RE: (unknown)

[Guest guest]

Hi ...

I also get the shakes when I overdue it. Do you think I would listen

..... NOOOOO! I try to finish what I'm doing then go inside. One thing

I can do that most of you can't is go inside the house and lay down. I

don't have anyone to fix dinner for except my dogs and horses.... and if

I don't feel like eating, I don't worry about it. Lord only knows I

won't loose any weight over it....lol

.... do you get sick to your stomach when you get that tired????

Hugs

Vicki

[Guest guest]

Hi ..... Obstinate? Stubborn? You? NAAAAAAAAAAW!!!!! I am the

same way....<grin> In the beginning my doctor would tell me not to do

something and I would say.... " Nooooooo, I can do it " . He did enjoy

my spunk as he called it but I'm not so sure I ever did the right thing

for my body. Looking back over the years, I've been able to push my

body to the limits... Now I can't do that and it's hard to get that

through this thick cement head of mine.

In the early stages of this disease rest is very important. The more

you rest the quicker you'll get back to doing things you want to do.

The rest is repair time. As you get better you'll be able to do light

exercise and walking. You must make sure that the inflammation is down

other wise you can cause more muscle damage. Picture your muscles as a

blown up balloon.... than adding too much air. Your inflamed muscles

are the same, as the inflammation increases they form small tears, this

can not be repaired. Your muscles are very tired and rest is the only

answer to the solution.

We've all been where you are right now. Denial is soooooo common...

still trying to do what we use to is also common. Take it easy and

reroute your thinking... pretty soon you'll know what you can and can

not do and won't have to force yourself to do it.

Hugs

Vicki

[Guest guest]

Chocolate cake sounds good to me right now.... But, I'll have to settle

for a cracker instead. Never heard of amitryptiline

before..... so I guess that means I've never tried it. Is it just to

make you sleep at night...???

Vicki

[Guest guest]

Amitryptiline is also called Elavil and it is an anti-depressant. It is

used in pain patients to break the pain cycle and it is also used to help

patients with sleep disorders to get to sleep. The problem is that it has

just about as many side effects as prednisone, just not quite as severe. It

can cause you to feel weak due to lowered blood pressure, it can cause

weight gain, and it can cause a hang-over feeling in the morning. There are

others, but these are the significant side effects.

Gentle hugs,

Fern

[Guest guest]

Hi ... Oooops, I thought you had two boys.... Anyway, I'm glad the

kids did well and were able to take care of themselves. It's good

experience for them every now and then. Hope you're feeling better.

Take care,

Vicki

[Guest guest]

Thanks for your thoughts, Vicki. Annette

(unknown)

Annette... I didn't know you had a son still living in San Diego. Now

I'm really sorry you can't attend the conference. You could have seen

him AND us! LOL My hats off to him... I have always felt that the

police depts get a bum rap. I hope and pray that all of them will be

respected much more now than ever before. They've all been hero's to

me.

Take care,

Vicki

[Guest guest]

Hi ,

I think that no one...even our doctors...can tell us what we should or

should not do. Even though we have the same diseases as others, we each

react differently to them. Plus, I KNOW there are varying degrees of

discomfort and disability even within the same disease. I have a cousin

with fibro and she worked full time with it for years, but then found it

necessary to work a four day week. Now, she works the four day week plus she

takes a day off each month to just rest. She feels this schedule works well

for her. Mind you, though, she has only one child and he is in college.

Also, her husband is a big help around the house and yard. Conversely, I had

a friend in San Diego who taught elementary school and had to retire early

because of the fibro.

