read about CT recommending a band for > Brielle. Such a hard decision when the chief neurosurgeon from St. > s Hospital and a cranial facial specialist/neurosurgeon at > Children's Hospital of Philadelphia both feel she does not need a > band. The dr. from CHOP is calling me today to discuss this. We are > seeing great results in PT (she is rolling, tolerating more tummy and > has such great movement to the right side) and with the cranialsacral > therapy. We are working hard with repositioning and have only been > doing it since May 1st. I feel like progress has been made. We are at > the moment, going to hold off on the band and repo. for a few more > weeks. We will travel to CT when she is 6 mos, revisit the specialists > and go from there. This was such a hard decision to make. Do you > think I am being foolish? I know the results you all have had from > your bands. Your input has helped so much. Her pictures from May 1st > and May 15th are under Brielle B, I think there has been progress what > do you think? I'm scared to do the wrong thing. Thank you, Debbie > and Brielle (tort/plagio 4 1/2/ months) Quote Link to comment Share on other sites More sharing options...
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