Re: Colin F.'s scanning apptm't

[Guest guest]

Hello Sue

It's awsome to hear that Colin did soo well. ) Please let us

know how the fitting goes.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

>

> Your good thoughts really helped us yesterday!

>

> Colin did really really well ~ I was very proud of him. The

drive

> was only an hour (Rochester, NY) and my mom came with me which was

> nice. We found the place, filled out some paperwork and they took

us

> in right away.

>

> Chuck, the orthotist, was nothing as I had pictured him. I had

> spoken with him on the phone a few times before our visit. He is

> very well-spoken and knowledgeable about the treatment and band

that

> they use, etc. He looked like a Harley son motorcycle guy!!

He

> had a shaved head, mustache and goatee beard and had tatooes up

and

> down both arms!!! But again, he was very intelligent and soft-

spoken

> and Colin warmed up to him very quickly! He played peek-a-boo

with

> Colin with the stocking that went on his head and let Colin touch

his

> shaved head and face. It was cute. Colin didn't mind the

stocking

> going on at all (I will post a picture sometime).

>

> He then layed Colin in the scanner and let C have his paci. C was

OK

> at first but wimpered a little bit. I had to hold his arms down

to

> his sides and I tickled his thighs with my lips (which makes him

> giggle). We had to do the scan 3 times to get the best image.

>

> The computer image was really cool and I loved being able to

really

> see his head. The measurements showed that his ratio of front-to-

> back and side-to-side is 98% and Chuck said that ideally you want

> that around 76-80% (I think; my paperwork is upstairs, but I'm

sure

> you experts know what I'm talking about!). His head is really

flat

> in the back (brachy) and he has some right plagio as well. He

showed

> me the 4 quadrants of the cross section of his head between his

ears

> and nose to neck and explained where the growth will be encouraged

> and where the band will gently hold growth in the width of his

head.

>

> We ordered the Jumbo designed STARband (yellow with dancing

> elephants) and he explained that the pattern might distort the

images

> of the elephants. I said that was fine because I have seen

someone

> else's and liked it just fine. He had some samples of the bands

so

> we got to look and feel them. We will get the band in 2 weeks

(June

> 29th at 3pm EST). I think I may be more emotional during that

> appointment but perhaps a lot of my anxiety has already been

released

> a little.

>

> Chuck said that we do not need anything for sleep or car seat. I

> think I may have more questions after we get it. Colin will get

> check-ups every week. I like the weekly check-ups just to know

what

> is going on, but I know that there may not be progress every week.

>

> Today is my day off from work so I need to get ready and play with

my

> little man! I thank you so much for your concern and will be back

> tomorrow to respond to everyone else's posts!

>

> Take care!

> Sue

> Colin F. 9/24/03 (bachy, rt plagio)

> STARband starting 6/29/04

> Buffalo, NY

[Guest guest]

Sue,

THanks for the great update! That sounds like a great facility!

How nice that you'll get to go in weekly. Will you get a scan each

time? I'm glad Colin did so well and be sure to let us know when

his band is in!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

>

> Your good thoughts really helped us yesterday!

>

> Colin did really really well ~ I was very proud of him. The

drive

> was only an hour (Rochester, NY) and my mom came with me which was

> nice. We found the place, filled out some paperwork and they took

us

> in right away.

>

> Chuck, the orthotist, was nothing as I had pictured him. I had

> spoken with him on the phone a few times before our visit. He is

> very well-spoken and knowledgeable about the treatment and band

that

> they use, etc. He looked like a Harley son motorcycle guy!!

He

> had a shaved head, mustache and goatee beard and had tatooes up

and

> down both arms!!! But again, he was very intelligent and soft-

spoken

> and Colin warmed up to him very quickly! He played peek-a-boo

with

> Colin with the stocking that went on his head and let Colin touch

his

> shaved head and face. It was cute. Colin didn't mind the

stocking

> going on at all (I will post a picture sometime).

