Re: Bad News

[Guest guest]

Amy, if anyone can get together for a group-

wide "pull" for you and your family, it is the

folks in this group.

Love to each of you from me,

and highest hopes en route.

Keep on posting to us, please.

n, who is glad that you chose to tell

us all this--this, too, is part of your life. . .

Bad News

Hi all,

I have to tell people I know would listen and understand. I got some really bad news today from my neuro who happens to be my dad's doctor too. My dad has been having these problems for a while with balance and muscles twitching. So he was referred to my neuro by his general doctor and she's sent him for an MRI and other tests. Well, I had an appointment with her today and I knew if I needled her enough she would tell me what was wrong with my dad. I've had this doctor for 4 years and we are very open with each other so don't take this as she's speaking out of turn. My dad and my family do not feel angry at her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just found out her sister is dying now has to deal with this too. It's just so awful and menacing. My MS became rvery small when she told

me this. I feel so bad. I'm sorry to burden everyone but we sure could use some prayers. We need all the good thoughts we can get.

Amy

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[Guest guest]

Oh Amy I am so sorry to hear this. Your MS is important so make sure you still take care of you.Hugs,ShirleyRubyFireDragon76@... wrote: Hi all, I have to tell people I know would listen and understand. I got some really bad news today from my neuro who happens to be my dad's doctor too. My dad has been having these problems for a while with balance and muscles twitching. So

he was referred to my neuro by his general doctor and she's sent him for an MRI and other tests. Well, I had an appointment with her today and I knew if I needled her enough she would tell me what was wrong with my dad. I've had this doctor for 4 years and we are very open with each other so don't take this as she's speaking out of turn. My dad and my family do not feel angry at her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just found out her sister is dying now has to deal with this too. It's just so awful and menacing. My MS became rvery small when she told me this. I feel so bad. I'm sorry to burden everyone but we sure could use some prayers. We need all the good thoughts we can get. Amy

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[Guest guest]



that is why you have us - we understand and at one time or another - we all vent - we are there even if we do not say anything

Bad News

Hi all,

I have to tell people I know would listen and understand. I got some really bad news today from my neuro who happens to be my dad's doctor too. My dad has been having these problems for a while with balance and muscles twitching. So he was referred to my neuro by his general doctor and she's sent him for an MRI and other tests. Well, I had an appointment with her today and I knew if I needled her enough she would tell me what was wrong with my dad. I've had this doctor for 4 years and we are very open with each other so don't take this as she's speaking out of turn. My dad and my family do not feel angry at her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just found out her sister is dying now has to deal with this too. It's just so awful and menacing. My MS became rvery small when she told me this. I feel so bad. I'm sorry to burden everyone but we sure could use some prayers. We need all the good thoughts we can get.

Amy

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[Guest guest]

Amy I am so sorry to hear about your Dad. He will be in my prayers as well as your Mom and Aunt.

Hugs

nne

Hi all,

I have to tell people I know would listen and understand. I got some really bad news today from my neuro who happens to be my dad's doctor too. My dad has been having these problems for a while with balance and muscles twitching. So he was referred to my neuro by his general doctor and she's sent him for an MRI and other tests. Well, I had an appointment with her today and I knew if I needled her enough she would tell me what was wrong with my dad. I've had this doctor for 4 years and we are very open with each other so don't take this as she's speaking out of turn. My dad and my family do not feel angry at her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just found out her sister is dying now has to deal with this too. It's just so awful and menacing. My MS became rvery small when she told me this. I feel so bad. I'm sorry to burden everyone but we sure could use some prayers. We need all the good thoughts we can get.

Amy

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[Guest guest]

Amy,

I am so sorry to hear this. My heart goes out to you and your family. I am praying for you, your father and mother.

Love and blessings,

Val

The residual attributes that we pass down to our children may not be in our genes... but in our souls.

Subject: Bad NewsTo: MSersLife Date: Friday, July 18, 2008, 5:39 AM

Hi all,

I have to tell people I know would listen and understand. I got some really bad news today from my neuro who happens to be my dad's doctor too. My dad has been having these problems for a while with balance and muscles twitching. So he was referred to my neuro by his general doctor and she's sent him for an MRI and other tests. Well, I had an appointment with her today and I knew if I needled her enough she would tell me what was wrong with my dad. I've had this doctor for 4 years and we are very open with each other so don't take this as she's speaking out of turn. My dad and my family do not feel angry at her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just found out her sister is dying now has to deal with this too. It's just so awful and menacing. My MS became rvery small when she told

me this. I feel so bad. I'm sorry to burden everyone but we sure could use some prayers. We need all the good thoughts we can get.

Amy

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[Guest guest]

Dear Amy:I am SO sorry to hear this news. How old is your father? Thankfully the doctor told you! I'm sure you have researched ALS already but I just did a little research of my own to educate ME. I saw this at:http://www.medicinenet.com/amyotrophic_lateral_sclerosis/article.htmWhile there is no cure for ALS or a proven therapy that will prevent or reverse the course of the disorder, the U.S. Food and Drug Administration (FDA) has approved riluzole (RILUTEK), the first drug that has been shown to prolong the survival of ALS patients. Patients may also receive supportive treatments that address the symptoms of the disease.