Do what you can and try to ignore what others may THINK you should be

doing. I know that my family and friends think I do too MUCH and that's why

I have to go to bed so early at night. Well, it works for me, so I just

smile at their comments and say " Yeah, I should try to stay up later... "

then do what I have to do. Annette

(unknown)

Hi Lynn-

I think it's odd that I can correlate my increasing/worsening

symptoms after I began taking the Celexa. For quite some time I felt

I noticed no negative side effects from it, but, being off it now, I

can see differences.... Cari and Fern told me one should taper off

from these drugs, but this last time, since I started taking the

Elavil as well, I just stopped it. first time I did, I only noticed

some lightheadedness and such for a short time. I mentioned all this

to my occassional therapist last week (she was the one who pushed me

trying Celexa), and she kind of pooh-poohed the idea that there

might, and I say ONLY might, be some connection. She will not

convince me, however--- at least not yet. She also told me that she

knows other women with fibromyalgia who have kids and work full-

time.... I gather she doesnt think it is that bad a syndrome. I, on

the other hand, think we each are different, and I do the best I can

and I don't complain a lot. I well know there are many far worse off

than me, but I don't think she should " compare " me with others- she's

done that before, and I'm not sure of her motivations..... It doesnt

make me feel very good about myself, though:) I gather she feels if I

only got myself a job- part time to start- I'd be much happier and

have a happier marriage, as well! I, on the other hand, prefer things

as they are, but only from the sense that I can " handle " things

normally if I can pace myself, and I dont' have too many outside

pressures. My goal is to get as well as possible, THEN conquer the

world Sorry I've digressed.... <3

[Guest guest]

,

Doctors should never compare their patients. Anyone who knows anything

about these diseases know that symptoms, reactions to Rx, pain levels,

muscles affected, etc...etc.... vary greatly from patient to patient. Shame

on her for making you feel bad about yourself. You are the best judge of

what you are able to take on and who would choose to limit themselves if

they didn't have to. She was wrong to make any comparisons. Just chalk it

up to one insensitive persons opinion.

I took Celexa for a while. I did wean myself off of it slowly as I am very

sensitive to medications. I decided to go off of the Celexa because about

an hour after I took it I got an anxious feeling and got " restless legs " . I

took it in the evening and would try to be asleep when the pill started to

take effect but wasn't always successful. The Celexa worked great for

awhile and then I guess I didn't need it anymore and my body was telling me

so.

Keep your chin up and don't worry anymore about what the Dr. said. Like

you, I wouldn't find that very motivating.

Hugs,

Cari

>From: gide672@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: (unknown)

>Date: Sat, 06 Oct 2001 13:30:23 -0000

>

>Hi Lynn-

> I think it's odd that I can correlate my increasing/worsening

>symptoms after I began taking the Celexa. For quite some time I felt

>I noticed no negative side effects from it, but, being off it now, I

>can see differences.... Cari and Fern told me one should taper off

>from these drugs, but this last time, since I started taking the

>Elavil as well, I just stopped it. first time I did, I only noticed

>some lightheadedness and such for a short time. I mentioned all this

>to my occassional therapist last week (she was the one who pushed me

>trying Celexa), and she kind of pooh-poohed the idea that there

>might, and I say ONLY might, be some connection. She will not

>convince me, however--- at least not yet. She also told me that she

>knows other women with fibromyalgia who have kids and work full-

>time.... I gather she doesnt think it is that bad a syndrome. I, on

>the other hand, think we each are different, and I do the best I can

>and I don't complain a lot. I well know there are many far worse off

>than me, but I don't think she should " compare " me with others- she's

>done that before, and I'm not sure of her motivations..... It doesnt

>make me feel very good about myself, though:) I gather she feels if I

>only got myself a job- part time to start- I'd be much happier and

>have a happier marriage, as well! I, on the other hand, prefer things

>as they are, but only from the sense that I can " handle " things

>normally if I can pace myself, and I dont' have too many outside

>pressures. My goal is to get as well as possible, THEN conquer the

>world Sorry I've digressed.... <3

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Yes, ..Cari is so very right. The doctor may be

knowledgeable, etc etc, but she doesn't live in your

body!!! You have to go at your own pace and take the

steps that are best for you.

You can't allow yourself to be measured by someone

else's yardstick!