>

> He then layed Colin in the scanner and let C have his paci. C was

OK

> at first but wimpered a little bit. I had to hold his arms down

to

> his sides and I tickled his thighs with my lips (which makes him

> giggle). We had to do the scan 3 times to get the best image.

>

> The computer image was really cool and I loved being able to

really

> see his head. The measurements showed that his ratio of front-to-

> back and side-to-side is 98% and Chuck said that ideally you want

> that around 76-80% (I think; my paperwork is upstairs, but I'm

sure

> you experts know what I'm talking about!). His head is really

flat

> in the back (brachy) and he has some right plagio as well. He

showed

> me the 4 quadrants of the cross section of his head between his

ears

> and nose to neck and explained where the growth will be encouraged

> and where the band will gently hold growth in the width of his

head.

>

> We ordered the Jumbo designed STARband (yellow with dancing

> elephants) and he explained that the pattern might distort the

images

> of the elephants. I said that was fine because I have seen

someone

> else's and liked it just fine. He had some samples of the bands

so

> we got to look and feel them. We will get the band in 2 weeks

(June

> 29th at 3pm EST). I think I may be more emotional during that

> appointment but perhaps a lot of my anxiety has already been

released

> a little.

>

> Chuck said that we do not need anything for sleep or car seat. I

> think I may have more questions after we get it. Colin will get

> check-ups every week. I like the weekly check-ups just to know

what

> is going on, but I know that there may not be progress every week.

>

> Today is my day off from work so I need to get ready and play with

my

> little man! I thank you so much for your concern and will be back

> tomorrow to respond to everyone else's posts!

>

> Take care!

> Sue

> Colin F. 9/24/03 (bachy, rt plagio)

> STARband starting 6/29/04

> Buffalo, NY

[Guest guest]

hi sue,

i am so glad your appt went so well. i guess it just goes to

show you cannot judge a book by it's cover or in this case a man by

his body art!! lol. it sounds as if colin reacted very well to the

scanner...sounds a lot more pleasant than the casting we did...and i

hope he reacts just as well to the band..hmmmmm dancing

elephants...haven't thought about them since my wild high school

days.lol..have a great day playing with your little man!!! PS..just

realized he was born one day after my original due date...kathryn was

born 9/7/03, lots of sptember babies here.

kelly(mom to kathryn,plagio/brachy/tort,banded 5/03,texas)

>

> Your good thoughts really helped us yesterday!

>

> Colin did really really well ~ I was very proud of him. The drive

> was only an hour (Rochester, NY) and my mom came with me which was

> nice. We found the place, filled out some paperwork and they took

us

> in right away.

>

> Chuck, the orthotist, was nothing as I had pictured him. I had

> spoken with him on the phone a few times before our visit. He is

> very well-spoken and knowledgeable about the treatment and band

that

> they use, etc. He looked like a Harley son motorcycle guy!!

He

> had a shaved head, mustache and goatee beard and had tatooes up and

> down both arms!!! But again, he was very intelligent and soft-

spoken

> and Colin warmed up to him very quickly! He played peek-a-boo with

> Colin with the stocking that went on his head and let Colin touch

his

> shaved head and face. It was cute. Colin didn't mind the stocking

> going on at all (I will post a picture sometime).

>

> He then layed Colin in the scanner and let C have his paci. C was

OK

> at first but wimpered a little bit. I had to hold his arms down to

> his sides and I tickled his thighs with my lips (which makes him

> giggle). We had to do the scan 3 times to get the best image.

>

> The computer image was really cool and I loved being able to really

> see his head. The measurements showed that his ratio of front-to-

> back and side-to-side is 98% and Chuck said that ideally you want

> that around 76-80% (I think; my paperwork is upstairs, but I'm sure

> you experts know what I'm talking about!). His head is really flat

> in the back (brachy) and he has some right plagio as well. He

showed

> me the 4 quadrants of the cross section of his head between his

ears

> and nose to neck and explained where the growth will be encouraged

> and where the band will gently hold growth in the width of his

head.

