Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Hi ... I also get the shakes when I overdue it. Do you think I would listen ..... NOOOOO! I try to finish what I'm doing then go inside. One thing I can do that most of you can't is go inside the house and lay down. I don't have anyone to fix dinner for except my dogs and horses.... and if I don't feel like eating, I don't worry about it. Lord only knows I won't loose any weight over it....lol .... do you get sick to your stomach when you get that tired???? Hugs Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Hi ..... Obstinate? Stubborn? You? NAAAAAAAAAAW!!!!! I am the same way....<grin> In the beginning my doctor would tell me not to do something and I would say.... " Nooooooo, I can do it " . He did enjoy my spunk as he called it but I'm not so sure I ever did the right thing for my body. Looking back over the years, I've been able to push my body to the limits... Now I can't do that and it's hard to get that through this thick cement head of mine. In the early stages of this disease rest is very important. The more you rest the quicker you'll get back to doing things you want to do. The rest is repair time. As you get better you'll be able to do light exercise and walking. You must make sure that the inflammation is down other wise you can cause more muscle damage. Picture your muscles as a blown up balloon.... than adding too much air. Your inflamed muscles are the same, as the inflammation increases they form small tears, this can not be repaired. Your muscles are very tired and rest is the only answer to the solution. We've all been where you are right now. Denial is soooooo common... still trying to do what we use to is also common. Take it easy and reroute your thinking... pretty soon you'll know what you can and can not do and won't have to force yourself to do it. Hugs Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Chocolate cake sounds good to me right now.... But, I'll have to settle for a cracker instead. Never heard of amitryptiline before..... so I guess that means I've never tried it. Is it just to make you sleep at night...??? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 Amitryptiline is also called Elavil and it is an anti-depressant. It is used in pain patients to break the pain cycle and it is also used to help patients with sleep disorders to get to sleep. The problem is that it has just about as many side effects as prednisone, just not quite as severe. It can cause you to feel weak due to lowered blood pressure, it can cause weight gain, and it can cause a hang-over feeling in the morning. There are others, but these are the significant side effects. Gentle hugs, Fern Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Hi ... Oooops, I thought you had two boys.... Anyway, I'm glad the kids did well and were able to take care of themselves. It's good experience for them every now and then. Hope you're feeling better. Take care, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Thanks for your thoughts, Vicki. Annette (unknown) Annette... I didn't know you had a son still living in San Diego. Now I'm really sorry you can't attend the conference. You could have seen him AND us! LOL My hats off to him... I have always felt that the police depts get a bum rap. I hope and pray that all of them will be respected much more now than ever before. They've all been hero's to me. Take care, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Hi , I think that no one...even our doctors...can tell us what we should or should not do. Even though we have the same diseases as others, we each react differently to them. Plus, I KNOW there are varying degrees of discomfort and disability even within the same disease. I have a cousin with fibro and she worked full time with it for years, but then found it necessary to work a four day week. Now, she works the four day week plus she takes a day off each month to just rest. She feels this schedule works well for her. Mind you, though, she has only one child and he is in college. Also, her husband is a big help around the house and yard. Conversely, I had a friend in San Diego who taught elementary school and had to retire early because of the fibro. Do what you can and try to ignore what others may THINK you should be doing. I know that my family and friends think I do too MUCH and that's why I have to go to bed so early at night. Well, it works for me, so I just smile at their comments and say " Yeah, I should try to stay up later... " then do what I have to do. Annette (unknown) Hi Lynn- I think it's odd that I can correlate my increasing/worsening symptoms after I began taking the Celexa. For quite some time I felt I noticed no negative side effects from it, but, being off it now, I can see differences.... Cari and Fern told me one should taper off from these drugs, but this last time, since I started taking the Elavil as well, I just stopped it. first time I did, I only noticed some lightheadedness and such for a short time. I mentioned all this to my occassional therapist last week (she was the one who pushed me trying Celexa), and she kind of pooh-poohed the idea that there might, and I say ONLY might, be some connection. She will not convince me, however--- at least not yet. She also told me that she knows other women with fibromyalgia who have kids and work full- time.... I gather she doesnt think it is that bad a syndrome. I, on the other hand, think we each are different, and I do the best I can and I don't complain a lot. I