Hugs,

Lynn

--- Cari Dorsey wrote:

> ,

> Doctors should never compare their patients. Anyone

> who knows anything

> about these diseases know that symptoms, reactions

> to Rx, pain levels,

> muscles affected, etc...etc.... vary greatly from

> patient to patient. Shame

> on her for making you feel bad about yourself. You

> are the best judge of

> what you are able to take on and who would choose to

> limit themselves if

> they didn't have to. She was wrong to make any

> comparisons. Just chalk it

> up to one insensitive persons opinion.

>

> I took Celexa for a while. I did wean myself off of

> it slowly as I am very

> sensitive to medications. I decided to go off of

> the Celexa because about

> an hour after I took it I got an anxious feeling and

> got " restless legs " . I

> took it in the evening and would try to be asleep

> when the pill started to

> take effect but wasn't always successful. The

> Celexa worked great for

> awhile and then I guess I didn't need it anymore and

> my body was telling me

> so.

>

> Keep your chin up and don't worry anymore about what

> the Dr. said. Like

> you, I wouldn't find that very motivating.

> Hugs,

> Cari

>

>

> >From: gide672@...

> >Reply-To: OurMyositis

> >To: OurMyositis

> >Subject: (unknown)

> >Date: Sat, 06 Oct 2001 13:30:23 -0000

> >

> >Hi Lynn-

> > I think it's odd that I can correlate my

> increasing/worsening

> >symptoms after I began taking the Celexa. For quite

> some time I felt

> >I noticed no negative side effects from it, but,

> being off it now, I

> >can see differences.... Cari and Fern told me one

> should taper off

> >from these drugs, but this last time, since I

> started taking the

> >Elavil as well, I just stopped it. first time I

> did, I only noticed

> >some lightheadedness and such for a short time. I

> mentioned all this

> >to my occassional therapist last week (she was the

> one who pushed me

> >trying Celexa), and she kind of pooh-poohed the

> idea that there

> >might, and I say ONLY might, be some connection.

> She will not

> >convince me, however--- at least not yet. She also

> told me that she

> >knows other women with fibromyalgia who have kids

> and work full-

> >time.... I gather she doesnt think it is that bad a

> syndrome. I, on

> >the other hand, think we each are different, and I

> do the best I can

> >and I don't complain a lot. I well know there are

> many far worse off

> >than me, but I don't think she should " compare " me

> with others- she's

> >done that before, and I'm not sure of her

> motivations..... It doesnt

> >make me feel very good about myself, though:) I

> gather she feels if I

> >only got myself a job- part time to start- I'd be

> much happier and

> >have a happier marriage, as well! I, on the other

> hand, prefer things

> >as they are, but only from the sense that I can

> " handle " things

> >normally if I can pace myself, and I dont' have too

> many outside

> >pressures. My goal is to get as well as possible,

> THEN conquer the

> >world Sorry I've digressed.... <3

> >

>

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com/intl.asp

>

>

>

[Guest guest]

HI Missy,

My surgeon is in Scarsdale, NY. I'm nottoo sure how close that is to

Syracuse. I live in NJ and my ortho likes the guy in Scarsdale very much.

They've been working as a team for a while now. My surgeon is Dr.

Orentlicher. His website is: www.drsgando.com Give it a look and a

second opinion from them couldn't hurt.

Carin

>

>Reply-To: orthognathicsurgerysupport

>To: orthognathicsurgerysupport

>Subject: [Orthognathic Surgery Support ] (unknown)

>Date: Fri, 14 Jun 2002 03:14:24 -0000

>

> Hi,

> My name is missy, I have been thinking of having something done

>about my jaw for years, but did'nt know what my options were.

>Honestly I don't remember how I learned about the surgery. I know it

>was by surfing the net though. I am totally amazed at the beautiful

>results in these sites. I went to an ortho in feb but was'nt too

>comfortable about it yet. I am a real worrier. A total murphy's law

>believer. It's a character flaw! Anyway I went to see the surgeon on

>june 6 he says my lower jaw is'nt the prob it's the upper that needs

>to be expanded only and genio reduction for the chin only. " scooped

>out midface " . The problem is the ortho says definetly lower is

>needed just expand the upper a little {hence my dilemma}. This was

>before I saw the surgeon, but obviously my face has'nt changed. My

>bite is'nt too bad now, so i'm sure insur won't pay but, maybe I'll

>be surprised.

