Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 hi all, maybe i am in a bad mood today or maybe this " journey is finally taking it's toll on me. between a couple of " well meaning " relatives telling me how " sorry they are " and " how sad they are " to see kathryn wearing " that awful helmet thing " and people in the store staring, i just have my undies in a wad!!! how dare people! i just want to tell them all to go piss off!! no one needs to feel sorry for my daughter- i don't! it is just an experience we have to go thru. no one felt sorry for me when i broke my foot, they just asked how it happened. is there some kind of stigma because the band is on her head and not a brace on her foot. people would have no problem asking questions if it was a cast on her leg. and another thing...i am so tired of the words " developmental delays " as far as the denver list goes (it is a list doctors use to chart a childs progress) kathryn is just fine, so she doesn't walk yet...who cares! i didn't walk until i was nearly 2!! and other than a few rants now and then i am just normal!!...lol. i am sad to see that we live in a society where we judge and compare our children and ourselves by everyone else's standards. my husband and i suffered miscarraige after miscarriage for over 4 years, finally got pregnant with the help of fertilty pills, were pregnant with twins but lost one in the 9th week,and i almost died during childbirth, so no one needs to feel sorry for us or kathyrn, as far as i am concerned we are blessed beyond blessed and if kathryn has to wear this miracle of technology so be it, at least i know i am doing what ever i can to give my child a good life. whew!!! thank you for listening, i had to get that off my chest and kathryn just did not want to listen!! lol i just want to say to everyone on this site and to all your beautiful children...Thank you! for being here to listen and to answer and to show others this journey does not have to be a nightmare. you are all truly blessed angels. kelly(mom to kathryn,plagio/brachy/tort,banded 5/03,texas) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Wow ! That was a great rant! I think we all need to do that every so often just to lighten our loads. I sure hope you feel better. Some people can be mean, we have to accept their ignorance and go on with our lives by being the better person. I know how you feel (at least a little), my mother cries every time she see's my grandson Chase in his band. Her favorite line is "no one in our family has ever had to endure anything like this". "Endure" is the word that drives me crazy. He could care less! Chase has been in his band since April 10 and is doing great and getting a rounder head. He is still a happy, smiley, baby. His ears may still be a little crooked but who cares! We love him just the way he is. You worked long and hard to have that baby, you are doing the best things for her because you love her. Keep your chin up and smile. My son has a bumper sticker that says it all, "Mean People Suck!) Here is a hug for you! Billie, Chase's Grandma frustrasted hi all, maybe i am in a bad mood today or maybe this "journey is finally taking it's toll on me. between a couple of "well meaning" relatives telling me how "sorry they are" and "how sad they are" to see kathryn wearing "that awful helmet thing" and people in the store staring, i just have my undies in a wad!!! how dare people! i just want to tell them all to go piss off!! no one needs to feel sorry for my daughter- i don't! it is just an experience we have to go thru. no one felt sorry for me when i broke my foot, they just asked how it happened. is there some kind of stigma because the band is on her head and not a brace on her foot. people would have no problem asking questions if it was a cast on her leg. and another thing...i am so tired of the words "developmental delays" as far as the denver list goes (it is a list doctors use to chart a childs progress) kathryn is just fine, so she doesn't walk yet...who cares! i didn't walk until i was nearly 2!! and other than a few rants now and then i am just normal!!...lol. i am sad to see that we live in a society where we judge and compare our children and ourselves by everyone else's standards. my husband and i suffered miscarraige after miscarriage for over 4 years, finally got pregnant with the help of fertilty pills, were pregnant with twins but lost one in the 9th week,and i almost died during childbirth, so no one needs to feel sorry for us or kathyrn, as far as i am concerned we are blessed beyond blessed and if kathryn has to wear this miracle of technology so be it, at least i know i am doing what ever i can to give my child a good life.whew!!! thank you for listening, i had to get that off my chest and kathryn just did not want to listen!! loli just want to say to everyone on this site and to all your beautiful children...Thank you! for being here to listen and to answer and to show others this journey does not have to be a nightmare. you are all truly blessed angels.kelly(mom to kathryn,plagio/brachy/tort,banded 5/03,texas)For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Hi - Loved your posting! I admit I have had the same feelings to at times. I admire your honesty. My husband and I were married for 12 years until we conceived . I had a horrific labor also -(3 days), emergency c-section...ect. I admit I have a blessing in a helmet or not! I don't car what people think or say anymore. I KNOW we are doing the best thing for our child and so are you. I find more stress in the " hope it will round out " to doing something more active about it. Keep up the good work! Krissy ph's mom Starband 5/28/04 (7 mos) On Jun 9, 2004, at 12:05 PM, john and kelly wrote: > hi all, > maybe i am in a bad mood today or maybe this " journey is > finally taking it's toll on me. between a couple of " well meaning " > relatives telling me how " sorry they are " and " how sad they are " to > see kathryn wearing " that awful helmet thing " and people in the store > staring, i just have my undies in a wad!!! how dare people! i just > want to tell them all to go piss off!! no one needs to feel sorry for > my daughter- i don't! it is just an experience we have to go thru. no > one felt sorry for me when i broke my foot, they just asked how it > happened. is there some kind of stigma because the band is on her > head and not a brace on her foot. people would have no problem asking > questions if it was a cast on her leg. and another thing...i am so > tired of the words " developmental delays " as far as the denver list > goes (it is a list doctors use to chart a childs progress) kathryn is > just fine, so she doesn't walk yet...who cares! i didn't walk until i > was nearly 2!! and other than a few rants now and then i am just > normal!!...lol. i am sad to see that we live in a society where we > judge and compare our children and ourselves by everyone else's > standards. my husband and i suffered miscarraige after miscarriage > for over 4 years, finally got pregnant with the help of fertilty > pills, were pregnant with twins but lost one in the 9th week,and i > almost died during childbirth, so no one needs to feel sorry for us > or kathyrn, as far as i am concerned we are blessed beyond blessed > and if kathryn has to wear this miracle of technology so be it, at > least i know i am doing what ever i can to give my child a good life. > > whew!!! thank you for listening, i had to get that off my chest and > kathryn just did not want to listen!! lol > > i just want to say to everyone on this site and to all your beautiful > children...Thank you! for being here to listen and to answer and to > show others this journey does not have to be a nightmare. you are all > truly blessed angels. > > kelly(mom to kathryn,plagio/brachy/tort,banded 5/03,texas) > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 , I like the advice from Valeria about smiling & walking away. Sometimes I think it's hard for people to understand & so they think they need to show remorse. Just show em your pearly whites! Hope it gets better for you! Kathy mom to 14 mo DOCbanded at 11 mo frustrasted hi all, maybe i am in a bad mood today or maybe this "journey is finally taking it's toll on me. between a couple of "well meaning" relatives telling me how "sorry they are" and "how sad they are" to see kathryn wearing "that awful helmet thing" and people in the store staring, i just have my undies in a wad!!! how dare people! i just want to tell them all to go piss off!! no one needs to feel sorry for my daughter- i don't! it is just an experience we have to go thru. no one felt sorry for me when i broke my foot, they just asked how it happened. is there some kind of stigma because the band is on her head and not a brace on her foot. people would have no problem asking questions if it was a cast on her leg. and another thing...i am so tired of the words "developmental delays" as far as the denver list goes (it is a list doctors use to chart a childs progress) kathryn is just fine, so she doesn't walk yet...who cares! i didn't walk until i was nearly 2!! and other than a few rants now and then i am just normal!!...lol. i am sad to see that we live in a society where we judge and compare our children and ourselves by everyone else's standards. my husband and i suffered miscarraige after miscarriage for over 4 years, finally got pregnant with the help of fertilty pills, were pregnant with twins but lost one in the 9th week,and i almost died during childbirth, so no one needs to feel sorry for us or kathyrn, as far as i am concerned we are blessed beyond blessed and if kathryn has to wear this miracle of technology so be it, at least i know i am doing what ever i can to give my child a good life.whew!!! thank you for listening, i had to get that off my chest and kathryn just did not want to listen!! loli just want to say to everyone on this site and to all your beautiful children...Thank you! for being here to listen and to answer and to show others this journey does not have to be a nightmare. you are all truly blessed angels.kelly(mom to kathryn,plagio/brachy/tort,banded 5/03,texas)For more plagio info Quote Link to comment Share on other sites More sharing options...
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