Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi there I'm sure one of the moderators will give you a more comprehensive answer, but if you click on Polls on the left hand side selection, then select Poll Help, it tells you how to do it. Then you could email us all and let us know you have started a new poll! I can't really help with the issue of walking, as my daughter is only eight months- you need more experienced mums. Lucia has certainly been a bit slow off the mark with things like rolling, but from what I understand this spread of development (some doing it early, others late) is normal, some children can walk with help at 8/9 months, others really wait til they are 18-20 months! If you type 'baby, late walking' into Google, then you will see that loads of other parents have been in the same boat and that at some point, their children have just shot off! Always good to get things checked out though if you have your worries. Hope you get that poll going! Hannah (mum to Lucia, London, UK) Plagio, passive helmet, 4/7/04 > Hi all, > > I was wondering if there was a way to poll the members of this group > to find out what ages their children began walking. I don't know how > to do it or who can, but thought I'd ask. > > My concern is that my son, Evan, 16 months, is not walking, nor does > he have any interest in it. When we try to hold his hands to get him > to practice walking, he picks up his feet and sits down. I'm > concerned that because of his plagio or maybe residual tort, his eyes > are misaligned and his horizon is tipped giving him a constant state > of vertigo. We've seen 3 doctors to check his eyes, with 3 different > opinions. One doctor said that because of his plagio, his left cheek > bone is somewhat flattened, pushing his left eye upward. I > personally don't see that his eyes look misaligned, as far as looking > to see that both eyes appear to be focusing on the same thing. > Another doctor said that what the other guy said was totally wrong, > that his eyes were fine and that we should come back for testing in 3 > months. If there's one thing I've learned though this whole > experience, it's to question everything and to voice (loudly) your > concerns. > > Anyway, I'm wondering if we set up a sort of long term poll though > groups to find out at what age our kids started walking, plagio > and non-plagio, we might be able to see if there is a trend for kids > with plagio have delayed gross motor skills, specifically walking, > compared to their non-plagio siblings. I think it would help me to > have a better idea of what to expect. I haven't read anything about > plagio and gross motor skills beyond the rolling over stage. It > might be an interesting study. > > I'd appreciate your feedback. > > Thanks, > heidi > mommy to Evan, 16 mo, plagio, tort grad, STARband 5/04, SanF,CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Heidi, A walking poll does sound pretty neat. Maybe or Christie could make one for the members in our polls section or something. I recognize your concern for Evan. Most kids walk anywhere between 11 and 14 months, but some as early as 8(my neighbors kids)and as late as 18 months. All perfectly within a normal range so the " experts " say. I got these numbers from my baby book and babycenter.com I would ask a few questions before he gets reevaluated. Does he show no interest in walking because he crawls really, really fast? I know my son crawls to most places because it's simply the quickest route to gettin anywhere. For the record, he turned ten months a week ago and this weekend started walking almost full time. Is his Starband shifting at all in a way that would impede his seeing and or balance? On another note, I would be interested in the balance issue of plagio kids. With ear misalignment it could be a possibility their balance could be thrown off delaying walking. Don't know if I read this somewhere or not....hmmmmmm. If he still shows no progress by the end of the month maybe take him to a ear/throat specialist as well? You mentioned his eyes only, but is there a chance his ears are slightly assymetical? I can't really comment on his visual issues because it sounds like the doctors disagreed there was an eye problem. Sorry, Im not more help. Hopefully, Christie can find a study published on this problem and Evan will be showing more walking interest soon. Keep us updated though. Sounds like you're on top of things already. Good luck, Crista-Grayslake, IL Mom to -10 mo old-DOCbanded 5/13 brachy > Hi all, > > I was wondering if there was a way to poll the members of this group > to find out what ages their children began walking. I don't know how > to do it or who can, but thought I'd ask. > > My concern is that my son, Evan, 16 months, is not walking, nor does > he have any interest in it. When we try to hold his hands to get him > to practice walking, he picks up his feet and sits down. I'm > concerned that because of his plagio or maybe residual tort, his eyes > are misaligned and his horizon is tipped giving him a constant state > of vertigo. We've seen 3 doctors to check his eyes, with 3 different > opinions. One doctor said that because of his plagio, his left cheek > bone is somewhat flattened, pushing his left eye upward. I > personally don't see that his eyes look misaligned, as far as looking > to see that both eyes appear to be focusing on the same thing. > Another doctor said that what the other guy said was totally wrong, > that his eyes were fine and that we should come back for testing in 3 > months. If there's one thing I've learned though this whole > experience, it's to question everything and to voice (loudly) your > concerns. > > Anyway, I'm wondering if we set up a sort of long term poll though > groups to find out at what age our kids started walking, plagio > and non-plagio, we might be able to see if there is a trend for kids > with plagio have delayed gross motor skills, specifically walking, > compared to their non-plagio siblings. I think it would help me to > have a better idea of what to expect. I haven't read anything about > plagio and gross motor skills beyond the rolling over stage. It > might be an interesting study. > > I'd appreciate your feedback. > > Thanks, > heidi > mommy to Evan, 16 mo, plagio, tort grad, STARband 5/04, SanF,CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi You do have to get a moderator to do it, sorry I'm sure one of them will step forward and help! Hannah > Hi all, > > I was wondering if there was a way to poll the members of this group > to find out what ages their children began walking. I don't know how > to do it or who can, but thought I'd ask. > > My concern is that my son, Evan, 16 months, is not walking, nor does > he have any interest in it. When we try to hold his hands to get him > to practice walking, he picks up his feet and sits down. I'm > concerned that because of his plagio or maybe residual tort, his eyes > are misaligned and his horizon is tipped giving him a constant state > of vertigo. We've seen 3 doctors to check his eyes, with 3 different > opinions. One doctor said that because of his plagio, his left cheek > bone is somewhat flattened, pushing his left eye upward. I > personally don't see that his eyes look misaligned, as far as looking > to see that both eyes appear to be focusing on the same thing. > Another doctor said that what the other guy said was totally wrong, > that his eyes were fine and that we should come back for testing in 3 > months. If there's one thing I've learned though this whole > experience, it's to question everything and to voice (loudly) your > concerns. > > Anyway, I'm wondering if we set up a sort of long term poll though > groups to find out at what age our kids started walking, plagio > and non-plagio, we might be able to see if there is a trend for kids > with plagio have delayed gross motor skills, specifically walking, > compared to their non-plagio siblings. I think it would help me to > have a better idea of what to expect. I haven't read anything about > plagio and gross motor skills beyond the rolling over stage. It > might be an interesting study. > > I'd appreciate your feedback. > > Thanks, > heidi > mommy to Evan, 16 mo, plagio, tort grad, STARband 5/04, SanF,CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 I just posted a message regarding my daughter's " stubborness " to move around. I just read your message. While my daughter is only 8 1/2 months old and not at a walking stage, I completely identifiy with your struggle to encourage your little one. Have you contacted ECI (early Childhood Intervention)? It is a program to help kids that are a little behind. They will provide information on what you can do to encourage your child, in specific ways. My daughter is part of the program. ECI trains us on what we should be doing for our daughter - little exercises to perform each day. One thing I can learned, no matter how much I want my daughter to do something right now, she will do it on her own time, at her own pace (which happens to not be the " average " . As far as doctors and multiple opinions are concerned, you must take everything into account. Decide what you believe and don't believe. Educate yourself on the issues that you are concerned about - then make a plan of action. Most of all, find a doctor that you TRUST and AGREE WITH. Holly > Hi all, > > I was wondering if there was a way to poll the members of this group > to find out what ages their children began walking. I don't know how > to do it or who can, but thought I'd ask. > > My concern is that my son, Evan, 16 months, is not walking, nor does > he have any interest in it. When we try to hold his hands to get him > to practice walking, he picks up his feet and sits down. I'm > concerned that because of his plagio or maybe residual tort, his eyes > are misaligned and his horizon is tipped giving him a constant state > of vertigo. We've seen 3 doctors to check his eyes, with 3 different > opinions. One doctor said that because of his plagio, his left cheek > bone is somewhat flattened, pushing his left eye upward. I > personally don't see that his eyes look misaligned, as far as looking > to see that both eyes appear to be focusing on the same thing. > Another doctor said that what the other guy said was totally wrong, > that his eyes were fine and that we should come back for testing in 3 > months. If there's one thing I've learned though this whole > experience, it's to question everything and to voice (loudly) your > concerns. > > Anyway, I'm wondering if we set up a sort of long term poll though > groups to find out at what age our kids started walking, plagio > and non-plagio, we might be able to see if there is a trend for kids > with plagio have delayed gross motor skills, specifically walking, > compared to their non-plagio siblings. I think it would help me to > have a better idea of what to expect. I haven't read anything about > plagio and gross motor skills beyond the rolling over stage. It > might be an interesting study. > > I'd appreciate your feedback. > > Thanks, > heidi > mommy to Evan, 16 mo, plagio, tort grad, STARband 5/04, SanF,CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi Heidi, There is an older poll already created about behavior and development - it has lots of questions, but one does ask if there is " delayed gross motor " observed in plagio babies. Here is the poll title if you'd like to check it out in the polls section: Choose each of the following that pertain to your child. The choices are mainly concerning behaviour and development. Created by ~ò? on 4/5/2000 