Re: Never give up

[Guest guest]

,

I just read your post and my heart goes out to you. Just 9 months

ago I was right where you are now and I remember it like it was

yesterday. I had been holding out hope for you to have more time,

but I guess it just wasn't it the cards. I know how badly you must

feel. Up until the second the Dr. told me it was time to start

dialyis I was holding out thinking it would just get better and I

wouldn't have to go through all of this stuff, but that didn't

happen either. Your subject of Hope and Never Giving Up is

absolutely wonderful and that's what you have to do. Look at me, 9

months later, new kidney (didn't think I was getting one at first

either), and all is well. So just keep up that hope, and never give

up, the attitude helps a whole lot. I hope that PD works out well

for you and you don't have to do hemo from the neck too long, I know

that was the worst part of the whole thing for me, so just think you

are almost through the worst part, it's hopefully all downhill from

here.

[Guest guest]

Having a positive attitude always helps. It doesn't necessarily prevent

having problems, but it sure helps to overcome them.

Pierre

ODP: Never give up

Dear ,

Tahnk you for such a beautiful letter.... I will pray for the prompt kindney

transplant for you.

God bless,

Elvira

> ----------

> Od: [sMTP:cason86@...]

> Odpowiedz do: iga-nephropathy

> Wys³ano: 4 sierpnia 2003 23:30

> Do: iga-nephropathy

> Temat: Never give up

>

> Hi all-

> Well, it's been a rough two weeks for me. I was put back into the

> hospital because I was feeling rapidly worse, and my creatinine shot

> up out of nowhere to 6.2 within 2 days. I had a cafeter put in my

> chest, and I was started on emergency hemodialysis. I wasn't allowed

> to leave the hospital until I had a center picked out, and when that

> was all said and done I finally got to leave after being in there for

> 5 days.

> The Cytoxan was stopped, because after 5 treatments it just was not

> working. As you know, the route we are going now is transplant. I

> had an appointment with my doctor recently and he said at me being so

> young my best bet was CAPD, because of the fact that before a

> transplant I need to put some weight on. That cafeter will be put in

> on August 19th, and my overnight evaluation is early september.

>

> As far as donors, I am an A positive and I need either an A or O. My

> Mom, Grandma, and Aunt all came back B positive. Luckily though, my

> Grandpa and boyfriend both came back O positive, and my other Aunt in

> an A positive as well. I've gotten several offers from my church, so

> I believe that eventually a kidney will be found.

>

> I didn't take this as well as I usually take things. For awhile

> there I was basically crying constantly and giving up hope. An old

> woman at my hemodialysis center changed it all around for me. As I

> was walking out, she looked at me with her sweet face and said " Never

> give up suga' " . Boy did that change my attitude right back to the

> positive that I am used to being. I believe that is something

> we all need to hear sometimes. Igan is obviously not an easy thing

> to have, but if you keep your head up and keep the faith you are

> going to be just fine. It's amazing how much control we have over

> our emotions as human beings. And how much the attitude of others

> can affect us. Just that one little old lady significantly changed

> my way of thinking. Thank God for her.

>

> I hope you are all doing okay. And remember, never give up the

> hope. A positive and strong attitude is the best medicine. You all

> of course continue to be in my thoughts and prayers. Take care of

> yourself

> God bless,

>

>

> Hope: Sometimes life seems to fall apart a little at a time, and we

> want to fold up our dreams and put them away. Then from somewhere

> inside there comes a song of courage and we know we can never give

> up. Hope is that song we sing to ourselves. Although it may be

> difficult to hear, it is always there for us, deep within our hearts.

>

>

>

[Guest guest]

and ,

Your e-mails have been very moving and

it goes without saying that all best wishes

and a 'spot of luck' are sent to you both.

Positive thinking isn't always easy in adversity

but it does work, two members of my family

have overcome life threatening illnesses by

fighting back mentally. If you do your bit and the

Docs do theirs it can be a recipe for success.

I saw on a documentary that just the physical

act of smiling, even if its a false smile, releases positive

things into the blood stream , which helps boost the

immune system. Force yourself to watch a funny video

and after laughing out loud, mentally, you do feel brighter.

Sounds trivial, but I find it works even if I start out not

wanting to watch it.

I wish you both well.

Sally UK

[Guest guest]

Hi Sally, and ,

It is definitely a small world out there. This morning when reading the

paper " Dear Abby Section " I cut out a little phrase and actually taped it to

my computer. (Not something that I would normally do, I don't like debris

hanging on my computer or refrigerator!) It was advise given by a Doctor to

her patient, smart lady I think, it read and I quote

" Live one day at a time. Live each day to the fullest. Laugh heartily,

love deeply, pray daily...and let the rest roll off " . (end quote) I loved

it. I think that it is something that I can and should strive to live

by...Just had to share it since it fit right into your conversation here.

