Re: Penny is so confused and lost...help

March 17, 2004

Dear Penny

your son shares a lot of similarity with mine

my son has huge gains on the SCD though I am greedy for more gains

he recently started pinching and nail biting too

my son has been on the Feingold (and a zillion other diets)

since 10/03

we have not seen hyperactivity since our imperfect SCD 1/1/04

what toothpaste is he using?

if it's colgate with coloring

it makes my baby jump off the walls

we switched to Tom of Maine's, no additive/colors

well, actually, my son is not brushing his teeth these days

due to OT issues I supposed

he is also very sensitive to exhaust/parking lots,

house paint, windex, perfumes, scents, vinegar, household cleaners,

anything stinky...can make him aggressive, hyper or spaced

out

good luck

Jzin Teng

Dimiter, age 3, ASD

imperfect SCD since 1/1/04

SCD intro diet 2/23/04...trophies!

talking sentences, calm, great eye contact, sleeps thru the night

by 8:20pm, smiley, etc

still SPACEY (sigh)

March 17, 2004

" For five days all he had was chicken, jello once and white grape

juice. During those five days Kenzie's behavior didn't change.

He is always somewhat hyper and pinches alot. He gets excited

and likes to bounce on the bed especially when he's watching

videos. So even though I think phenols are a problem, his

behavior didn't change those five days without any. "

Grape juice is high in phenols.

-----------

" He has responded before with the red ears and giddy behavior.

He now eats chicken, meat sauce with burger, tomato juice and

carrots, pineapple juice (watered down), lots of bananas and

applesauce. "

Tomatoes and apples (except golden delicious) are high in

phenols. So, unless you are making the applesauce with

golden delcious apples, he is stil getting a lot of phenols.

Maybe you could try getting a No Fenol into him before each time

he eats since his meals consist of foods that are high in

phenols. Maybe he also needs a broad spectrum enzyme that

will help break down the rest of the foods he eats. Like

H-NZyme Prime or one of the Thropps or Kirkman's enzymes.

DF might be able to give us some advice on a good broad

spectrum enzyme.

---------------

" I'm concerned because I think the probiotic was causing a

problem so I cut that out but have nothing to fight yeast. "

Was the probiotic actually causing a problem or was he going

through die off from the probiotic pushing out the bad guys?

Some activated charcoal might help with the die off, if you could

manage to get it in him.

----------------------

" Forget veggies. "

Have you tried mixing a tsp to a TBL of pureed veggies into his

tomato sauce that he eats with his burgers? You could try

zucchini, yellow squash...

What about pureeing some veggies and adding 1 tsp-1 TBL to

each of his hamburger patties before you cook them?

It might not be a LOT of veggies, but over the course of a day, you

might be able to get 1/4 of a cup into him and it would at least be

a start.

Jody

mom to -5 and -7

SCD 14 months

March 17, 2004

Wow, it's hard to imagine all those things effecting a child and what you would

possibly do about it. Kenzie uses the tiniest bit of Colgate kids toothpaste.

Thanks

Penny

Re: Penny is so confused and lost...help

Dear Penny

your son shares a lot of similarity with mine

my son has huge gains on the SCD though I am greedy for more gains

he recently started pinching and nail biting too

my son has been on the Feingold (and a zillion other diets)

since 10/03

we have not seen hyperactivity since our imperfect SCD 1/1/04

what toothpaste is he using?

if it's colgate with coloring

it makes my baby jump off the walls

we switched to Tom of Maine's, no additive/colors

well, actually, my son is not brushing his teeth these days

due to OT issues I supposed

he is also very sensitive to exhaust/parking lots,

house paint, windex, perfumes, scents, vinegar, household cleaners,

anything stinky...can make him aggressive, hyper or spaced

out

good luck

Jzin Teng

Dimiter, age 3, ASD

imperfect SCD since 1/1/04

SCD intro diet 2/23/04...trophies!

talking sentences, calm, great eye contact, sleeps thru the night

by 8:20pm, smiley, etc

still SPACEY (sigh)

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

March 17, 2004

Penny, Has he been tested for clostridia? Has he ever taken Flagyl? That

helps tremendously for kids with bacteria problems. My daughter has had

that issue for years. We are getting ready to do 2 weeks on Flagyl and I am

hoping along with the diet it will really kick in on the bacteria. Just a

thought. I feel for you..........I have dealt with a lot of your same

issues for years.

Kathy

Abby's mom

SCD since 2-21-04

Penny is so confused and lost...help

> My head is spinning. All this talk of phenols and salicylates. I'm sure

Kenzie has a problem with them. He does with everything. On 2/22 I went

back to the intro after being SCD five months. For five days all he had was

chicken, jello once and white grape juice. During those five days Kenzie's

behavior didn't change. He is always somewhat hyper and pinches alot. He

gets excited and likes to bounce on the bed especially when he's watching

videos. So even though I think phenols are a problem, his behavior didn't

change those five days without any. He has responded before with the red

ears and giddy behavior. He now eats chicken, meat sauce with burger,

tomato juice and carrots, pineapple juice (watered down), lots of bananas

and applesauce. I tried to give him No-Fenol before the bananas but not

always. The thing I'm getting at is that after almost six months, nothing

is really different. His stools are different. They are more formed and

much less of them so I'm assuming that absorption is taking place. I have

problems with vitamins. It seems many things cause a problem so I started

over and slowly adding back in. I'm concerned because I think the probiotic

was causing a problem so I cut that out but have nothing to fight yeast.

