Re: Help! New and where to go??

[Guest guest]

Hi & Welcome!

Do you have health insurance? If so, give them a call and ask what

type of coverage they have for a cranial helmet for plagiocephaly.

I'm sorry to hear about your ped. discouraging a helmet! Grrrrr.

Why?! Especially if your son's head is " extremely " flat as you

described. Many of our plagio babies have been referred to a

specialist such as a ped. neurosurgeon, a craniofacial surgeon, etc.

Maybe ask your ped for a referral to get a 2nd opinion.

I also chked out our DATABASE " Helmet/band providers " and found the

below facility in Denver who provides the STARband

(http://www.orthomerica.com). I'd suggest you email , the

member who provided her email address for a reference on the clinic &

orthotist in Denver for their STARband. She's a very nice & helpful

parent, her & I " talked " a couple mos back & I know she'd love to

help anyone in her area with questions, etc..

But do chk into your insurance if you have any, or Medicaid if you

have that? Good luck!

Debbie Abby's mom

MI

Here's the Denver info:

>Colorado

Starband*

The Children's Hospital, 1056 E. 19th, Denver CO 80218

Orthotist: Greg Smits 303-837-2605 Greg Smits Direct Line

or 800-624-6553 Hospital Main #

http://www.thechildrenshospital.org/ (although I couldn't find any

plagio info), www.orthomerica.com

Parent's email who used this location for reference:

@... (, mom to Reagan, see Reagan's b & a STARband

pics) <

--- In Plagiocephaly , " " <boomgirl79@y...>

wrote:

> Hey All-

> My son is 8 months old and has an extremely flat head. His

> pediatrician continues to discourage a helmet, but I'm freaked out

as

> to what to do next! My son receives PT for slow motor development

> and just started rolling a month ago. He's been on his back along

> time. Even my son's physical therapist agrees he needs

intervention,

> but doesn't have any pull.

>

> I'm a single mom and could not afford paying for any of this!

> Where do I go from here?

>

> in Denver,CO

> (Mom to Asher, 8 months)

[Guest guest]

Hi ,

Welcome to the group! I just want to second everything Debbie has

already said. Good luck and please keep us posted.

> > Hey All-

> > My son is 8 months old and has an extremely flat head. His

> > pediatrician continues to discourage a helmet, but I'm freaked

out

> as

> > to what to do next! My son receives PT for slow motor

development

> > and just started rolling a month ago. He's been on his back

along

> > time. Even my son's physical therapist agrees he needs

> intervention,

> > but doesn't have any pull.

> >

> > I'm a single mom and could not afford paying for any of this!

> > Where do I go from here?

> >

> > in Denver,CO

> > (Mom to Asher, 8 months)

[Guest guest]

Hello

Welcome to the group. glad you found us. I totally agree with

Debbie in that you should call your health insurance and start

there. Then I would change peds if I had to in order to get an Rx.

Can you demand it from him? I hope he will come around. Please

keep us updated on Asher.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

--- In Plagiocephaly , " " <boomgirl79@y...>

wrote:

> Hey All-

> My son is 8 months old and has an extremely flat head. His

> pediatrician continues to discourage a helmet, but I'm freaked out

as

> to what to do next! My son receives PT for slow motor development

> and just started rolling a month ago. He's been on his back along

> time. Even my son's physical therapist agrees he needs

intervention,

> but doesn't have any pull.

>

> I'm a single mom and could not afford paying for any of this!

> Where do I go from here?

>

> in Denver,CO

> (Mom to Asher, 8 months)

[Guest guest]

I see that Debbie has given you some info already. I hope that you

can get somewhere.

Natasha

--- In Plagiocephaly , " " <boomgirl79@y...>

wrote:

> Hey All-

> My son is 8 months old and has an extremely flat head. His

> pediatrician continues to discourage a helmet, but I'm freaked out

as

> to what to do next! My son receives PT for slow motor development

> and just started rolling a month ago. He's been on his back along

> time. Even my son's physical therapist agrees he needs

intervention,

> but doesn't have any pull.

>

> I'm a single mom and could not afford paying for any of this!

> Where do I go from here?

>

> in Denver,CO

> (Mom to Asher, 8 months)

[Guest guest]

,

Welcome to the group. As Debbie already said in her reply to your

post, find out where your insurance stands on coverage. Also, see

if you can have a consultation at the facility she mentioned, and

find out the price and payment plan for that band. I don't know if

you would need a prescription to be seen for just a consultation, so

perhaps you could call them, or other members of the group can

provide that info. If your pediatrician won't write the

prescription, demand a referral to a specialist, or get a new

pediatrician. At 8 months old, the opportune time for aggressive

repositioning to work on a headshape that is extremely flat has

mostly passed.

Would you let us know what you find out as far as your insurance

coverage, helmet prescription, or facility charges go? The majority

of members in the group have experience with helmets and bands, and

can give you guidance and advice about any concerns you have with

any part of the process.

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " " <boomgirl79@y...>

wrote:

> Hey All-

> My son is 8 months old and has an extremely flat head. His

> pediatrician continues to discourage a helmet, but I'm freaked out

as

> to what to do next! My son receives PT for slow motor development

> and just started rolling a month ago. He's been on his back along

> time. Even my son's physical therapist agrees he needs

intervention,

> but doesn't have any pull.

>

> I'm a single mom and could not afford paying for any of this!

> Where do I go from here?

>

> in Denver,CO

> (Mom to Asher, 8 months)