Re: Re: High calorie foods - Ken

[Guest guest]

Hi ,

My son was on pediasure until he was about 8 months old. Then he spit out his

bottle and refused to drink any more. Of course that happened on Christmas

weekend and my wife was in an absolute panic. We had been giving him a little

cereal before so we had some on hand.

So we just started giving him cereal made with pedisure rather than whatever the

instructions called for.

It was a month or so later when he was about 9 months that we started adding a

1/2 teaspoon of canola oil and gradually working our way up to a teaspoon.

It was at about a year old that we saw the endo and about 6 months latyer at 1

1/2 that he started on periactin (cyproheptadine). I am not sure what is the

youngest one can start on periactin but ask your doctor.

I have to admit 3 or 4 times we over fed our son and he threw up everything. I

feel bad about that because he must have felt terrible and we just kept giving

him more food.

I'd check with a nutritionist before adding anything to his food. For a while

the nutritionist had us add polycose which we got from the drug store. The

nutritionist had to specify the quantity.

I hope this helps.

Ken M

" " on 12/21/2000 02:46:20 PM

Please respond to RSS-Supportegroups

To: RSS-Supportegroups

cc:

Subject: Re: High calorie foods - Ken

> Ken,

HOw early did you start giving Pediasure and adding other things to

cereal for your son? My son is almost 5 months and the only thing

we're doing is concentrating his formula so it's 24 calories an ounce.

Also just started giving him cereal I haven't met with a

nutritionist yet and am in transition right now with health care and

doctors.

>

Thanks for any suggestions.

Also, at what age can they start on Periactin?

> Hi

>

> I have a son with RSS. He is 3 1/2.

>

> Is your daughter eating solid foods? When my son was takng formula

we used

> pediasure. When he started eating cereal, we added a teaspoon of

oil and and a

> teaspoon of kayro syrup as suggested by a nutritionist. Once he

started on real

> food, we would again add whereever we could. My son used to like

scrambled eggs,

> so we would make it with light cream and add a slice of cheese. He

also used to

> eat yogurt. So we would get Gogurts by yoplait. It was the highest

calorie

> yougrt we could find. To a 6 oz container we would add a teaspoon

of kayro

> syrup. Whenever we could we would sprinkle cheese on his foods.

Some kids like

> milk, my son does not. You can make carnation instant breakfast

with whole milk

> and again add alittle Kayro or maple syrup. You can even add ice

cream.

>

> On the RSS-Support/e-groups web site, there is a database section

with some milk

> shake recipes that was given to me by a nutritionist. You could try

those.

>

> Currently my son likes pizza so we get it with sausage. He also

like pasta so we

> add hamburg to the tomato sauce and sprinkle cheese on top.

> Some of the canned pasta meals are very high in calories.

>

> That's about all I can remember

>

> I hope it helps

>

> Ken M

>

>

>

>

>

>

> Mich07420@a... on 12/21/2000 01:13:58 AM

>

> Please respond to RSS-Supportegroups

>

> To: RSS-Supportegroups

> cc:

>

> Subject: I'm new to this

>

>

>

> My daughter Kaitlyn is 19 months old and is diagosed with rss.

> She weighs 18 lbs. She is on periactin 1 teaspoon per day.

> She hates to eat or drinks its the project of the day.

> I'm just learning about rss and would like any information or ideas

> of high calorie foods.

[Guest guest]

I can remember the first time Darcy smiled - he looked so odd as a baby we

kept a really close eye on his development! (Have no idea for his sister

though) Happy to say everything on track.

Steph

>

>Reply-To: RSS-Supportegroups

>To: RSS-Supportegroups

>Subject: Re: Re: High calorie foods - Ken

>Date: Thu, 21 Dec 2000 15:42:12 -0500

>

>

>

>Hi ,

>

>I can't remember when he first smiled either. I just hope that he never

>ever

>stops smiling.

>

>Ken M

>

>

>

>

>

>

> " " on 12/21/2000 03:26:36 PM

>

>Please respond to RSS-Supportegroups

>

>To: RSS-Supportegroups

>cc:

>

>Subject: Re: High calorie foods - Ken

>

>

>

>

> > Ken,

>You must have kept really good records on all this or have an

>excellent memory! I can't even remember when n first smiled, I

>had to ask my mom! I'm learning to write things down now.

