Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Hi , I am glad you posted. We do have a number of spouses here on the board. Although I am the one with IgAN, and not the spouse, I still wanted to chime in and say that sometimes I think it is harder on my husband to watch me go through this than it is on me. I know he feels so much pressure, worries that I will soon face dialysis, and I know he feels so helpless. It is also hard on him when I don't have the energy to keep up with everything he wants to do when my fatigue is really bad. For the patient, it is just life, and those of us with IgAN just accept it as part of us, but for our loved ones, they do feel sometimes overwhelmed with the impact IgAN can have on the entire family. For me, I just really accept each day as a blessing from God, try to live each day to the fullest extent possible and remember everything I have to thank God for each and every day. It does help to keep a positive attitude. I am really sorry that you have to watch your husband deal with IgAN . I do know it is not easy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Well , Any better today? Did you call the doctor about the hives? I hope you were able to feel well enough to really enjoy the wedding this weekend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 , I must say I am with Elvira on this one. Please do call the doctor again. You should not be in this much pain after 3 (or is it 4 now) days on antibiotics. In a message dated 8/25/2003 12:25:20 PM Pacific Daylight Time, elwira.zmudzinska@... writes: > --- > Hi > > I am really very sorry that you still have blader problems... > I had urinary track infections several times in my life BUT all was > fine in 2-3 days ( the pain) after taking a medicine called FURAGINE. > It's not probably an antybiotic becouse you could buy it without any > problem at the drug store here in Poland. > I am really worried about you, it takes so long ...so please call the > doctor again ! > > Take care, > > Elvira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 No , there's nothing wrong with you.... I might get people on this site stomping on me for saying this, but I think it is more difficult sometimes if it is the husband that is sick. Many guys are wired not to talk about it - which can make things difficult. When my husband was sick (very, very serious non-kidney stuff), all of his energy went into going to work, meeting work deadlines and trying to stay off disability for as long as possible. This was all very good, but it didn't include acknowledging that he was very, very sick or was about to die in the very near future. Needless to say, his priorities and mine were not exactly aligned. Probably, a bit like you, I thought I was losing a noodle. I don't know if there is an easy solution to this one. A light touch and a bit of humor may help. Throwing up is not normal IgAN. I'd call the doctor about that one. It could be a reaction to meds or something completely different. I hope things get easier for you and your husband. What do his numbers look like? Cy worried > Hi, > I am the one with the persian gulf veteran that has IGA. I was just > checking to see if the spouses feel helpless and overwhelmed or is > something wrong with me. It just feels like the weight of the world > is on my shoulders because if I talk to my husband it just raises his > blood pressure and I dont want him to get sicker also he keeps > throwing up is this normal? He worked at CF motorfreight that shut > down in september and he is a road driver , i just dont know if he > can keep doing that I worry about him and I worry him we will have > been married 11 years in november and two kids 8 and 1 . I try to be > understanding about his feelings but at the same time I feel like the > weight of everything is on my shoulders. > > Burns > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Cy, I certainly wouldn't disagree with that about guys. I've never actually counted, but I'm guessing women outnumber men on this group at least two to one (maybe more even), even though IgAN is more common among males percentage-wise. It may not seem like that now, since I started this group, but I'm among those who completely ignored any signs of kidney disease until the symptoms started forcing me to pay more attention. I totally ignored it from 1977/78 to 1990 or so. Never even went to see a doctor for a good 10 years in the interval. I wouldn't advise doing the same to anyone else though! I suspect I had high blood pressure long before, years before it was actually discovered on a routine medical. Who knows, earlier treatment for it might have bought me many years before dialysis. , Vomitting is definitely not a feature of IgAN. It could be one of more advanced kidney failure (not sure I recall where your husband stands in that regard). Could be lots of things, including intolerance of his blood pressure pills. Best to check with his doctor on that, as Cy suggests. Pierre worried > > > > Hi, > > I am the one with the persian gulf veteran that has IGA. I was just > > checking to see if the spouses feel helpless and overwhelmed or is > > something wrong with me. It just feels like the weight of the world > > is on my shoulders because if I talk to my husband it just raises his > > blood pressure and I dont want him to get sicker also he keeps > > throwing up is this normal? He worked at CF motorfreight that shut > > down in september and he is a road driver , i just dont know if he > > can keep doing that I worry about him and I worry him we will have > > been married 11 years in november and two kids 8 and 1 . I try to be > > understanding about his feelings but at the same time I feel like the > > weight of everything is on my shoulders. > > > > Burns > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Oh Pierre - ten years without seeing a doc???? (not like I should talk, it's been since was born). Now I know why they call you stud muffin... You're just one of those guys that drives women nuts! Hope you have a good week. Cy worried > > > > > > > Hi, > > > I am the one with the persian gulf veteran that has IGA. I was just > > > checking to see if the spouses feel helpless and overwhelmed or is > > > something wrong with me. It just feels like the weight of the world > > > is on my shoulders because if I talk to my husband it just raises his > > > blood pressure and I dont want him to