well know there are many far worse off than me, but I don't think she should " compare " me with others- she's done that before, and I'm not sure of her motivations..... It doesnt make me feel very good about myself, though:) I gather she feels if I only got myself a job- part time to start- I'd be much happier and have a happier marriage, as well! I, on the other hand, prefer things as they are, but only from the sense that I can " handle " things normally if I can pace myself, and I dont' have too many outside pressures. My goal is to get as well as possible, THEN conquer the world Sorry I've digressed.... <3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 , Doctors should never compare their patients. Anyone who knows anything about these diseases know that symptoms, reactions to Rx, pain levels, muscles affected, etc...etc.... vary greatly from patient to patient. Shame on her for making you feel bad about yourself. You are the best judge of what you are able to take on and who would choose to limit themselves if they didn't have to. She was wrong to make any comparisons. Just chalk it up to one insensitive persons opinion. I took Celexa for a while. I did wean myself off of it slowly as I am very sensitive to medications. I decided to go off of the Celexa because about an hour after I took it I got an anxious feeling and got " restless legs " . I took it in the evening and would try to be asleep when the pill started to take effect but wasn't always successful. The Celexa worked great for awhile and then I guess I didn't need it anymore and my body was telling me so. Keep your chin up and don't worry anymore about what the Dr. said. Like you, I wouldn't find that very motivating. Hugs, Cari >From: gide672@... >Reply-To: OurMyositis >To: OurMyositis >Subject: (unknown) >Date: Sat, 06 Oct 2001 13:30:23 -0000 > >Hi Lynn- > I think it's odd that I can correlate my increasing/worsening >symptoms after I began taking the Celexa. For quite some time I felt >I noticed no negative side effects from it, but, being off it now, I >can see differences.... Cari and Fern told me one should taper off >from these drugs, but this last time, since I started taking the >Elavil as well, I just stopped it. first time I did, I only noticed >some lightheadedness and such for a short time. I mentioned all this >to my occassional therapist last week (she was the one who pushed me >trying Celexa), and she kind of pooh-poohed the idea that there >might, and I say ONLY might, be some connection. She will not >convince me, however--- at least not yet. She also told me that she >knows other women with fibromyalgia who have kids and work full- >time.... I gather she doesnt think it is that bad a syndrome. I, on >the other hand, think we each are different, and I do the best I can >and I don't complain a lot. I well know there are many far worse off >than me, but I don't think she should " compare " me with others- she's >done that before, and I'm not sure of her motivations..... It doesnt >make me feel very good about myself, though:) I gather she feels if I >only got myself a job- part time to start- I'd be much happier and >have a happier marriage, as well! I, on the other hand, prefer things >as they are, but only from the sense that I can " handle " things >normally if I can pace myself, and I dont' have too many outside >pressures. My goal is to get as well as possible, THEN conquer the >world Sorry I've digressed.... <3 > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Yes, ..Cari is so very right. The doctor may be knowledgeable, etc etc, but she doesn't live in your body!!! You have to go at your own pace and take the steps that are best for you. You can't allow yourself to be measured by someone else's yardstick! Hugs, Lynn --- Cari Dorsey wrote: > , > Doctors should never compare their patients. Anyone > who knows anything > about these diseases know that symptoms, reactions > to Rx, pain levels, > muscles affected, etc...etc.... vary greatly from > patient to patient. Shame > on her for making you feel bad about yourself. You > are the best judge of > what you are able to take on and who would choose to > limit themselves if > they didn't have to. She was wrong to make any > comparisons. Just chalk it > up to one insensitive persons opinion. > > I took Celexa for a while. I did wean myself off of > it slowly as I am very > sensitive to medications. I decided to go off of > the Celexa because about > an hour after I took it I got an anxious feeling and > got " restless legs " . I > took it in the evening and would try to be asleep > when the pill started to > take effect but wasn't always successful. The > Celexa worked great for > awhile and then I guess I didn't need it anymore and > my body was telling me > so. > > Keep your chin up and don't worry anymore about what > the Dr. said. Like > you, I wouldn't find that very motivating. > Hugs, > Cari > > > >From: gide672@... > >Reply-To: OurMyositis > >To: OurMyositis > >Subject: (unknown) > >Date: Sat, 06 Oct 2001 13:30:23 -0000 > > > >Hi Lynn- > > I think it's odd that I can correlate my > increasing/worsening > >symptoms after I began taking the Celexa. For quite > some time I felt > >I noticed no negative side effects from it, but, > being off it now, I > >can see differences.... Cari and Fern told me one > should taper off > >from these drugs, but this last time, since I > started taking the > >Elavil as well, I just stopped it. first time I > did, I only noticed > >some lightheadedness and such for a short