Re: Skin Biopsy - Sapphire

[Guest guest]

,

My thoughts and prayers are with you both.

Judy ( 4 1/2)

Skin biopsy - Sapphire

> To all

> I have been so wrapped up with Sapphire being poorly I almost forgot she

> has her skin biopsy tomorrow, Monday. I feel some relief in that it

> will be another thing over but I find it difficult to muster any

> enthusiasm as the results will take about 3 months - as has

> said before a Skin Bio is not used for a dx but can help when things are

> ambiguous. In the meantime, we just soldier along.

> I know these things are sent to make us stronger people but who wants to

> be Mr Universe?

> Kindness always

>

>

>

>

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[Guest guest]

, has Sapphire been tested for celiac disease? One of the symptoms

can be on and off diarrhea. It can completely stop growth and weight gain.

Just a thought. (Grandma to Trey)

>From: stephanie.heselton@...

>Reply-To: RSS-Supportegroups

>To: " RSS-Supportegroups " <RSS-Supportegroups>

>Subject: Skin Biopsy - Sapphire

>Date: Mon, 17 Apr 2000 14:58:12 +0100

>

>Well it is over! The Dr seemed to take a small chunk of skin off

>Sapphire's thigh. I asked if he could do it from her bum in case it

>scarred but he preferred to do it from her thigh as it had less chance

>of infection and/or contamination - now all we have to do is wait 3

>months.

>Again I was left baffled by the Drs. I saw my local Dr today, he again

>stressed his diagnosis of RSS also shared by 2 of his collegues - but Dr

> Stanhope @ Great Ormond St, London who is the expert in the UK

>doesn't believe it is RSS but s, twice the blood results have come

>back negative but he still believes she has a form of 's and the

>skin biopsy, done today, should either confirm or deny 's.

>The local Dr said that Sapphire was too small to be 's, her growth

>retardation is too much for 's. She is now 10 months and 68cm.

>I asked why she did not have a large head ratio like other RSS children

>and why, when she is well, she has a good appetite (little and often but

>good) Neither of these two points he could answer.

>Sapphire had almost constant dioreha for the first 8 months as well as

>feeding difficulties - it was caused by a succession of viruss, yes

>we've recently had yet another, but in the 6 weeks she didn't have on

>she ate well and had a growth spurt - she shot through one of the

>centile lines up about 10%. This followed an increase in weight gain.

>Sapphire still isn't on the weight chart but she is a relatively 'strong

>and sturdy' girl.

>Anyone got any ideas? I'm at stalemate again until these test results

>come back.

>

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