TO KIM IN MN

[Guest guest]

Kim,

Where are you???? How is Jax???? Let me know.

~Amy

[Guest guest]

Amy,

Sorry I didn't repsond sooner, we went out of town. Jax is doing ok,

still sick though. Called the doc, left a message twice for the neuro

with no call back so I called his ped. He said that since they were

minor, that they wouldnt repeat the MRI at this time. Its quite

frustrating...

How's Jaden? I read the post about you talking to Dr. M about it

being minor. Which is GREAT.

We see Dr tomorrow - so hopefully we get some type of idea

about Jax's feet. OH, on Sat night at the hotel we were at, Jax got

up on all 4's for a second. It's giving me some hope ... 11.5 months

old and just doing that... I really didn't think he would.

Ok, gotta work for a bit.. I'm gonna post a new pic later this

morning and will post a message here when it's up...

Kim

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Kim,

> Where are you???? How is Jax???? Let me know.

> ~Amy

[Guest guest]

Kim,

YEY congrats to Jax! That is a huge milestone for him and I bet you

are feeling so great about that right now! What a nice thing to see

after all that he has been going thru, it must be a little sign

reassuring you that all will be well, but on HIS own time, lol. I

never did ask you how that wknd went w/ your friends at the cabin?

And yes, very frustrating about the MRI, isn't there any way you can

chew them out to get it done sooner? I bet you've already chewed

enough I'm guessing.... I'll go look at Jax's pics after I post

this.

Jaden is doing well. I gave up on the tape for a nite, got so

frustrated. Then I gave him a bath the next nite, and decided that

I'd do it because I couldn't live w/ the guilt if I didn't try for

his sake, and I was getting frustrated, and he sensed it and turned

for me like a perfect little gentleman and let me put it on him. I

was sooooooooo overwhelmed and proud of him. I also skipped the

milk of magnesia this time because I don't have the time to let it

sit and dry, and if I blow it dry w/ my mouth or a piece of paper,

it kinda disturbs him if he's nodding off. I'm proud to say the

tape has stayed on for 3 days now! YEY. I forget, but WHAT is the

purpose of the M.O.M. again???? Refresh my memory. Anyways, I know

this is crazy but I swear he can read my mind. With our dog and cat

I always " think and show " them in my mind what it is that I am

requesting or wanting, and they usually get the picture and " listen "

to me, it's amazing. (Do you ever watch that psychic pet lady on

tv?) So w/ Jaden I've been doing this and did this w/ the tape and

he knew exactly what I had to do and why. Then I figured out why

I've been getting so frustrated w/ the taping and that is because

when I give Jaden a bath I use that lavender baby oil and it stays

on his skin, and this is the reason why the tape slips off or

doesn't stay on long. DUH! I thought about that when Ann showed me

a week ago how to take the tape off w/ baby oil, and bells started

ringing a few days later in my head.... So I am skipping the oil in

his bath, and skipping the M.O.M. for now and next taping might use

the M.O.M. and permantly skip the oil during baths until we no

longer use the tape. Ok. Enough about the tape talk.

Finding a new PT for Jaden is getting hard. There is absolutley NO

ONE qualified enough w/ tort over at Virginia hsptl PT center to

work w/ Jaden. I talked w/ a gal on the phone and she was very

honest w/ me, and had only worked w/ one tort baby who's parents

never brought the baby back to complete the PT there. I am

disappointed to say the least. Makes me want to go to school to

learn PT just for tort and practice in this area, I can't imagine

how many tort babies there are in this area that has gone

undiagnosed! And Jaden was one of them! UGH. She reccommended

someone over in Hibbing, I'll make the call tomorrow. But heck, if

I'm gonna be going to Hibbing, 45 minutes away, I might as well go

the extra 15 minutes and stay in Duluth instead. I have no trust in

the medical community up North here, they are all a bunch of

idiots. NOW I finally realize why anyone south of the Iron Range

thinks we are all idiots up here, because we ARE. However, my mom

is checking out one more person at the hsptl in Aurora in the

morning and is gonna get back to me. I'll keep you posted. I am

still waiting for Jaden's pede to call back w/ a referral to a pede

reflux specialist also.... the moron only managed to call in a

script for his Zantac and didn't call me back regarding the

referral. And I am hoping to find a chiro to work w/ Jaden so that

maybe I can avoid seeing this specialist first, because from what I

understand the chiro can help w/ his tort/scoliosis/reflux because

they seem to all go together. Correct me if I am wrong.

Well, I better get going. Glad all is well, I hope Jax is getting

better. You getting any more sleep? lol. Ya right!

~Amy

> > Kim,

> > Where are you???? How is Jax???? Let me know.

> > ~Amy

[Guest guest]

Mornin' Kim,

Yey for Jax sitting up yesterday! I am very happy for all of you.

Did Kim at the front desk give you the cards that I left you?

I spoke w/ Ann on the phone yesterday also, she explained to me

again about the M.O.M. and Jaden still has a titch of redness today

(I took the tape off last nite), so I will be using that stuff

again. However, I read on the Tort Kids website that taping is

usually used AFTER correction has been made, even after a tot collar

has been used, in order to help " remind " him not to tilt. Go

figure.

I also found a few PT's over here in Aurora at White Community Hsptl

thru my mom asking around (she works there), and they are supposed

to be excellent. I tried Virginia hsptl, but no one was qualified

enough, but then that lady gave me Bev Schulte's name over in

Hibbing at SMDC Clinic, who is like the guru (sp?) of tort pt. And

after talking w/ Ann yesterday, she REALLY reccommended her. But

mom said the two PT's she spoke w/ are just as good as this Bev

(because they said so, lol, and attended her lectures and know

everything Bev knows), so we will try locally and see how it goes,

at least for now it'll save us LOTS on gas since it's only 5 miles

away.

I am also having my doubts on the CranioCap and how much more Jaden

will achieve thru it. He'll be getting a major adjustment tomorrow

by Steve in that he'll be popping out the top back portion to allow

more growth for rounding. Right now the top back of his noggin is a

bit flat, kinda sloping, and I am hoping this adjustment will allow

more rapid growth. On top of ALL this, our little man is getting

his FIRST TOOTH, and I just felt it coming thru today. He has been

eating really crappy the past few days, well, know I know why,

because the bottle is creating discomfort for him. Once I put

orajel on that little tooth, he woofed down his lunch. Good boy ;o)

Gotta go water the plants. You keep me posted on Jax and what Dr.

says. I am glad he's in good hands w/ him. I really like

that guy myself.

~Amy

> > > > Kim,

> > > > Where are you???? How is Jax???? Let me know.

> > > > ~Amy