>

> We ordered the Jumbo designed STARband (yellow with dancing

> elephants) and he explained that the pattern might distort the

images

> of the elephants. I said that was fine because I have seen someone

> else's and liked it just fine. He had some samples of the bands so

> we got to look and feel them. We will get the band in 2 weeks

(June

> 29th at 3pm EST). I think I may be more emotional during that

> appointment but perhaps a lot of my anxiety has already been

released

> a little.

>

> Chuck said that we do not need anything for sleep or car seat. I

> think I may have more questions after we get it. Colin will get

> check-ups every week. I like the weekly check-ups just to know

what

> is going on, but I know that there may not be progress every week.

>

> Today is my day off from work so I need to get ready and play with

my

> little man! I thank you so much for your concern and will be back

> tomorrow to respond to everyone else's posts!

>

> Take care!

> Sue

> Colin F. 9/24/03 (bachy, rt plagio)

> STARband starting 6/29/04

> Buffalo, NY

[Guest guest]

Hi Sue,

Glad to hear the appt went so well. It sounds like you have an

experienced ortho, that is only a good thing! Let us know how the

fitting goes.

>

> Your good thoughts really helped us yesterday!

>

> Colin did really really well ~ I was very proud of him. The drive

> was only an hour (Rochester, NY) and my mom came with me which was

> nice. We found the place, filled out some paperwork and they took

us

> in right away.

>

> Chuck, the orthotist, was nothing as I had pictured him. I had

> spoken with him on the phone a few times before our visit. He is

> very well-spoken and knowledgeable about the treatment and band

that

> they use, etc. He looked like a Harley son motorcycle guy!!

He

> had a shaved head, mustache and goatee beard and had tatooes up and

> down both arms!!! But again, he was very intelligent and soft-

spoken

> and Colin warmed up to him very quickly! He played peek-a-boo with

> Colin with the stocking that went on his head and let Colin touch

his

> shaved head and face. It was cute. Colin didn't mind the stocking

> going on at all (I will post a picture sometime).

>

> He then layed Colin in the scanner and let C have his paci. C was

OK

> at first but wimpered a little bit. I had to hold his arms down to

> his sides and I tickled his thighs with my lips (which makes him

> giggle). We had to do the scan 3 times to get the best image.

>

> The computer image was really cool and I loved being able to really

> see his head. The measurements showed that his ratio of front-to-

> back and side-to-side is 98% and Chuck said that ideally you want

> that around 76-80% (I think; my paperwork is upstairs, but I'm sure

> you experts know what I'm talking about!). His head is really flat

> in the back (brachy) and he has some right plagio as well. He

showed

> me the 4 quadrants of the cross section of his head between his

ears

> and nose to neck and explained where the growth will be encouraged

> and where the band will gently hold growth in the width of his

head.

>

> We ordered the Jumbo designed STARband (yellow with dancing

> elephants) and he explained that the pattern might distort the

images

> of the elephants. I said that was fine because I have seen someone

> else's and liked it just fine. He had some samples of the bands so

> we got to look and feel them. We will get the band in 2 weeks

(June

> 29th at 3pm EST). I think I may be more emotional during that

> appointment but perhaps a lot of my anxiety has already been

released

> a little.

>

> Chuck said that we do not need anything for sleep or car seat. I

> think I may have more questions after we get it. Colin will get

> check-ups every week. I like the weekly check-ups just to know

what

> is going on, but I know that there may not be progress every week.

>

> Today is my day off from work so I need to get ready and play with

my

> little man! I thank you so much for your concern and will be back

> tomorrow to respond to everyone else's posts!

>

> Take care!

> Sue

> Colin F. 9/24/03 (bachy, rt plagio)

> STARband starting 6/29/04

> Buffalo, NY