Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 Dear P. & Jodi, Thank you, thank you, thank you for making me feel like I'm not a lunatic and that I am certainly not alone! You are right when you said that I do not want a in a place that doesn't appreciate her. Actually, on a lighter note I was wondering if being dramatic and adorable are also characteristics of RSS! Because that's how we feel our daughter is and if those strangers at the daycare centers can't appreciate that then good riddens. The good part of the story is that when I got home (still sobbing, though), I felt somewhat stronger and thought someone must help me! I called the state and spoke with a man who is trying to help me out with some possible programs for a. In the meantime, I found a daycare center run by two retired teachers. Nothing I told them seemed to phase them... Well, we'll see. Take Care, Diane Mom to a, RSS likely due to maternal UPD7, ECMO life support, IUGR due to placental infarctions, delayed speech & language, 22#, 33in., 3.5 yrs., etc... & 6) > Diane - > > My name is and my daughter is 7 yrs old with RSS. I'm on the list > serv and only respond once in awhile. > Your note about checking out the daycare center and getting in your car and > sobbing struck a cord with me. I too have had that experience, except that > the director was very honest with me and said she did not feel comfortable > taking Jordan. I too sat in my car and cried my eyes out. It wasn't the > first time and sure won't be the last time we feel this way. Anyway, my > point is you should feel this way. Your protecting your daughter. And I am > sure you wouldn't want to send her someplace she isn't wanted. Well hang in > there. > P. > > n a message dated 8/30/00 1:13:40 PM Pacific Daylight Time, Dzanghi@a... > writes: > > << ar Debby, > Glad there's more than one new " kid " on the block. Thank you for the > words of encouragement. The other day I had a big blow...I have been > so pleased with a's improvements in language over the summer > and when I took her to check out a daycare center for her...well, you > know they are supposed to accept all children but, I could see it in > the directors eyes that he wasn't so sure that she'd fit in. He was > kind, but I just walked out of there got to the car and started > sobbing. I guess her growth almost seems secondary to the language. > We have tried to be so patient. She's in speech, has had early > intervention. I don't know. Anyhow, thanks for listening. Adam is > going into second grade? It makes me frustrated for you to hear that > the doctor looks at you with contemt and disgust. Hopefully, you > will have the strength to win! Tomorrow, we are supposed to get our > results from the GH-testing done 2wks ago. Maybe I'll have more info > for you to show your doc. > Take Care & Hugs to you for strength! > Diane (mom of a, RSS likely, 3.5, 22#, 33 " & ,6) > > BTW My husband, Vince, thanks you for his extra hug the other night! > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 Just remember that it all works out for the best in the end. I know that is hard to believe, but you will find the right program for a and she will be happy and, therefore, so will you. When we finally found the right program for Max, not only did they love him for his great personality, I made a lot of new friends, too. And, unfortunately, those tears you shed will not be the last - whether or not your child has RSS. It goes along with parenting. My babies are now 12 and 15!!!!! Jodi Re:daycare > > Dear P. & Jodi, > > Thank you, thank you, thank you for making me feel like I'm not a > lunatic and that I am certainly not alone! You are right > when you said that I do not want a in a place that doesn't > appreciate her. Actually, on a lighter note I was wondering if being > dramatic and adorable are also characteristics of RSS! Because > that's how we feel our daughter is and if those strangers at the > daycare centers can't appreciate that then good riddens. The good > part of the story is that when I got home (still sobbing, though), I > felt somewhat stronger and thought someone must help me! I called > the state and spoke with a man who is trying to help me out with some > possible programs for a. In the meantime, I found a daycare > center run by two retired teachers. Nothing I told them seemed to > phase them... Well, we'll see. > Take Care, > Diane > Mom to a, RSS likely due to maternal UPD7, ECMO life support, > IUGR due to placental infarctions, delayed speech & language, 22#, > 33in., 3.5 yrs., etc... & 6) > > > Diane - > > > > My name is and my daughter is 7 yrs old with RSS. I'm on > the list > > serv and only respond once in awhile. > > Your note about checking out the daycare center and getting in > your car and > > sobbing struck a cord with me. I too have had that experience, > except that > > the director was very honest with me and said she did not feel > comfortable > > taking Jordan. I too sat in my car and cried my eyes out. It > wasn't the > > first time and sure won't be the last time we feel this way. > Anyway, my > > point is you should feel this way. Your protecting your daughter. > And I am > > sure you wouldn't want to send her someplace she isn't wanted. > Well hang in > > there. > > P. > > > > n a message dated 8/30/00 1:13:40 PM Pacific Daylight Time, > Dzanghi@a... > > writes: > > > > << ar Debby, > > Glad there's more than one new " kid " on the block. Thank you for > the > > words of encouragement. The other day I had a big blow...I have > been > > so pleased with a's improvements in language over the > summer > > and when I took her to check out a daycare center for her...well, > you > > know they are supposed to accept all children but, I could see it > in > > the directors eyes that he wasn't so sure that she'd fit in. He > was > > kind, but I just walked out of there got to the car and started > > sobbing. I guess her growth almost seems secondary to the > language. > > We have tried to be so patient. She's in speech, has had early > > intervention. I don't know. Anyhow, thanks for listening. Adam > is > > going into second grade? It makes me frustrated for you to hear > that > > the doctor looks at you with contemt and disgust. Hopefully, you > > will have the strength to win! Tomorrow, we are supposed to get > our > > results from the GH-testing done 2wks ago. Maybe I'll have more > info > > for you to show your doc. > > Take Care & Hugs to you for strength! > > Diane (mom of a, RSS likely, 3.5, 22#, 33 " & ,6) > > > > BTW My husband, Vince, thanks you for his extra hug the other > night! > > >> > > > > > Quote Link to comment Share on other sites More sharing options...
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