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What would would the focus of the show be? What is it that Charge would be

shown to be? I guess I am missing what in the world we would need oprah for????

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If you're interested in educating the public about CHARGE I thought it would

be interesting to try to get CHARGE onto the Oprah show, so if you're

interested please send an e-mail:

https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond & plugId=\

B2100004

Thanks,

Kristy

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Oprah's show sends out input and awareness on a lot of different issues.

Basically all any of us need to do is write her telling her about charge and how

there is not much knowledge about it and how complex of a syndrome it is and how

is it sometime miss diagnosed due to how involved it is. Tell her about your

experience with charge and how awareness could help our children out. I have

done this before and will do so again. We can use all the help we can get for

our children and someone like Oprah would be a great start to getting awareness

out and new research started since she is seen all over the world.. What do we

have to loose?? Nothing that I can think of. mom to 11 yrs Today..

lucssis@... wrote: What would would the focus of the show be? What is it

that Charge would be

shown to be? I guess I am missing what in the world we would need oprah for????

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does i8t show in aus id watch the3 charge issue if it did ellen

>

> Oprah's show sends out input and awareness on a lot of different issues.

> Basically all any of us need to do is write her telling her about charge and

> how there is not much knowledge about it and how complex of a syndrome it is

> and how is it sometime miss diagnosed due to how involved it is. Tell her

> about your experience with charge and how awareness could help our children

> out. I have done this before and will do so again. We can use all the help

> we can get for our children and someone like Oprah would be a great start to

> getting awareness out and new research started since she is seen all over

> the world.. What do we have to loose?? Nothing that I can think of. mom

> to 11 yrs Today..

>

> lucssis@... wrote: What would would the focus of the show be? What is

> it that Charge would be

> shown to be? I guess I am missing what in the world we would need oprah

> for????

>

>

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fyi, my mother in law was just a guest of the Oprah show and let them

know about CHARGE. I've had multiple friends write to the show about

CHARGE as well. Let's keep trying!!!

, mom to Zach 3.5 yrs and Carmen 10 mos (CHARGE)

> If you're interested in educating the public about CHARGE I thought

it would

> be interesting to try to get CHARGE onto the Oprah show, so if you're

> interested please send an e-mail:

> https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?

action=respond & plugId=B2100004

> Thanks,

> Kristy

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today - it's

FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

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