get sicker also he keeps > > > throwing up is this normal? He worked at CF motorfreight that shut > > > down in september and he is a road driver , i just dont know if he > > > can keep doing that I worry about him and I worry him we will have > > > been married 11 years in november and two kids 8 and 1 . I try to be > > > understanding about his feelings but at the same time I feel like the > > > weight of everything is on my shoulders. > > > > > > Burns > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 BARF......... That was really cheesy CY............LMFAO!!!!!!!!! I dont think everyone here thinks Pierre is a stud muffin...... hahahahahahahaha Oh I hurt so much today, but damn that made me laugh, thanks for the good joke CY... " Life is not measured by the number of breaths we take, but by the moments that take our breath away. " -- Re: worried Oh Pierre - ten years without seeing a doc???? (not like I should talk, it's been since was born). Now I know why they call you stud muffin... You're just one of those guys that drives women nuts! Hope you have a good week. Cy worried > > > > > > > Hi, > > > I am the one with the persian gulf veteran that has IGA. I was just > > > checking to see if the spouses feel helpless and overwhelmed or is > > > something wrong with me. It just feels like the weight of the world > > > is on my shoulders because if I talk to my husband it just raises his > > > blood pressure and I dont want him to get sicker also he keeps > > > throwing up is this normal? He worked at CF motorfreight that shut > > > down in september and he is a road driver , i just dont know if he > > > can keep doing that I worry about him and I worry him we will have > > > been married 11 years in november and two kids 8 and 1 . I try to be > > > understanding about his feelings but at the same time I feel like the > > > weight of everything is on my shoulders. > > > > > > Burns > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 actually I am not any better, but I havent broke out in any hives since last Fri, so I think I will be ok. I am still having the pain and blood though. So we'll see if that gets any better by Wed if not then I am going to my doctors office and demand that I be seen...lol But I am taking this pain pill that makes me feel really good, so that is some relief right now. Thanks for asking about me, it makes me feel good to know that people care enough to ask, so thanks.... " Life is not measured by the number of breaths we take, but by the moments that take our breath away. " -- Re: worried Well , Any better today? Did you call the doctor about the hives? I hope you were able to feel well enough to really enjoy the wedding this weekend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 --- Hi I am really very sorry that you still have blader problems... I had urinary track infections several times in my life BUT all was fine in 2-3 days ( the pain) after taking a medicine called FURAGINE. It's not probably an antybiotic becouse you could buy it without any problem at the drug store here in Poland. I am really worried about you, it takes so long ...so please call the doctor again ! Take care, Elvira In iga-nephropathy , " Leet " <jamie@j...> wrote: > actually I am not any better, but I havent broke out in any hives since last > Fri, so I think I will be ok. I am still having the pain and blood though. > So we'll see if that gets any better by Wed if not then I am going to my > doctors office and demand that I be seen...lol But I am taking this pain > pill that makes me feel really good, so that is some relief right now. > Thanks for asking about me, it makes me feel good to know that people care > enough to ask, so thanks.... > > > > " Life is not measured by the number of breaths we take, but by the moments > that take our breath away. " > -- Re: worried > > Well , > > Any better today? Did you call the doctor about the hives? > > I hope you were able to feel well enough to really enjoy the wedding this > weekend. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 , I would certainly call my Neph and let him know what is going on. You can tell him about the regular Dr. appointment so that he can then make a judgment call about what to do. I would think though that you would best be served by your neph. judging who you should be seen by. Worried Hi Everyone If this had been just a subtle change I would not have worried too much. Over the weekend, upon rising in the morning, my ankles, lower abdomen and below my eyes are puffy, I presume edema, after moving around for a while it goes down. Also my flank pain is very bad at the moment, making me feel nauseous, and every joint, and I mean every joint seems to ache. My urine is also very bloody, not the usual cola colour, but red. Is this a sign of downward trend due to impaired kidney function? I am mindful that I have bladder problems also, but this is as bad as I have felt IGAN or otherwise for some months. I am booked in to see my GP this week, but with no Neph appointment now until 28 Oct, the 16 Sept was again cancelled, I am a little worried. Input from you guys gratefully received. Best wishes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 It sounds like your kidneys may be having a flare-up. Sometimes this happens to me when I am in the process of getting sick (cold/flu/etc). I wouldn't read anything major into it BUT I would certainly call my nephrologist ASAP and let him know - he'll likely want to see you sooner. Worried Hi Everyone If this had been just a subtle change I would not have worried too much. Over the weekend, upon rising in the morning, my ankles, lower abdomen and below my eyes are puffy, I presume edema, after moving around for a while it goes down. Also my flank pain is very bad at the moment, making me feel nauseous, and every joint, and I mean every joint seems to ache. My urine is also very bloody, not the usual cola colour, but red. Is this a sign of downward trend due to impaired kidney function? I am mindful that I have bladder problems also, but this is as bad as I have felt IGAN or otherwise for some months. I am booked in to see my GP this week, but with no Neph appointment now until 28 Oct, the 16 Sept was again cancelled, I am a little worried. Input from you guys gratefully received. Best wishes To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
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