Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 SHELIA, B4 I GOT MARRIED I JOINED THE MEDIC ALERT GRP WHICH HAS EVERYTHING ANYONE WOULD NEED TO KNOW ABOUT ME & I HAVE A BRACELET I WEAR & THERE'S A SPECIAL # FOR THEM TO CALL TO GET ALL MY INFO. EVENTHOUGH I'M MARRIED NOW I STILL AM A MEMBER OF MEDIC ALERT JUST IN CASE JIMMY ISN'T AVAILABLE TO GIVE THEM PERTINENT INFO. IT ONLY COSTS ME 20.00 A YEAR & I CAN KEEP MY INFO UPDATED MYSELF ONLINE & SOMETIMES I CALL WHEN I CAN'T GET ONLINE. THEY SEND ME AN UPDATED COPY EVERYTIME MY INFO CHANGES. I HAVE A COPY OF IT IN EVERY ROOM & IN BOTH CARS IN CASE ANYTHING HAPPENS & NO ONE IS WITH ME. I PRAY THINGS WILL GET BETTER FOR YOU GUYS & HOPE THIS NEVER HAPPENS AGAIN. LOVE & GOD BLESS BEV > In a message dated 10/28/03 7:10:45 AM Central Standard Time, > shrunyon@y... writes: > > > DOCTORS AND NURSEING WILL REALIZE THAT RSD IS A REAL DISEASE AND BE TREATED > > LIKE ONE. THERE IS ALOT OF TEACHING THAT NEEDS TO BE DONE > > Hi Sheila, > here. I am just stunned that they kept you out of the room so > long. I am my brothers legal guardian and they don't give me any slack at all > here about going to the room immediately. Of course, my brother is physically > and mentally handicapped, they want me there because he cant really answer the > questions they need to ask, but with passed out, you'd think they > would want you to be there to answer any important questions such as allergies and > a like. The morans could have been giving him a shot of something he was > allergic too! To say the very least about touching some of us with high skin > sensitivities. Mine aren't that severe that I will get sores, thank God, but I > know that I can't stand to be touched on bad days.... > Give our love and best from IL. and I hope he recoups quickly. > > Huggs, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 TIM YOU ARE SO RIGHT ON HOW THEY TREAT US (RSD'ERS) AND I'VE NOTICED WHEN I TALK TO A NURSE OR ANYONE IN THE MEDICAL FIELD THEY ALWAYS SAY YES I SEE & ETC THEN I ASK DO YOU KNOW WHAT RSD IS & EVERYTIME THEY'LL SAY NO & I ASK THEN WHY DID YOU SAY YOU DID???? SOMETIME'S THEY GET EMBARRASSED. TAKE CARE BEV > Hi SHEILA RUNYON > Thank you for your understanding of what we go thru. I am so sorry to > hear of s HELL. You are absolutky correct about these doctors > not understanding this diasease. I have had so many bad ER > experiances and you feel so helpless. They treat you almost like a > common criminal at times and do not listen a lot of times to what you > are saying because with the RSD you can sound like a crazy person as > the effects of it are so extreme. Thank you for fighting for > and for us. > Sincerly > Tim Quote Link to comment Share on other sites More sharing options...
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