Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Are you using Early Intervention services (also called Birth-to-three) in some states? In MA, at least, congenital muscular torticollis is a qualifying problem, and even when any resulting developmental delays are resolved they will still continue to track progress because of the originial diagnosis. We are using their services for my daughter . I completely agree with the other response I saw - it would be best to get going with your own program of neck stretches without waiting on these appointments. In the end - it is you who do all the therapy anyways - the PT just monitors the progress. Perhaps your pediatrician can go over the stretches with you? I saw that someone suggested the orthoseek site which does show diagrams. The HeadsUpBaby.com video also shows how to do this. - > OK 1st PT appt ended up being a lady for just paper work ugg tons > of info. I had to pick a OT or a PT. now the OT/PT has 14 days to > contact me and set up an evaluation/test to see if Kadie qualifies > for any help. If she doesnt have any developmental delays and just > has the tort she WONT qualify. UGGGGGGGGGGGGG If she does qualify > it can be up to 45 days before they start. OMG Thats 6 weeks. Do u > know what I can do with her and therapy in 6 weeks IM SO > MAD!!!!!!!!!!!! > I told this pady " do u know what tort can cause? It isnt just a > neck thing. So many probs can result from this if it isnt properly > worked on. " GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR God grant me > patience!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 I totally understand what you are going through. We had the same problem with early intervention. They have to already be delayed in most states to qualify. Is there a way you can go to a pt that is in the EI program, but start out private and IF Kadie qualifies she could just be picked up from there then? Sandy Willow's Mom Torticollis resolved Cranio Germany Grad 02/04 > OK 1st PT appt ended up being a lady for just paper work ugg tons > of info. I had to pick a OT or a PT. now the OT/PT has 14 days to > contact me and set up an evaluation/test to see if Kadie qualifies > for any help. If she doesnt have any developmental delays and just > has the tort she WONT qualify. UGGGGGGGGGGGGG If she does qualify > it can be up to 45 days before they start. OMG Thats 6 weeks. Do u > know what I can do with her and therapy in 6 weeks IM SO > MAD!!!!!!!!!!!! > I told this pady " do u know what tort can cause? It isnt just a > neck thing. So many probs can result from this if it isnt properly > worked on. " GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR God grant me > patience!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 I am so sorry that you are getting the run aorund with the tort therapy program. I went through a simialr issue when my son was first dx'd over a year ago. We were dx'd at his 2wk appt, but my own denial caused me to wait for another 6 weeks before I would have him evaluated. Much to my surprise, when they confirmed that my ds had tort, that there was up to a six week waiting list to get into the program. I think the therapist who was evaluating him picked my jaw up off the ground...and told me what to do in the meantime. OK? Needless to say, there was a cancellation and we were in the program within 2 weeks. As for deciding between OT and PT, I would not be able to choose if I had to. We saw both, and both looked at different aspects of my son's development, functioning, and in the end his plagio as well. LOL They were the ones who dx'd that and forced me (denial again) to seek treatment for the plagio. Keep up the good fight...and keep us posted. - mom to Aidan > OK 1st PT appt ended up being a lady for just paper work ugg tons > of info. I had to pick a OT or a PT. now the OT/PT has 14 days to > contact me and set up an evaluation/test to see if Kadie qualifies > for any help. If she doesnt have any developmental delays and just > has the tort she WONT qualify. UGGGGGGGGGGGGG If she does qualify > it can be up to 45 days before they start. OMG Thats 6 weeks. Do u > know what I can do with her and therapy in 6 weeks IM SO > MAD!!!!!!!!!!!! > I told this pady " do u know what tort can cause? It isnt just a > neck thing. So many probs can result from this if it isnt properly > worked on. " GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR God grant me > patience!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Sorry to hear everything is going in slow motion for you. Has anyone shown you how to so stretches? If you're interested this web site shows you how to do them. http://www.pedisurg.com/PtEduc/Torticollis.htm Let us know when things get rolling. > OK 1st PT appt ended up being a lady for just paper work ugg tons > of info. I had to pick a OT or a PT. now the OT/PT has 14 days to > contact me and set up an evaluation/test to see if Kadie qualifies > for any help. If she doesnt have any developmental delays and just > has the tort she WONT qualify. UGGGGGGGGGGGGG If she does qualify > it can be up to 45 days before they start. OMG Thats 6 weeks. Do u > know what I can do with her and therapy in 6 weeks IM SO > MAD!!!!!!!!!!!! > I told this pady " do u know what tort can cause? It isnt just a > neck thing. So many probs can result from this if it isnt properly > worked on. " GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR God grant me > patience!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
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