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NEW TO THIS - DEB

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Hi Deb,

Welcome to the

group. Don’t worry about questions

we love to answer them – all kinds about any and every thing. This group has folks who were

transplanted, folks in every disease stage, caregivers (I’m one for my son Ken)

Moms, Dads, Grandparents and kids. We already know what stage you’re in – “Stage 1” - HOLY S_ _ _!

Scared stiff and hungry for any

kind of info – that’s what we are here for, your’ in good hands. Soon, you’ll be in “Stage 2” and will know

more than some of your docs and will be able to answer questions for the next

new comer. “Stage 3” is when you

can tell who is talking by what we say – meaning you’ll know all of us here in your

second family. In this stage you’ll

feel comfortable enough to ask even the most embarrassing questions. “Stage 4”

means your finally getting on with life – relaxed and knowing you can handle

whatever comes your way. Our group

motto (given to us by Tim Long) is “What Ever It Takes”. So if any doctor tries to tell you what

stage your in – tell him you already know and your looking forward to the next

stage!

Now, how about

telling us a little about you.

Where to you live? Married? Kids?

I’m going to

send you an article about PSC that is simple to read and understand – it will help

when you are trying to tell someone else.

Barb in

Texas

Son, Ken 28

UC 91 PSC 99

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