time. I > mentioned all this > >to my occassional therapist last week (she was the > one who pushed me > >trying Celexa), and she kind of pooh-poohed the > idea that there > >might, and I say ONLY might, be some connection. > She will not > >convince me, however--- at least not yet. She also > told me that she > >knows other women with fibromyalgia who have kids > and work full- > >time.... I gather she doesnt think it is that bad a > syndrome. I, on > >the other hand, think we each are different, and I > do the best I can > >and I don't complain a lot. I well know there are > many far worse off > >than me, but I don't think she should " compare " me > with others- she's > >done that before, and I'm not sure of her > motivations..... It doesnt > >make me feel very good about myself, though:) I > gather she feels if I > >only got myself a job- part time to start- I'd be > much happier and > >have a happier marriage, as well! I, on the other > hand, prefer things > >as they are, but only from the sense that I can > " handle " things > >normally if I can pace myself, and I dont' have too > many outside > >pressures. My goal is to get as well as possible, > THEN conquer the > >world Sorry I've digressed.... <3 > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com/intl.asp > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 HI Missy, My surgeon is in Scarsdale, NY. I'm nottoo sure how close that is to Syracuse. I live in NJ and my ortho likes the guy in Scarsdale very much. They've been working as a team for a while now. My surgeon is Dr. Orentlicher. His website is: www.drsgando.com Give it a look and a second opinion from them couldn't hurt. Carin > >Reply-To: orthognathicsurgerysupport >To: orthognathicsurgerysupport >Subject: [Orthognathic Surgery Support ] (unknown) >Date: Fri, 14 Jun 2002 03:14:24 -0000 > > Hi, > My name is missy, I have been thinking of having something done >about my jaw for years, but did'nt know what my options were. >Honestly I don't remember how I learned about the surgery. I know it >was by surfing the net though. I am totally amazed at the beautiful >results in these sites. I went to an ortho in feb but was'nt too >comfortable about it yet. I am a real worrier. A total murphy's law >believer. It's a character flaw! Anyway I went to see the surgeon on >june 6 he says my lower jaw is'nt the prob it's the upper that needs >to be expanded only and genio reduction for the chin only. " scooped >out midface " . The problem is the ortho says definetly lower is >needed just expand the upper a little {hence my dilemma}. This was >before I saw the surgeon, but obviously my face has'nt changed. My >bite is'nt too bad now, so i'm sure insur won't pay but, maybe I'll >be surprised. >The surgeon was very nice. Has anyone had this surg in upstate New >York. Syracuse area and know a good surgeon I can get a second >opinion with. I have to get braces soon I guess i'll have a while to >get the surg stuff fig out. This will be my second time in braces and >they will have to pull 2 upper to decompensate and get my underbite >back. This bothers me a lot I hate to think of pulling healthy viable >teeth. Well thats enough sorry to ramble, good luck to those with >close surg dates > > Missy > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 --Missy, unfortunately I do not know of a surgeon in Syracuse who is good, but I had to answer your post because I grew up in Syracuse. I'm in CA now. I am also a worrier, but went ahead with the surgery and it definitely is something worth doing. Good luck with your search, Donna > > > >From: " mystic0124 " <mystic0124@y...> > >Reply-To: orthognathicsurgerysupport@y... > >To: orthognathicsurgerysupport@y... > >Subject: [Orthognathic Surgery Support ] (unknown) > >Date: Fri, 14 Jun 2002 03:14:24 -0000 > > > > Hi, > > My name is missy, I have been thinking of having something done > >about my jaw for years, but did'nt know what my options were. > >Honestly I don't remember how I learned about the surgery. I know it > >was by surfing the net though. I am totally amazed at the beautiful > >results in these sites. I went to an ortho in feb but was'nt too > >comfortable about it yet. I am a real worrier. A total murphy's law > >believer. It's a character flaw! Anyway I went to see the surgeon on > >june 6 he says my lower jaw is'nt the prob it's the upper that needs > >to be expanded only and genio reduction for the chin only. " scooped > >out midface " . The problem is the ortho says definetly lower is > >needed just expand the upper a little {hence my dilemma}. This was > >before I saw the surgeon, but obviously my face has'nt changed. My > >bite is'nt too bad now, so i'm sure insur won't pay but, maybe I'll > >be surprised. > >The surgeon was very nice. Has anyone had this surg in upstate New > >York. Syracuse area and know a good surgeon I can get a second > >opinion with. I have to get braces soon I guess i'll have a while to > >get the surg stuff fig out. This will be my second time in braces and > >they will have to pull 2 upper to decompensate and get my underbite > >back. This bothers me a lot I hate to think of pulling healthy viable > >teeth. Well thats enough sorry to ramble, good luck to those with > >close surg dates > > > > Missy > > > > > > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.ho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Caroline sweetie! Sorry you have been sick. I hope you have a quick recovery. I'm sure you did barf up the junk and then some. Not the way you want to