Re: To Redlocks2003 and - Danmar Products

August 1, 2004

Hi,

With Neely's age and tort I definitely think you're making the right

decision with changing to Cranial Tech. Which facility will you be

using? I'm sure we have members who have used the same one and can

give you advice on the clinician(s). I still would love to see what

her current helmet looks like when you are able to finish up your

film, plus we of course would love to see a picture of Neely! CT

does have all the casting materials on hand and can usually get you

in for an appt fairly soon. The helmet would be fitted no longer

than 2 weeks after the casting. Many of our babies wear DOCbands

and have had great correction. You can see in our photos/before and

after/DOCband some of them. Your daughter is denfinitely not too

old either. My Hannah got her third helmet at 15 mos and still saw

correction from 15-19mos. Another good thing about CT for your

decision is that all their clinicals are PT's or OT's and are very

familiar w/tort. Please keep us posted on when you're able to get a

casting appt. Be sure to bring a lollipop for use during the

casting!

, mom to Hannah, DOCgrad 7/29

Cape Cod, Ma

--- In Plagiocephaly , " bwvinson2000 " <BVINSON2@c...>

wrote:

> The new soft helmet that you are refering to is the one that they

> gave my daughter to wear. I don't have a digital camera yet -

we're

> slack- so I can't post a pix until I have used up my roll of film

> and can scan one in. But this helmet more or less looks exactly

> like a football helmet w/o a faceguard. Also they come in sizes

> like xsmall, med, large. Neely was given the xxsmall to wear.

They

> want us to come back in 6 weeks to check it out but we decided

last

> night that we will take her back to Cranial Tech. This helmet

looks

> like it is for repositioning only and she doens't even sleep om

the

> flat spot! Once she started rolling over consistently she will

only

> sleep on her stomach so the back of her head never touches the

> mattress anymore. We tried to tell the doctor this Friday but she

> didn't seem to listen to what we said! It's very frustrating to

not

> know who is right but the helmet at Cranial Tech makes sense -

this

> one doesn't. I just was not impressed with the person that we saw

> there. Neely's PT said she will just ask if we can see a diffent

> person to work with Neely if we decided to go back. How long does

> the whole process take to get them fitted for the helmet? Do they

> keep the molding materials there so that we could possible go in

> this week to have a mold done of her head or would they have to

> order that? Neely will be 8 months tomorrow. Is this too late to

> have the problem corrected? Neely's plagio is not severe but

> apparently bad enough for a helmet. Everyone seems to be more

> concerned with her tort.

August 1, 2004

We will be using the one in Charlotte. How do I post a picture of

Neely?

> > The new soft helmet that you are refering to is the one that

they

> > gave my daughter to wear. I don't have a digital camera yet -

> we're

> > slack- so I can't post a pix until I have used up my roll of

film

> > and can scan one in. But this helmet more or less looks exactly

> > like a football helmet w/o a faceguard. Also they come in sizes

> > like xsmall, med, large. Neely was given the xxsmall to wear.

> They

> > want us to come back in 6 weeks to check it out but we decided

> last

> > night that we will take her back to Cranial Tech. This helmet

> looks

> > like it is for repositioning only and she doens't even sleep om

> the

> > flat spot! Once she started rolling over consistently she will

> only

> > sleep on her stomach so the back of her head never touches the

> > mattress anymore. We tried to tell the doctor this Friday but

she

> > didn't seem to listen to what we said! It's very frustrating to

> not

> > know who is right but the helmet at Cranial Tech makes sense -

> this

> > one doesn't. I just was not impressed with the person that we

saw

> > there. Neely's PT said she will just ask if we can see a

diffent

> > person to work with Neely if we decided to go back. How long

does

> > the whole process take to get them fitted for the helmet? Do

they

> > keep the molding materials there so that we could possible go in

> > this week to have a mold done of her head or would they have to

> > order that? Neely will be 8 months tomorrow. Is this too late to

> > have the problem corrected? Neely's plagio is not severe but

> > apparently bad enough for a helmet. Everyone seems to be more

> > concerned with her tort.

August 1, 2004

Hi!

I couldn't remember who it was, but I am so glad that you posted

with information about Neely's Danmar repo helmet. I would indeed

love to see a photo of this product.

I'm sorry you haven't seen any progress. I can understand your

concern, however, since many babies at 8 months old aren't even

sleeping on their flat spot the majority of the time; you have to

wonder if the repo helmet is accomplishing much if the baby no

longer sleeps on their back anyway! May I ask you if there were any

adjustments that were to be made to this helmet over time, as would

be with a cranial molding helmet/band? Is this helmet supposed to

actually reshape the head, or just keep her off of her flat area?

Did they give you a name for this product, or was it written on any

paperwork or instructions?

I think a repo helmet like the one you have described might be very

helpful for much younger baby being repo'd, or even an older repo

baby who has already had a lot of correction through repo, and is

stubbornly still sleeping on their flat spot at night. As the

Repositioning Mod, I'm especially interested in how this nighttime

repo helmet could help younger babies. I don't personally

understand how correction would take place in an already 8 month old

baby that no longer sleeps on their flat area anyway. I wonder what

age ranges Danmar is recommending this nighttime repo helmet be

worn? Do they take the baby's current preferred sleep position in

consideration before recommending that this repo sleep helmet would

work?

So, did you already go for a consult at Cranial Tech? Did you say

you were not impressed with the ortho you saw there? I think it's a

great idea to give it another go and try to see a different ortho if

you like. If you know that your baby is not getting any benefit

from a nighttime repo helmet, it's certainly appropriate to get an

evaluation or move forward with a cranial molding band that will

actively redirect growth. Would you let us know how that

consult/casting goes?

Thank you so much for posting the additional info and your

experience with the Danmar nighttime repo helmet for your 8 month

old. The baby's current sleep position is obviously an important

consideration when evaluating how much correction can be achieved

with this product. This will be valuable information to pass along

for other parents who are considering giving this product a try. I

am interested in being able to bring this product to the attention

of parents of much younger babies who are near a Danmar facility and

would like to try repositioning.

Take care,

Christie (Mom to Repo'd Remy)