Felice

[Guest guest]

Felice,

For one, How long did he give you to wean off the Neurontin?? And, what dose

are you currently on right now? I hope that he at least gave you that 4 1/2

weeks to wean off the Neurontin....cause any shorter time than that is VERY

DANGEROUS!!!

As for the incision, I don't know how deep it is, being as I don't have an

SCS, but, I don't heal worth a crap anymore myself. I have a sore on my ear

where my hole is for my pierced earrings....I've had it with a scab over it

for the past month now, and it refuses to heal for anything. I've had cuts

on my legs or arms that takes like FOREVER to heal.........but, for an

incision to not even START to heal??? I'm thinking that there is something

wrong that the doctor should take care of himself.

Can't they stitch it up any? Just a few, to try and get it to start to heal

any? Something here just doesn't sound right.......

And, as for the Topamax, The weight loss is a side effect that MAY happen...

unfortunately, I'm not one of the lucky ones. But, I can say that it does

work great for the swelling, burning pain, electrical pains, muscle spasms..

...and it also helps (along with a couple of other meds) with my headaches

that I've been getting that are major killers.

BUT, Felice, PLEASE BE EXTRA CAREFUL when you come off the Neurontin. If you

go down any, and start feeling weird IN ANY WAY at all, go back up to the

last dose you were on for a few more days or so......because that means that

your body is not ready to go down any yet.

Tonia

----- Original Message -----

Hi All,

I went to my pain doc on Friday and the news wasn't great. It turns out that

incision for the attena is still not closed. So the doc is really worried

now that bacteria will get in and that I am rejecting the spinal cord

stimulator. So I am not allowed to use it and not supposed to put any

pressure. I would think that sitting would be the most pressure on my butt

however he didn't restrict activity accept to say no pressure and to keep it

covered and dry and see you in four and a half weeks.

He also wants me to wean off the Neurontin and to try Topomax. Supposed to

be easier to lose weight on it and better for controlling the Trigeminal

Neuralgia. Also will decrease the swelling I am having in my legs and feet.

However he didn't tell me how low I have to be on the Neurontin before I can

go on the Topomax. I asked the nurse to ask him and she said it was too

complicated for her to ask him that and I needed to call and speak to him

myself. But it is a Catch 22 because when you call you have to go through

the nurse and not speak directly to! Oh well!

Felice