Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Hi there That's really good news. My daughter also has her helmet from Dr Blecher, she picked it up four weeks ago, and it has made a real difference already. Like you, I was fed up and frustrated about the lack of response from the NHS- I even phoned and asked for repositioning help and got none, so was so glad to find out abou the helmet and start treatment. Do keep us updated on your son's progress in the first week or so Hannah, mum to Lucia, London, UK Plagio, helmet fitted 4th July 2004 > My Son had a Cranio Helmet fitted in London yesterday. We as parents > are just so relieved to be able to do something to treat our Son. It > was pure coincidence that we read about Plagiocephaly and Helmet > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > that article, we would still be listening to the NHS and waiting 2 - > 5 years for it to 'round out itself' and if it didn't he would have > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Hello and welcome to the group. How is your son doing in his cranio? My daughter Willow was also a patient of Dr. Blecher's. She was in her band from 29 Nov 03 till 17 Feb 04. Dr. Blecher does a great job with the little ones. How old is your son, and how severe is his plagio? We have several members that are in Dr. Blecher's band at the moment. They will all jump in. Sandy Willow's Mom Torticollis resolved Cranio Germany Grad > My Son had a Cranio Helmet fitted in London yesterday. We as parents > are just so relieved to be able to do something to treat our Son. It > was pure coincidence that we read about Plagiocephaly and Helmet > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > that article, we would still be listening to the NHS and waiting 2 - > 5 years for it to 'round out itself' and if it didn't he would have > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Another question. Do you have this article still? Is there anyway you could scan it and post it to our file section? Sandy > My Son had a Cranio Helmet fitted in London yesterday. We as parents > are just so relieved to be able to do something to treat our Son. It > was pure coincidence that we read about Plagiocephaly and Helmet > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > that article, we would still be listening to the NHS and waiting 2 - > 5 years for it to 'round out itself' and if it didn't he would have > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 I wondered if I met you yesterday. My daughter Isis had her Cranio helmet fitted yesterday in London by Dr Blecher. Were you the mum who lent me a jug and hot water so I could heat a bottle? Hope everything is going ok with the band. Isis doesn't seem to be having any trouble at all adjusting to wearing it, apart from being a wee bit sweaty! Anyway, hope all is well, I'll probably see you next time. Faye Mum to Caitlyn-10yrs, Harvey-5yrs, Isis-6mths(Cranio-2 Aug 04) > My Son had a Cranio Helmet fitted in London yesterday. We as parents > are just so relieved to be able to do something to treat our Son. It > was pure coincidence that we read about Plagiocephaly and Helmet > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > that article, we would still be listening to the NHS and waiting 2 - > 5 years for it to 'round out itself' and if it didn't he would have > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 It's so helpful to talk to other parents who are going through this. Finn is adjusting well so far, although has one pressure mark on his forehead, so have been instructed to remove it for a day and try again tomorrow. He has just started teething, and is suffering badly with that, but he really has surprised us. Wish it wasn't so hot though, we are not venturing out at all, I'm trying to be so careful and avoid any discomfort. Will keep you posted. How did your GP react to the helmet? I have yet to see the Health Visitors at baby clinic and am a little apprehensive as I just feel I will be treated differently. , Mum to Florence 3 and Finn 5 months > > My Son had a Cranio Helmet fitted in London yesterday. We as > parents > > are just so relieved to be able to do something to treat our Son. > It > > was pure coincidence that we read about Plagiocephaly and Helmet > > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > > that article, we would still be listening to the NHS and waiting > 2 - > > 5 years for it to 'round out itself' and if it didn't he would > have > > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Hello, Finn is adjusting well to the helmet, although a pressure mark on his forehead has meant removing it just for one day. I don't think this intensly hot weather is helping one bit! Finn's head has a 2.3 cm difference. Before we embarked on the treatment, everyone has always said " I've never noticed it " or " it's not that bad is it " or " oh yes but his hair will cover it " I just have to keep reminding myself that it doesn't matter what anyone else thinks, He is our Son and we are doing the bst we can for him. Thanks - Mum of Florence 3 and Finn 5months > > My Son had a Cranio Helmet fitted in London yesterday. We as > parents > > are just so relieved to be able to do something to treat our Son. > It > > was pure coincidence that we read about Plagiocephaly and Helmet > > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > > that article, we would still be listening to the NHS and waiting 2 - > > > 5 years for it to 'round out itself' and if it didn't he would have > > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Sorry, forgot to say, I don't have a scanner to send you a copy of the article but you can order back issues from Junior magazine (April 2004 issue) from 01858 438 874 Regards - Mum of Florence 3 and Finn 5 months > > My Son had a Cranio Helmet fitted in London yesterday. We as > parents > > are just so relieved to be able to do something to treat our Son. > It > > was pure coincidence that we read about Plagiocephaly and Helmet > > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > > that article, we would still be listening to the NHS and waiting 2 - > > > 5 years for it to 'round out itself' and if it didn't he would have > > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Sandy, It's also available online (the magazine not the article). It appears they have taken the April stuff off their webpage. http://www.juniormagazine.co.uk/index.html If you can't get a copy let me know and I'll have one sent to me in SC. finnoliver2004 <FLORENCEJOHNSON@...> wrote: Sorry, forgot to say, I don't have a scanner to send you a copy of the article but you can order back issues from Junior magazine (April 2004 issue) from 01858 438 874Regards - Mum of Florence 3 and Finn 5 months> > My Son had a Cranio Helmet fitted in London yesterday. We as > parents > > are just so relieved to be able to do something to treat our Son. > It > > was pure coincidence that we read about Plagiocephaly and Helmet > > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > > that article, we would still be listening to the NHS and waiting 2 -> > > 5 years for it to 'round out itself' and if it didn't he would have > > surgery. I just couldn't put him through that.For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Hi, I am very happy to hear that Finn is on his way to a rounder head in his new Cranio Helmet! Although we chose to reposition, I, too, feel like is was total luck that I came across this group while Remy was still young enough to have her plagio treated. Our pediatrician and specialist were no help at all. I also saw where you said your son's asymmetry was over 2 cm... I do think that is getting up there in the severe range and can't believe you were giving the same old speech about " rounding out on its own. " I think you have made an excellent treatment choice, and look forward to hearing updates on your son's progress when you can post them! Take care, Christie (Mom to Repo'd Remy) > My Son had a Cranio Helmet fitted in London yesterday. We as parents > are just so relieved to be able to do something to treat our Son. It > was pure coincidence that we read about Plagiocephaly and Helmet > Therapy in a Parenting Magazine called 'Junior'. If it wasn't for > that article, we would still be listening to the NHS and waiting 2 - > 5 years for it to 'round out itself' and if it didn't he would have > surgery. I just couldn't put him through that. Quote Link to comment Share on other sites More sharing options...
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