lose weight I know. You take it easy. Thanks for your kind words. Hugs, Gena > Hey Buds, > > Yes, i've been absent since, i guess, weds....thanksgiving went > fairly well....i really ate light during the day...did eat the > things i wanted to eat for dinner...but less....went christmas > shopping all day fri.....didn't do so well...chicken sandwich with > onion rings for lunch and mcd's sandwich for b-fast....then pizza > for dinner..ick.... > > but sat....i got incredibly sick....throwing up all day into sunday > until finally went to the er yesterday afternoon...apparently there > is some horrible virus going around and i have gastro something or > other...suffice it to say i've been miserable...but maybe i barfed > up all the garbage i ate on fri....had some chicken broth and piece > of toast today....i have to go to atlanta for work tomorrow morning > thru thurs...so am trying to rest a lot today.... > > gena - i loved your post and i'm so proud of you for refocusing...i > was thinking that i too need to refocus...and i've only lost 5.2 > lbs.....won't weigh in again until thurs...hopefully will have lost > more...but i totally agree with what you said...very motivating!! > > everyone else sounds like they're doing awesome!! sorry...just took > me 1/2 hour to read all the posts......but congrats to all for a > great job getting thru thanksgiving!!! > > i'll talk to you all soon!!! > > caroline > > <image.tiff> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Don't complain, dearie! We used to get 400-500 e-mails a DAY in WLB! 100 is a piece of cake (low fat,natch). I come home, sit down by the computer, read/answer/delete-read/answer/delete until it's time for dinner. then I grab a sandwich and return to 'puterland. In the 10 minutes that I've left my seat by the computer, another 10-15 e-mails have arrived. At some time during the read/answer/delete process, I just minimize my e-mail program and go on to other things. SHE forum, cleaning challenges, potty break, water challenge, etc. Phew-HARD LIFE, huh? Geula!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 --- wow 100 is a piece a cake. i cant imagine 500 lol In weightlossbuddies2 , " geula " <karen@b...> wrote: > Don't complain, dearie! We used to get 400-500 e-mails a DAY in WLB! 100 is > a piece of cake (low fat,natch). I come home, sit down by the computer, > read/answer/delete-read/answer/delete until it's time for dinner. then I > grab a sandwich and return to 'puterland. In the 10 minutes that I've left > my seat by the computer, another 10-15 e-mails have arrived. At some time > during the read/answer/delete process, I just minimize my e-mail program and > go on to other things. SHE forum, cleaning challenges, potty break, water > challenge, etc. Phew-HARD LIFE, huh? > > Geula!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 I have read in literature somewhere that Lupus patients can and do have Iga. They are suffering from all of the antibodies IgA, IgG, etc etc affecting their bodies, whereas for us it tends to be just one or two types. Sally UK Re: (unknown) Hi Lena, To the best of my memory, I've never heard of an association, between lupus and IgAN. I'd push your doc a little harder on this to figure out what he's referring to. Do any of your close relatives have lupus or anything else that places you at risk? There is a very loose associate between other kidney diseases and other autoimmune diseases (for instance MPGN and celiac disease are commonly found together), but I've never heard of lupus and IgAN. There is a strong association between lupus and kidney disease: severe lupus does cause nephritis, but this is different from IgAN. A friend recently attended a conference on lupus nephritis and she reported that lupus is associated with both proliferative (IgAN is proliferative) and non proliferative kidney disease. Hopefully someone here can provide more information because I've just about exhausted what I know about lupus. . IgAN does not necessarily rule out pregnancy. However, you will probably want to see someone who specializes in high risk pregnancies. There are many women at this site who have successfully carried healthy babies to term. Hopefully, one of them will chime in to provide further information. Good luck! Please keep all of us in the loop. Cy (unknown) > Hi Everyone! > My name is Lena and I was diagnosed with IGAN about 2 years ago. I > was also told it was a kidney infection at first and have taken Cipro > about a gazillion times. Anyway, I have 2 questions that maybe > someone could answer for me. My doctor, who I really appreciate, has > told me that my IGAN could possibly trigger Lupus as well. I have > tired to research this and am not coming up with anything. Has > anyone else been told this? > > My other question is whether anyone has gotten pregnant while > having IGAN? Is it difficult? My kidney function is normal. I have > taken Prednisone in the past but have not had any flare ups lately. > My protein is good-My doctor says its okay, but my husband is a bit > worried. I feel like I need to hurry before my kidneys may (or may > not) fail. I am 30 and I've also got that darn biological clock > against me. > > Thanks. > > -Lena > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2007 Report Share Posted May 26, 2007 Sorry, I did not mean to send that link here, tho it is interesting. -- (unknown) http://www.winstonsmith.net/ Quote Link to comment Share on other sites More sharing options...
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