Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Today I met a 2 1/2 yr old boy with severe plagio. His face was so asymmetrical that every time he changed facial expression, you did a double-take. He is already having jaw problems, to the point that he seemed a little thin (might just be his build, but I didn't think so) and has speech delays. He has a flat spot on the back of his head you could land a plane on. The worse part is, he already knows he looks different! I was videotaping the kids playing, and they were all having a wonderful time, but he would turn away from the camera every time I turned it on him. He stopped playing and went and stood in a corner. I nearly started crying. His mom had taken him to Seattle Children's numerous times and they blew her off. By the time she got them to admit she was right, he was 18 mos and it was too late (they only use passive Clarren there). I am just sick about this. This is the 3rd mom I have talked to recently who was told by Children's craniofacial there wasn't a problem, or the baby looked fine, or didn't need treatment. My baby got treatment because I didn't wait for the craniofacial appointment at Children's. What are all these moms to do? Seattle Children's is a respected hospital, but the plagio department bites. It's like having a luxury hotel with an outhouse. Is there anything a regular Jane can do to change this? Sigh. I'm too upset to sleep. Just thought I'd share my trauma. If anyone has a chocolate bar I could have, please stuff it in your CD drive and hit " SEND " and I'm sure I will get it. Thanks. , 20 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Hi - My heart goes out to you. I am SO sorry. I will keep you in my prayers. I hope you will be directed to the right spot, maybe there is something you could do. I would make an appointment with a Neurosurgeon just to get an oppinion. I have a Hershey's with almonds- If I could, I would give it to you! Krissy ph's mom On Aug 2, 2004, at 3:10 AM, tortibaby wrote: > Today I met a 2 1/2 yr old boy with severe plagio. His face was so > asymmetrical that every time he changed facial expression, you did a > double-take. He is already having jaw problems, to the point that he > seemed a little thin (might just be his build, but I didn't think so) > and has speech delays. He has a flat spot on the back of his head you > could land a plane on. The worse part is, he already knows he looks > different! I was videotaping the kids playing, and they were all > having a wonderful time, but he would turn away from the camera every > time I turned it on him. He stopped playing and went and stood in a > corner. I nearly started crying. > > His mom had taken him to Seattle Children's numerous times and they > blew her off. By the time she got them to admit she was right, he was > 18 mos and it was too late (they only use passive Clarren there). > > I am just sick about this. This is the 3rd mom I have talked to > recently who was told by Children's craniofacial there wasn't a > problem, or the baby looked fine, or didn't need treatment. My baby > got treatment because I didn't wait for the craniofacial appointment > at Children's. What are all these moms to do? Seattle Children's is a > respected hospital, but the plagio department bites. It's like having > a luxury hotel with an outhouse. Is there anything a regular Jane can > do to change this? > > Sigh. I'm too upset to sleep. Just thought I'd share my trauma. If > anyone has a chocolate bar I could have, please stuff it in your CD > drive and hit " SEND " and I'm sure I will get it. Thanks. > > > , 20 mos > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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