RE: wheelchair, CPAP, BAHA...

[Guest guest]

Thanks-- I'll look that one up before our appt.

Michele

courtneyandheather wrote:

> has the convaid cruiser. It's wonderful!!

>

>

>

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> Canada information and membership, please visit

> http://www.chargesyndrome.ca, or email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at www.chargesyndrome.org or by calling

> 1-.

>

>

> ------------------------------------------------------------------------

> *

[Guest guest]

She can't keep up for long trips -- shopping, the zoo, etc. She tires

very easily and we end up carrying her. Thru last summer we used the

umbrella stroller but she's too tall and too old for that. A few

weekends ago we went to a civil war reenactment. She walked for the

first hour or so and then DJ ended up carrying her the rest of the day.

Michele

Jeanie wrote:

> Michele,

>

> I must have originally why Aubrie needs a stroller. This kind of

> surprised

> me knowing how mobile she is. Is it something to do with her hips?

>

> Jeanie

>

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> Canada information and membership, please visit

> http://www.chargesyndrome.ca, or email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at www.chargesyndrome.org or by calling

> 1-.

>

>

> ------------------------------------------------------------------------

> *

[Guest guest]

yeah like me youll find a lot of charge kids are like that i thinkj

>

> That is why Dylan got his. My back could not handle carrying him any

> longer, and he just cannot walk as long as we can.

>

> Kim

>

>

>

>

>

> > She can't keep up for long trips -- shopping, the zoo, etc. She tires

> > very easily and we end up carrying her. Thru last summer we used the

> > umbrella stroller but she's too tall and too old for that. A few

> > weekends ago we went to a civil war reenactment. She walked for the

> > first hour or so and then DJ ended up carrying her the rest of the day.

> >

> > Michele

> >

> > Jeanie wrote:

> >

> >> Michele,

> >>

> >> I must have originally why Aubrie needs a stroller. This kind of

> >> surprised

> >> me knowing how mobile she is. Is it something to do with her hips?

> >>

> >> Jeanie

> >>

> >>

> >>

> >> Membership of this email support groups does not constitute membership

> >> in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> >> For information about the CHARGE Syndrome

> >> Foundation or to become a member (and get the newsletter),

> >> please contact marion@... or visit

> >> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> >> Canada information and membership, please visit

> >> http://www.chargesyndrome.ca, or email info@....

> >> 7th International

> >> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> >> Information will be available at

www.chargesyndrome.org<http://www.chargesyndrome.org>or by calling

> >> 1-.

> >>

> >>

> >>

> ------------------------------------------------------------------------

> >> *

[Guest guest]

Did I tell you guys about the day Aubrie came home with a tummy ache and

then said, " You know, sometimes kids with CHARGE just get sick. " I

picture her at the conference meeting everyone and looking for excuses

to file away in her little " I don't want to do it " or " Get out of school

early " file!

Michele W

ellen howe wrote:

> yeah like me youll find a lot of charge kids are like that i thinkj

>

>

> >

> > That is why Dylan got his. My back could not handle carrying him any

> > longer, and he just cannot walk as long as we can.

> >

> > Kim

> >