Connie

Co-Moderator

RE: Never give up

and ,

Your e-mails have been very moving and

it goes without saying that all best wishes

and a 'spot of luck' are sent to you both.

Positive thinking isn't always easy in adversity

but it does work, two members of my family

have overcome life threatening illnesses by

fighting back mentally. If you do your bit and the

Docs do theirs it can be a recipe for success.

I saw on a documentary that just the physical

act of smiling, even if its a false smile, releases positive

things into the blood stream , which helps boost the

immune system. Force yourself to watch a funny video

and after laughing out loud, mentally, you do feel brighter.

Sounds trivial, but I find it works even if I start out not

wanting to watch it.

I wish you both well.

Sally UK

[Guest guest]

That is great advice!!!

RE: Never give up

and ,

Your e-mails have been very moving and

it goes without saying that all best wishes

and a 'spot of luck' are sent to you both.

Positive thinking isn't always easy in adversity

but it does work, two members of my family

have overcome life threatening illnesses by

fighting back mentally. If you do your bit and the

Docs do theirs it can be a recipe for success.

I saw on a documentary that just the physical

act of smiling, even if its a false smile, releases positive

things into the blood stream , which helps boost the

immune system. Force yourself to watch a funny video

and after laughing out loud, mentally, you do feel brighter.

Sounds trivial, but I find it works even if I start out not

wanting to watch it.

I wish you both well.

Sally UK

[Guest guest]

Hi and all,

Firstly, I have been away for a week and am catching up on emails, so

apologies for delays in replies.

I thankyou for your email, it is important for us to lift each other up

and in doing this we are lifting ourselves up. I too am going through a

multitude of horrible things and this site supports me directly and

indirectly so thankyou to everyone, even if we don't all talk directly

to each other, we are often helping indirectly and that's fine.

My mum just sent me a card with a picture of a lighthouse on it, it

read;

Some of life's storms are hard to understand and it's easy to lose our

way, but if we look into our hearts, love's beacon will always guide us

home again.

I hope this lift's your spirits in some way as it did mine. All we need

is one light in any storm so that we can successfully find our way home,

and that light is within us all, we just need to find it sometimes. I am

sure we all have something that can get us through, I don't mind reading

your's and hope you don't mind reading mine.

The power of positive thinking has resulted in miracles, so let's try

this more often.

Love Leonie

(Sydney, Australia)

Never give up

Hi all-

Well, it's been a rough two weeks for me. I was put back into the

hospital because I was feeling rapidly worse, and my creatinine shot

up out of nowhere to 6.2 within 2 days. I had a cafeter put in my

chest, and I was started on emergency hemodialysis. I wasn't allowed

to leave the hospital until I had a center picked out, and when that

was all said and done I finally got to leave after being in there for

5 days.

The Cytoxan was stopped, because after 5 treatments it just was not

working. As you know, the route we are going now is transplant. I

had an appointment with my doctor recently and he said at me being so

young my best bet was CAPD, because of the fact that before a

transplant I need to put some weight on. That cafeter will be put in

on August 19th, and my overnight evaluation is early september.

As far as donors, I am an A positive and I need either an A or O. My

Mom, Grandma, and Aunt all came back B positive. Luckily though, my

Grandpa and boyfriend both came back O positive, and my other Aunt in

an A positive as well. I've gotten several offers from my church, so

I believe that eventually a kidney will be found.

I didn't take this as well as I usually take things. For awhile

there I was basically crying constantly and giving up hope. An old

woman at my hemodialysis center changed it all around for me. As I

was walking out, she looked at me with her sweet face and said " Never

give up suga' " . Boy did that change my attitude right back to the

positive that I am used to being. I believe that is something

we all need to hear sometimes. Igan is obviously not an easy thing

to have, but if you keep your head up and keep the faith you are

going to be just fine. It's amazing how much control we have over

our emotions as human beings. And how much the attitude of others

can affect us. Just that one little old lady significantly changed

my way of thinking. Thank God for her.

I hope you are all doing okay. And remember, never give up the

hope. A positive and strong attitude is the best medicine. You all

of course continue to be in my thoughts and prayers. Take care of

yourself

God bless,

Hope: Sometimes life seems to fall apart a little at a time, and we

want to fold up our dreams and put them away. Then from somewhere

inside there comes a song of courage and we know we can never give

up. Hope is that song we sing to ourselves. Although it may be

difficult to hear, it is always there for us, deep within our hearts.