Re: Help needed from parents of babies with multiple DOC Bands - Stepha

[Guest guest]

Hi,

Unfortunately, I don't have any numbers to report - from before during

or after the treatment. No one ever took measurements - the doctor and

cranial tech orthotist just compared with the head cast for each band

to check progress. Our insurance didn't require measurements.

Our doctor, a cranial-facial surgeon at Yale medical center,

emphasized that numbers are deceiving since the head is such a complex

form. He said what really matters is how the head is looking. I go

along with that.

I would like to emphasize that I believe it is worth moving forward

with the second band if you think that you would like to see more

correction (because that feeling will not go away). I think its even

worth doing on the chance that you might get more correction - that is

even if not much changes further because then you will feel that you

did your best and took correction as far as you could. It was very

important to me to feel that way to help squelch the pain of not

noticing and preventing the problem from developing in the first place

sooner.

Best Wishes,

> > > Hi

> > >

> > > I've posted before about multiple DOC Bands, but now I really

> > need

> > > your help. My situation...

> > >

> > > My daughter has been in her DOC band for approx 11 weeks. She

> > is now

> > > a year old. We've achieved very good correction, however, I

> > think

> > > that I would like to do a second band. My problem is this - my

> > CT

> > > person is telling me that a second band isn't necessary and that

> > my

> > > doctor probably would not write a prescription for the second.

> > I

> > > just want what is best for my daughter. My feelings are that if

> > we

> > > can get any additional correction then it's worth it. I keep

> > asking

> > > at CT and I think she is beginning to think that I'm being a

> > complete

> > > freak about all of this (because the norm is " when is my baby

> > getting

> > > out of the band " - and I'm trying to keep mine in the band)....

> > >

> > > Can any of you help me out? I would really like to hear what

> > kind of

> > > numbers your children had after their first bands (or second).

> > > Sometimes I feel like maybe I'm having unrealistic expectations

> > but

> > > then I really don't think that I am. I've heard of older babies

> > that

> > > have gotten 90% correction...

> > >

> > > Also, I'm wondering is there a point when a DOC band will not

> > correct

> > > anymore? If so, when is that?

> > >

> > > If you could please email me directly at dmpeters@w... I would

> > > really appreciate it as I don't get to this site as often as I

> > would

> > > like to anymore.

> > >

> > > Thank you!

> >

> >

> >

> >