>

> Kenzie may be a little less " in the fog " but other than that nothing

dramatic. I read about people seeing big reactions...what are they? I mean

am I missing something? Of course I read the success stories and as always

I'm envious because I'm not one of them. Maybe I'm missing some magic

supplement. Maybe we just need a lot longer. I don't know when it's safe

to add raw fruits. He just hates fruits cooked for some reason. I even

tried cooked pear the other day and froze it on a popsicle stick...no go.

Forget veggies. It's a huge success I've gotten any carrots in him. Along

the veggie line, can someone suggest a really sweet veggie juice I could

make?

>

> I guess I'm just discouraged that I'm not seeing the recovery. Maybe

Kenzie is just too severe. We've done the chelation route, FGF, ABA, CST

and homeopathy. I was just hoping this would be the answer.

>

> Sorry for the rambling. Would love some insight.

>

> Thanks

> Penny

> Kenzie ASD 7.y.o. on SCD for six months

>

March 17, 2004

Penny

I know where you are at! Sam reacted to a tiny bit of acorn squash;

he's just coming off it now - 2 weeks later!

It is really frustrating. I agree with Jody, try the No Phenol before

those high phenol foods. Since he refuses so many foods it would be

really difficult to cut out more stuff. Check out this salicylate

list....http://users.bigpond.net.au/allergydietitian/fi/salicylates-list.html

It's the easiest to understand for me so far.

Since he is self-limiting so many foods, I would urge you to eliminate

as many smelly, artificialy colored and flavored non food items in the

house as you can. Sam uses Tom's of Maine fennel toothpaste. It's

not SCD legal, but Elaine says as long as you don't swallow it it's

ok. It tastes like liquorice, no artificials or preservatives. We

also use Tom's of Maine honeysuckle baby shampoo and Dove soap without

frangrance. Watch out for " unsented " items, they still sometimes list

" frangrance " in the ingredients.

Could he have seasonal allergies? Sam's behavior goes all out of

whack when his are acting up. He can swallow the small Claritin now.

Probably no SCD legal, but it's better than benadryl or something

else like it. It could be other allergies, like mold or dust. I know

that it is alot to think about! But if you don't see any improvement

in his diet, it could be environmental and no amount of diet change

will help that.

Take it slow; don't try to do everything at once. I'll be thinking

about you all!

Chrystee

Sam, 4.5, behavior/sensory issues, salicylate sensitive

SCD 6 weeks

> Wow, it's hard to imagine all those things effecting a child and

what you would possibly do about it. Kenzie uses the tiniest bit of

Colgate kids toothpaste.

>

> Thanks

> Penny

>

March 17, 2004

Jody:

Thanks for your help. I switched from grape juice to pineapple for that reason.

I am making the applesauce with golden delicious. I try to give him Kirkman's

Enzyme Complete when he eats. He doesn't eat hamburgers (would love them if he

could have a bun) but he eats burger in tomato sauce like a spaghetti sauce.

Yes, I could try hiding more veggies in that.

Thanks again,

Penny

Re: Penny is so confused and lost...help

" For five days all he had was chicken, jello once and white grape

juice. During those five days Kenzie's behavior didn't change.

He is always somewhat hyper and pinches alot. He gets excited

and likes to bounce on the bed especially when he's watching

videos. So even though I think phenols are a problem, his

behavior didn't change those five days without any. "

Grape juice is high in phenols.

-----------

" He has responded before with the red ears and giddy behavior.

He now eats chicken, meat sauce with burger, tomato juice and

carrots, pineapple juice (watered down), lots of bananas and

applesauce. "

Tomatoes and apples (except golden delicious) are high in

phenols. So, unless you are making the applesauce with

golden delcious apples, he is stil getting a lot of phenols.

Maybe you could try getting a No Fenol into him before each time

he eats since his meals consist of foods that are high in

phenols. Maybe he also needs a broad spectrum enzyme that

will help break down the rest of the foods he eats. Like

H-NZyme Prime or one of the Thropps or Kirkman's enzymes.

DF might be able to give us some advice on a good broad

spectrum enzyme.

---------------

" I'm concerned because I think the probiotic was causing a

problem so I cut that out but have nothing to fight yeast. "

Was the probiotic actually causing a problem or was he going

through die off from the probiotic pushing out the bad guys?

Some activated charcoal might help with the die off, if you could

manage to get it in him.

----------------------

" Forget veggies. "

Have you tried mixing a tsp to a TBL of pureed veggies into his

tomato sauce that he eats with his burgers? You could try

zucchini, yellow squash...

What about pureeing some veggies and adding 1 tsp-1 TBL to

each of his hamburger patties before you cook them?

It might not be a LOT of veggies, but over the course of a day, you

might be able to get 1/4 of a cup into him and it would at least be

a start.

Jody

mom to -5 and -7

SCD 14 months

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

March 17, 2004

He recently had candida and was treated for that. He hasn't been tested for

anything in quite a while. I probably should test for some yeast again. I'm

hoping to get a medicaid card in July. My insurance is only for major medical

so it doesn't pay for anything. I always wonder about yeast.