For further information, please visit the following site: Amyotrophic Lateral Sclerosis Association

(http://www.alsa.org/)

ALSA National Office

27001 Agoura Road, Suite 150

Calabasas Hills, CA 91301 I will most certainly add your father and your family to my prayers. What else can I do for you, my friend?loveSharonhttp://health.groups.yahoo.com/group/MSersHEALTH/This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. Subject: Bad NewsTo: MSersLife Date: Thursday, July 17, 2008, 10:39 PM

Hi all,

I have to tell people I know would listen and understand. I got some really bad news today from my neuro who happens to be my dad's doctor too. My dad has been having these problems for a while with balance and muscles twitching. So he was referred to my neuro by his general doctor and she's sent him for an MRI and other tests. Well, I had an appointment with her today and I knew if I needled her enough she would tell me what was wrong with my dad. I've had this doctor for 4 years and we are very open with each other so don't take this as she's speaking out of turn. My dad and my family do not feel angry at her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just found out her sister is dying now has to deal with this too. It's just so awful and menacing. My MS became rvery small when she told me this. I feel so bad. I'm sorry to burden everyone but we sure could use some prayers. We need all the good thoughts we can get.

Amy

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[Guest guest]

Prayers are on the way!

[Guest guest]

I am so sorry to hear the bad news! I wish there were words that could change

it, but there

really isn't is it. Just know that this group will allways be there for you when

you need to

talk.

Can I recommend a book? If not, just ignore the following... A really touching

book written

by a woman with ALS during her last years is " Rowing without oars: A memoir of

living and

dying " by Ulla-Carin Lindquist. It's about her thoughts and feelings during this

process,

and the ways she find to cope. The title (the book is originally in Swedish, but

translated to

English), is an allusion to the Swedish folksong " Vem kan segla förutan vind "

(who can sail

without wind), the entire lyrics (in English translation) is: " Who can sail

without winds?

Who can row without oars? Who can say goodbye to their love, without shedding

tears? I

can sail without wind. I can row without oars. But I can't say goodbye to my

love without

shedding tears "

Amazon has the book in paperback, here:

http://www.amazon.com/Rowing-Without-Oars-Memoir-

Living/dp/0143038672/ref=sr_1_5?ie=UTF8 & s=books & qid=1216449218 & sr=8-5

But I am guessing you could get it through your library as well.

love

/Reb

PS. If you want to listen to the song, it's on youtube:

>

> Hi all,

> I have to tell people I know would listen and understand. I got some really

> bad news today from my neuro who happens to be my dad's doctor too. My dad

> has been having these problems for a while with balance and muscles

twitching.

> So he was referred to my neuro by his general doctor and she's sent him for

> an MRI and other tests. Well, I had an appointment with her today and I knew

> if I needled her enough she would tell me what was wrong with my dad. I've

had

> this doctor for 4 years and we are very open with each other so don't take

> this as she's speaking out of turn. My dad and my family do not feel angry at

> her for what she told me today. But my dad has Amyotrophic Lateral Sclerosis

> aka Lou Gehrig's Disease. She gives him 5 to 6 years. My poor mom, who just

> found out her sister is dying now has to deal with this too. It's just so

> awful and menacing. My MS became rvery small when she told me this. I feel so

> bad. I'm sorry to burden everyone but we sure could use some prayers. We need

> all the good thoughts we can get.

> Amy

>

>

>

>

>

>

> **************Get fantasy football with free live scoring. Sign up for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

[Guest guest]

Amy,

So sorry about your father. He will be in my prayers, along with you and your

family.

Connie B

From: MSersLife

[mailto:MSersLife ] On Behalf

Of RubyFireDragon76@...

Sent: Friday, July 18, 2008 12:40

AM

To: MSersLife

Subject: Bad News

Hi all,

I have to tell people I

know would listen and understand. I got some really bad news today from my

neuro who happens to be my dad's doctor too. My dad has been having these

problems for a while with balance and muscles twitching. So he was

referred to my neuro by his general doctor and she's sent him for an MRI

and other tests. Well, I had an appointment with her today and I knew if

I needled her enough she would tell me what was wrong with my dad. I've

had this doctor for 4 years and we are very open with each other so don't take

this as she's speaking out of turn. My dad and my family do not

feel angry at her for what she told me today. But my dad has Amyotrophic

Lateral Sclerosis aka Lou Gehrig's Disease. She gives him 5 to 6 years. My

poor mom, who just found out her sister is dying now has to deal with this too.

It's just so awful and menacing. My MS became rvery small when she told me

this. I feel so bad. I'm sorry to burden everyone but we sure could use some

prayers. We need all the good thoughts we can get.

Amy

Get fantasy football with free live

scoring. Sign up

for FanHouse Fantasy Football today.