>

>Thanks,

>

>

>

>

>

>

> >

> > Hi ,

> >

> > My son was on pediasure until he was about 8 months old. Then he

>spit out his

> > bottle and refused to drink any more. Of course that happened on

>Christmas

> > weekend and my wife was in an absolute panic. We had been giving

>him a little

> > cereal before so we had some on hand.

> >

> > So we just started giving him cereal made with pedisure rather than

>whatever the

> > instructions called for.

> >

> > It was a month or so later when he was about 9 months that we

>started adding a

> > 1/2 teaspoon of canola oil and gradually working our way up to a

>teaspoon.

> >

> > It was at about a year old that we saw the endo and about 6 months

>latyer at 1

> > 1/2 that he started on periactin (cyproheptadine). I am not sure

>what is the

> > youngest one can start on periactin but ask your doctor.

> >

> > I have to admit 3 or 4 times we over fed our son and he threw up

>everything. I

> > feel bad about that because he must have felt terrible and we just

>kept giving

> > him more food.

> >

> > I'd check with a nutritionist before adding anything to his food.

>For a while

> > the nutritionist had us add polycose which we got from the drug

>store. The

> > nutritionist had to specify the quantity.

> >

> > I hope this helps.

> >

> > Ken M

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > " " <dgaris@h...> on 12/21/2000 02:46:20 PM

> >

> > Please respond to RSS-Supportegroups

> >

> > To: RSS-Supportegroups

> > cc:

> >

> > Subject: Re: High calorie foods - Ken

> >

> >

> >

> >

> > > Ken,

> >

> > HOw early did you start giving Pediasure and adding other things to

> > cereal for your son? My son is almost 5 months and the only thing

> > we're doing is concentrating his formula so it's 24 calories an

>ounce.

> > Also just started giving him cereal I haven't met with a

> > nutritionist yet and am in transition right now with health care and

> > doctors.

> > >

> > Thanks for any suggestions.

> > Also, at what age can they start on Periactin?

> >

> >

> >

> >

> >

> >

> >

> >

> > > Hi

> > >

> > > I have a son with RSS. He is 3 1/2.

> > >

> > > Is your daughter eating solid foods? When my son was takng

>formula

> > we used

> > > pediasure. When he started eating cereal, we added a teaspoon of

> > oil and and a

> > > teaspoon of kayro syrup as suggested by a nutritionist. Once he

> > started on real

> > > food, we would again add whereever we could. My son used to like

> > scrambled eggs,

> > > so we would make it with light cream and add a slice of cheese. He

> > also used to

> > > eat yogurt. So we would get Gogurts by yoplait. It was the highest

> > calorie

> > > yougrt we could find. To a 6 oz container we would add a teaspoon

> > of kayro

> > > syrup. Whenever we could we would sprinkle cheese on his foods.

> > Some kids like

> > > milk, my son does not. You can make carnation instant breakfast

> > with whole milk

> > > and again add alittle Kayro or maple syrup. You can even add ice

> > cream.

> > >

> > > On the RSS-Support/e-groups web site, there is a database section

> > with some milk

> > > shake recipes that was given to me by a nutritionist. You could

>try

> > those.

> > >

> > > Currently my son likes pizza so we get it with sausage. He also

> > like pasta so we

> > > add hamburg to the tomato sauce and sprinkle cheese on top.

> > > Some of the canned pasta meals are very high in calories.

> > >

> > > That's about all I can remember

> > >

> > > I hope it helps

> > >

> > > Ken M

> > >

> > >

> > >

> > >

> > >

> > >

> > > Mich07420@a... on 12/21/2000 01:13:58 AM

> > >

> > > Please respond to RSS-Supportegroups

> > >

> > > To: RSS-Supportegroups

> > > cc:

> > >

> > > Subject: I'm new to this

> > >

> > >

> > >

> > > My daughter Kaitlyn is 19 months old and is diagosed with rss.

> > > She weighs 18 lbs. She is on periactin 1 teaspoon per day.

> > > She hates to eat or drinks its the project of the day.

> > > I'm just learning about rss and would like any information or

>ideas

> > > of high calorie foods.

>

>

>

>

>

>

>

>

>

>

>

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