Re: Is it a virus or a gluten mistake?

[Guest guest]

Well, I would definitely review the diet but there are a lot of stomach bugs going around so it could definitely be that.

B

From: Marvin and Bjorge Sent: Monday, January 10, 2005 1:52 AMTo: SillyYaks Subject: Is it a virus or a gluten mistake?

Hi Everyone,

My three year old has been doing so well lately and as far as I can see she has not had any gluten I can find but her tummy is all bloated, she has loose stools, and is complaining of her tummy hurting. Could this just be a virus or should I go back through her diet with a fine tooth comb? I have checked all the areas that I can think of and I do not carry flour in the house for baking so I know she is not getting cross contamination from that. We do have breads and pastas that are gluten but I am VERY careful with that since she has done so well.

Any suggestions? I have double checked the items that I know are a potential for problems but have really cut down on those items.

Thanks,

[Guest guest]

> Hi Everyone,

>

> My three year old has been doing so well lately and as far as I can

see she

> has not had any gluten I can find but her tummy is all bloated, she

has

> loose stools, and is complaining of her tummy hurting.

I think the recurrent inflamation is common enough in CD to suggest

it is probably a secondary allergy or 'oil' indigestion or both.

It takes time for the GI to repair the damage.

Also, even the best folks here have been fooled. Its is extremely

difficult to decipher the ingredients in many foods. Soups and other

things have have flour as an ingredient, many things do not have

labels on them, such as fortune cookies and candy.

[Guest guest]

I just checked on a couple of new items and have come up with nothing so

I finally have a call into the doctor to see if he can suggest anything. I talked to the dietician and she

recommended I call the doctor. We

are double checking everything now and just watching what she is eating. I hope we can find something soon.

Thanks,

[Guest guest]

Does your child go to a preschool or anything? My son started

preschool at 3 and he got contaminated at first. We had to totally

educate the staff and we made up an info packet to help them better

understand CD.

Have you checked toothpastes, soaps, shampoo, lotion, etc? It's

surprising how often they put wheat in shampoos, conditioners and

such. How about pans, strainers, etc? There can be cross

contamination with those things. Good luck and I hope you find the

culprit.

Amy

> Hi Everyone,

>

> My three year old has been doing so well lately and as far as I

can see she

> has not had any gluten I can find but her tummy is all bloated,

she has

> loose stools, and is complaining of her tummy hurting. Could this

just be a

> virus or should I go back through her diet with a fine tooth

comb? I have

> checked all the areas that I can think of and I do not carry flour

in the

> house for baking so I know she is not getting cross contamination

from that.

> We do have breads and pastas that are gluten but I am VERY careful

with that

> since she has done so well.

>

> Any suggestions? I have double checked the items that I know are a

> potential for problems but have really cut down on those items.

>

> Thanks,

>

[Guest guest]

My rule of thumb is to see if anyone else in the house is getting sick. Only the

one, then I

look into what has been eaten. But I figure 2 or more is much less likely. It

helps keep me

from going off the deep end and ripping my hair out.

Cheryl in Tampa

[Guest guest]

Apple Juice (and many other juices) can cause some diarrhea type

issues with little ones, especially if it is straight juice and not

diluted. You may want to try avoiding juice too.

Believe it or not, our pediatrician put our daughter on a pedialyte

only liquid diet for a brief period b/c all beverages (aside from

water) were awful on her system. That was when she was first

diagnosed. Now she can tolerate juices, milk, etc.

> Philip,

>

> Thank you for your response. I have started double checking

everything I

> feed her and have cut her back to the basics again just to make

sure. She

> had some GF macaroni and cheese today for lunch and apple juice to

see how

> she handled that. It sounded good to her and so maybe now she is

going to

> start doing better.

>

> I just wish I could find a simple fix but I am finding Celiac

Disease is

> anything but simple. But the main thing is that it is something

we can do

> and she is normally doing much better.

[Guest guest]

,

I cannot imagine keeping a child safe in a non-GF house! I know

there are people who do, but I have a hard time with just myself and

my husband, and the only gluten we have is occasionally toast for him

or a flour tortilla wrap for his sandwich. It is hard.

The teflon itself is not the problem, just like the plastic is not

the problem. The issue is that the scratches in the plastic or

teflon hold gluten residue, which gets back in the food you are

making for her. Even making a mistake and stirring her food with a

utensil you've stirred pasta or something with and not gotten it

cleaned well can make her sick. It is next to impossible to get all

the flour out of the gears and switches on a mixer. You can do it,

but you'll need diligence.

If you must maintain a non-GF house, I'd clear a shelf, buy a new

pan, colander, spoons, spatulas, toaster, whatever else you can't

live without, mark it all GF with a sharpie and store it in the

cabinet. Some people like to buy their GF stuff in a different

color, like red. Also, check her shampoo and soap. Seems trivial,

but I did not stop having the big D until I stopped using several

makeup products which had wheat or oats (toner, night cream, mascara).

This takes time and practice! You'll get it!

Celeste

[Guest guest]

> ,

>

> I found the Safeway brand of Corn Pops is Gluten Free. It is also

on the

> list you can get! The number to request their list is 888-

SAFEWAY. They

> are really good at helping answer questions too! :-)

>

> I will have to see about replacing my plastic serving spoons and

the few

> pans I have left. Maybe I can do that this next week.

>

> Now I do have another question I have ran up against with out being

able to

> get a straight answer. She was put on an antibiotic in October for

Reflux

> from her bladder to her kidney so we can avoid an infection. I was

at the

> pharmacy yesterday to pick it up and I asked the pharmacist to

double check

> the GF status of the antibiotic and he listed off the ingredients

with

> starch being one. I do not know what form that starch is and have

been very

> protective and refuse to give her a food with starch. He didn't

seem

> concerned about the starch and didn't offer a way for me to double

check.

> Am I just grabbing at straws or could this be the culprit? She has

had a

> couple of reactions in the past few months and we can usually find

the place

> she was getting gluten. She is only getting 2mls a day so it can't

have

> that much gluten (more than enough though!) and could it have been

just

> adding up? I know others have said that if they get a little

gluten they

> may not feel it but if they get it for several days it builds up

and they

> really feel it. It is the only logical place since we are careful

with

> cross contamination and separate condiment dishes if we are using

something

> on something that is not GF (instead of having a GF dish of butter

or

> something I find it is easier to have a small dish of butter that

has been

> used with gluten). We are just at a loss for finding something

that we can

> fix.

The Antibiotic I took, which was for an absess, knocked me on my rear-

end so to speak, it gave me the exactly the same symptoms as CD. But

the doctor insisted I must take it. My safe place is on a liquid

diet, so I went on a liguid diet free of solids for about 2 weeks and

took the antiboitic, I went off the diet about a week later after I

felt better.

I had sent A post also on NSAIDs but it never seems to have hit the

list. There is a new study out in Houston that states that repeat use

of ibuprophin causes small gut damage in 70% of individuals. As we

are talking about Rotaviruses I think that many researchers beleive

that chronic small gut damage (like rotaviruses) can cause prelude

CD. While the preconditions in the gut, for example wheat allergies

or other food reactions may pre-exist this environment it is not

until one has a marked perferoration of the small gut and access to

endomysial tissue that one gets the conditions that cause CD.

[Guest guest]

>

> As for her bread I make Bettie Hagman's Bean Flour Bread.

The bean flour in that recipe gives both of the celiacs at my house

major gas and bloating! No gluten involved, just plain ol' flatulence

and bloated tummies from the beans.