>The surgeon was very nice. Has anyone had this surg in upstate New

>York. Syracuse area and know a good surgeon I can get a second

>opinion with. I have to get braces soon I guess i'll have a while to

>get the surg stuff fig out. This will be my second time in braces and

>they will have to pull 2 upper to decompensate and get my underbite

>back. This bothers me a lot I hate to think of pulling healthy viable

>teeth. Well thats enough sorry to ramble, good luck to those with

>close surg dates

>

> Missy

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

--Missy, unfortunately I do not know of a surgeon in Syracuse who is

good, but I had to answer your post because I grew up in Syracuse.

I'm in CA now.

I am also a worrier, but went ahead with the surgery and it definitely

is something worth doing. Good luck with your search, Donna

>

>

> >From: " mystic0124 " <mystic0124@y...>

> >Reply-To: orthognathicsurgerysupport@y...

> >To: orthognathicsurgerysupport@y...

> >Subject: [Orthognathic Surgery Support ] (unknown)

> >Date: Fri, 14 Jun 2002 03:14:24 -0000

> >

> > Hi,

> > My name is missy, I have been thinking of having something

done

> >about my jaw for years, but did'nt know what my options were.

> >Honestly I don't remember how I learned about the surgery. I know

it

> >was by surfing the net though. I am totally amazed at the beautiful

> >results in these sites. I went to an ortho in feb but was'nt too

> >comfortable about it yet. I am a real worrier. A total murphy's law

> >believer. It's a character flaw! Anyway I went to see the surgeon

on

> >june 6 he says my lower jaw is'nt the prob it's the upper that

needs

> >to be expanded only and genio reduction for the chin only. " scooped

> >out midface " . The problem is the ortho says definetly lower is

> >needed just expand the upper a little {hence my dilemma}. This was

> >before I saw the surgeon, but obviously my face has'nt changed. My

> >bite is'nt too bad now, so i'm sure insur won't pay but, maybe I'll

> >be surprised.

> >The surgeon was very nice. Has anyone had this surg in upstate New

> >York. Syracuse area and know a good surgeon I can get a second

> >opinion with. I have to get braces soon I guess i'll have a while

to

> >get the surg stuff fig out. This will be my second time in braces

and

> >they will have to pull 2 upper to decompensate and get my underbite

> >back. This bothers me a lot I hate to think of pulling healthy

viable

> >teeth. Well thats enough sorry to ramble, good luck to those with

> >close surg dates

> >

> > Missy

> >

>

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.ho

[Guest guest]

Caroline sweetie!

Sorry you have been sick. I hope you have a quick recovery. I'm sure

you did barf up the junk and then some. Not the way you want to lose

weight I know. You take it easy. Thanks for your kind words.

Hugs,

Gena

> Hey Buds,

>

> Yes, i've been absent since, i guess, weds....thanksgiving went

> fairly well....i really ate light during the day...did eat the

> things i wanted to eat for dinner...but less....went christmas

> shopping all day fri.....didn't do so well...chicken sandwich with

> onion rings for lunch and mcd's sandwich for b-fast....then pizza

> for dinner..ick....

>

> but sat....i got incredibly sick....throwing up all day into sunday

> until finally went to the er yesterday afternoon...apparently there

> is some horrible virus going around and i have gastro something or

> other...suffice it to say i've been miserable...but maybe i barfed

> up all the garbage i ate on fri....had some chicken broth and piece

> of toast today....i have to go to atlanta for work tomorrow morning

> thru thurs...so am trying to rest a lot today....

>

> gena - i loved your post and i'm so proud of you for refocusing...i

> was thinking that i too need to refocus...and i've only lost 5.2

> lbs.....won't weigh in again until thurs...hopefully will have lost

> more...but i totally agree with what you said...very motivating!!

