Re: Peggy

[Guest guest]

I think that long posts, long words, long ramblings and long pleas

for compassion are more than justified in our group. I am so sorry

to hear of your being admitted, Peggy, but I am glad that you are

getting (I fervently hope) the care that you ought to have!

Love to you, to Cassy, to all in our group, including our

fearless leader and fearless daughter,

love, and let us all pull for those " captured " in hospitals

by what my youngest refers lovingly to as " the white

coat Mafia, " and I guess she figures that she can say

that one, as thanks to my being half Italian, the youngest

is, of course, 1/4 Italian! (no mafiosi that we know of),

more love, from

more n

>

>

>

>

> {{{{Peggy}}} Im so sorry you had a flare up and had to be admitted. I hope

> you are feeling better and the pain is gone or at least not as bad. Im happy

> is helping so much,what a sweetie! Take it easy. I will be thinking

> about you and praying for you.

> hugz and luv

> cassy

>

>

> ---------- Forwarded message ----------

>

> To: MSersLife

> Date: Sat, 17 Nov 2007 20:05:23 -0000

> Subject: Hi all...LONG

>

>

>

> Hey everyone!!! Just popping in to let you know that I am home and

> felling much better now. I was released on Monday afternoon, late.

> Waited 4 days for the MRI to be read and never saw a neurologist the

> whole time I was in the hospital. The MRI was finally read Monday

> morning late after the hospitalist who was taking care of me called

> the administration because he was ticked off!!!

>

> From what my sister who works at the hospital was able to tell me,

> there was no damage to my eye sockets or brain stem and no signs of

> hemorage(sp)in my brain. Thank God, since they didn't read the darn

> thing for 4 days!!! There was 5 bright white lesions showing in the

> right front part of the brain and 4 somewhere else that right now I

> can't remember. According to the radiologist there was no report to

> compare the new test to which I find funny since I've had all but 2

> MRI's with this company. Not at this address but I would think that

> the computer system would hold all the patients records, apparantely

> not. If these are new lesions it puts me up to 22 lesions. They want

> me to follow up with an opthamologist.

>

> I was on Solumedrol for 3 days which made me sick to my stomach and

> unable to eat. It left a tinny taste in my mouth, which at first I

> blamed on the hospital food, LOL!!! I didn't eat for the first 2

> days. My blood sugar went up so I had to take insulin, my BP went up

> because of my anxiety. That was I think because this was my first

> flare, that I know of, and it scared the crap out of me, plus not

> getting a dr. to come and see me except for the doctor who admitted

> me who came every day, not getting the MRI read, not having any

> answers, and not wanting to be away from the kids. Plus had to

> come home from work and he was supposed to start at a new prison on

> that Monday and didn't get to go back to work until Thursday.

>

> So, now I have an appt. with a new neuro, the one who couldn't get in

> to see me in the hospital, but not until Dec. 6th. This is the

> earliest he can get me in. I am on a cancellation list. I have to see

> my family doctor to check my sugar and BP next week. I have to

> reschedule my P/T and my therapy appts. I am going this week to pick

> up the MRI films myself so I can look at them. I'm getting pretty

> good at reading them!!!

>

> I'm taking Prednisone now for a couple weeks, weaning off slowly.

> God, they are nasty tasting!!! They did work though. The headache is

> gone and so is the stabbing pain in my eyes. My left eyelid has a

> bruise on it because it hurt so bad I pushed on it so hard to try to

> stop the pain and bruised myself. Nobody noticed till I got home.

> Then saw it. My belly is all bruised from being poked from

> them giving me heparin to prevent clotting and then I was taking

> pills to prevent an ulcer plus my Copaxone, plus an IV, jeez!!! Pluss

> my fingers were all bruised from the little sugar tests every two or

> three hours. I swear they get sick pleasure out of poking people with

> needles!!!

>

> Most of the nurses were very good and very nice. The one dr. I did

> have was good and it did help that I was on my sisters floor even if

> I was on the other side. They all took very good care of me. They

> knew they would have to face her wrath if they didn't, LOL!!!

>

> My roomate fiasco is another story and I will save that for another

> day. She was a sweet lady but I suffered right along with her and

> slept very little. I know you don't sleep well in the hospital

> anyways but I slept even less because they really were not keeping up

> on her so I had to keep calling for her during the night.

>

> was a huge help to us while I was gone. In fact she is the

> reason I ended up going to the hospital. She threatened to call the

> ambulance on me if I didn't go on my own. I was just going to lay

> down and take a nap and hope it went away. This was after 3 days of

> the stabbing pain and blurry vision and a week of migraine headaches.

> She's pretty bossy!!! She must have cleaned the house about 10 times,

> lol. She's like me when she's nervous, she cleans!!! I seem to be

> growing out of that now.

>

> I've been trying to take it easy this past week, just now getting

> back into the swing of things. Not sure how long it takes to get back

> to " normal " after a flare? I'm a little unsteady on my feet and my

> mind is more foggy than usual which is usually pretty foggy, lol!!!

> So now I'm looking at pea soup in there. I have a very stiff neck, I

> think from the fabulous sleeping accomodations, but am so glad to be

> home and feeling better.

>

> Thanks to all of you for your thoughts and prayers while I was in the

> hospital. It means so much to know that others who have been there,

> done that, and even those who haven't take the time to send a silent

> good wish. It helps more than you know. This group is such a huge

> part of my coping with this disease and I'm on my way to trying to

> get the stress in my life under control. I honestly believe that is

> what put me over, finally. I'm surprised it took as long as it did.

> I've asked and to go with each other to see my therapist

> as they need to work together and not butt heads and make me feel

> like I need to take sides. I told them I can't do it any more, that I

> feel like my family has become toxic, like poison to me. I can't make

> their decisions for them, like and his job. I have decisions

> that I need to be included on and those that I don't. I can't tell

> everyone what to do anymore. I have to be responsible for me for once

> in my life. I also have to be responsible for Zack. is going

> to be 18 in 2 months and is 43!!! See that, I'm being

> SELFISH!!! It's a start, right???

>

> Again, thanks everyone for thinking of me and I hope the rest of you

> are doing well and I've missed you all very much and will hopefully

> be able to get back into the swing of the group in the next week or

> so, well maybe more after the holidays since the kids will be off.

>

> Welcome to anyone new, I look forward to getting to know you, sorry

> that it has to be under these circumstances, but happy at the same

> time becuase these are some of the best people I know!!!

>

> Hugs to all,

> Peggy

>

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