There is one published study out that partially addresses plagio and gross motor delay. This study used the Bayley Scales of Infant Development - Second Edition (BSID-II) to rate the development in plagio infants. I think the median age of the plagio babies in the study was 8 or 9 months, but I don't know the mid and max age ranges included. Here is a link to the study and also a short explanation of what the Bayley scale is (if the link is more than one line long, you'll need to copy and paste the entire link to your address bar): Neurodevelopment in Children with Single-Suture Craniosynostosis and Plagiocephaly without Synostosis (pub. Nov. 2001) The objective of this study was to determine whether children with nonsyndromic craniosynostosis and plagiocephaly without synostosis demonstrated cognitive and psychomotor delays when compared with a standardized population sample. 0 percent of the subjects in the group with plagiocephaly without synostosis were accelerated, 67 percent were normal, 20 percent had mild delay, and 13 percent had significant delay. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=11711916 & dopt=Abstract Bayley Scales of Infant Development - Second Edition (BSID-II) Updated 1993 - As with previous edition, the BSID-II consists of three scales used to diagnose developmental delay and plan intervention strategies: Mental Scale and Motor Scale for assessment of the current level of cognitive, language, personal-social, fine and gross motor development; Behavior Rating Scale (formerly called the Infant Behavior Record) assesses behavior during testing. Changes from the previous BSID version: Extended the age range from 1 month to 42 months (previously 15 months) of age with new items applying to the expanded range; redesign of stimulus materials with color added; updated normative data; data collected on children with high-incidence clinical diagnoses (Down syndrome, prematurity, prenatal drug exposure). Also, you mentioned your vision concerns. There has been a bit of work on plagio and vision problems. Here are the two studies I know of concerning vision: Visual Field Testing in Deformational Plagiocephaly (pub. Dec 2003) Our study demonstrates a notable incidence of visual field constriction in patients with Positional Plagiocephaly (PP.) In addition, patients with PP may have delayed progression of visual field development. Our data sheds doubt on the concept that PP is a benign entity with no neurologic sequelae and requires treatment for cosmetic purposes only. http://www.aans.org/Library/Article.aspx?ArticleId=10865 Ophthalmologic Findings in Patients with Nonsyndromic Plagiocephaly (pub. July 2003) The purpose of this article was to study the prevalence of strabismus and astigmatism in children with nonsyndromic plagiocephaly. Children with deformational plagiocephaly do have an increased prevalence of astigmatism. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=12867869 & dopt=Abstract I know that tort has an impact on development of physical skills, but since Remy didn't have tort, I don't personally have any info about it. Remy walked very early, 9 months, which is younger than the options in the poll Sandy created! I have to wonder if genetics played a role (I was a very early walker), plus she has always been in the 5-10% for weight, so she didn't have much babyfat to pull up to standing. In addition, she spent a lot of time in a walker in a standing position beginning about 5 months since we utilized that device all the time in our aggressive repositioning efforts. The standing position became very familiar to her. In fact, she hated sitting so much, she really didn't master it well until about 9 months!! I am sure that the repo positions I subjected her to contributed to this odd " comfort zone " of hers. Good question, and I look forward to seeing the poll results. Christie (Mom to Repo'd Remy) > Hi all, > > I was wondering if there was a way to poll the members of this group > to find out what ages their children began walking. I don't know how > to do it or who can, but thought I'd ask. > > My concern is that my son, Evan, 16 months, is not walking, nor does > he have any interest in it. When we try to hold his hands to get him > to practice walking, he picks up his feet and sits down. I'm > concerned that because of his plagio or maybe residual tort, his eyes > are misaligned and his horizon is tipped giving him a constant state > of vertigo. We've seen 3 doctors to check his eyes, with 3 different > opinions. One doctor said that because of his plagio, his left cheek > bone is somewhat flattened, pushing his left eye upward. I > personally don't see that his eyes look misaligned, as far as looking > to see that both eyes appear to be focusing on the same thing. > Another doctor said that what the other guy said was totally wrong, > that his eyes were fine and that we should come back for testing in 3 > months. If there's one thing I've learned though this whole > experience, it's to question everything and to voice (loudly) your > concerns. > > Anyway, I'm wondering if we set up a sort of long term poll though > groups to find out at what age our kids started walking, plagio > and non-plagio, we might be able to see if there is a trend for kids > with plagio have delayed gross motor skills, specifically walking, > compared to their non-plagio siblings. I think it would help me to > have a better idea of what to expect. I haven't read anything about > plagio and gross motor skills beyond the rolling over stage. It > might be an interesting study. > > I'd appreciate your feedback. > > Thanks, > heidi > mommy to Evan, 16 mo, plagio, tort grad, STARband 5/04, SanF,CA Quote Link to comment Share on other sites More sharing options...
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