>

> everyone else sounds like they're doing awesome!! sorry...just took

> me 1/2 hour to read all the posts......but congrats to all for a

> great job getting thru thanksgiving!!!

>

> i'll talk to you all soon!!!

>

> caroline

>

>

<image.tiff>

>

>

>

[Guest guest]

Don't complain, dearie! We used to get 400-500 e-mails a DAY in WLB! 100 is

a piece of cake (low fat,natch). I come home, sit down by the computer,

read/answer/delete-read/answer/delete until it's time for dinner. then I

grab a sandwich and return to 'puterland. In the 10 minutes that I've left

my seat by the computer, another 10-15 e-mails have arrived. At some time

during the read/answer/delete process, I just minimize my e-mail program and

go on to other things. SHE forum, cleaning challenges, potty break, water

challenge, etc. Phew-HARD LIFE, huh?

Geula!!

[Guest guest]

---

wow 100 is a piece a cake. i cant imagine 500 lol

In weightlossbuddies2 , " geula " <karen@b...> wrote:

> Don't complain, dearie! We used to get 400-500 e-mails a DAY in

WLB! 100 is

> a piece of cake (low fat,natch). I come home, sit down by the

computer,

> read/answer/delete-read/answer/delete until it's time for dinner.

then I

> grab a sandwich and return to 'puterland. In the 10 minutes that

I've left

> my seat by the computer, another 10-15 e-mails have arrived. At

some time

> during the read/answer/delete process, I just minimize my e-mail

program and

> go on to other things. SHE forum, cleaning challenges, potty break,

water

> challenge, etc. Phew-HARD LIFE, huh?

>

> Geula!!

[Guest guest]

I have read in literature somewhere that Lupus patients can and do have Iga.

They are suffering

from all of the antibodies IgA, IgG, etc etc affecting their bodies, whereas

for us it tends to be just one or two types.

Sally UK

Re: (unknown)

Hi Lena,

To the best of my memory, I've never heard of an association, between

lupus

and IgAN. I'd push your doc a little harder on this to figure out what

he's

referring to. Do any of your close relatives have lupus or anything else

that places you at risk?

There is a very loose associate between other kidney diseases and other

autoimmune diseases (for instance MPGN and celiac disease are commonly

found

together), but I've never heard of lupus and IgAN. There is a strong

association between lupus and kidney disease: severe lupus does cause

nephritis, but this is different from IgAN. A friend recently attended a

conference on lupus nephritis and she reported that lupus is associated

with

both proliferative (IgAN is proliferative) and non proliferative kidney

disease. Hopefully someone here can provide more information because I've

just about exhausted what I know about lupus. .

IgAN does not necessarily rule out pregnancy. However, you will probably

want to see someone who specializes in high risk pregnancies. There are

many women at this site who have successfully carried healthy babies to

term. Hopefully, one of them will chime in to provide further

information.

Good luck! Please keep all of us in the loop.

Cy

(unknown)

> Hi Everyone!

> My name is Lena and I was diagnosed with IGAN about 2 years ago. I

> was also told it was a kidney infection at first and have taken Cipro

> about a gazillion times. Anyway, I have 2 questions that maybe

> someone could answer for me. My doctor, who I really appreciate, has

> told me that my IGAN could possibly trigger Lupus as well. I have

> tired to research this and am not coming up with anything. Has

> anyone else been told this?

>

> My other question is whether anyone has gotten pregnant while

> having IGAN? Is it difficult? My kidney function is normal. I have

> taken Prednisone in the past but have not had any flare ups lately.

> My protein is good-My doctor says its okay, but my husband is a bit

> worried. I feel like I need to hurry before my kidneys may (or may

> not) fail. I am 30 and I've also got that darn biological clock

> against me.

>

> Thanks.

>

> -Lena

>

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Sorry, I did not mean to send that link here, tho it is interesting.

-- (unknown)

http://www.winstonsmith.net/