New Member in British Columbia, Canada

[Guest guest]

Hello everyone. My name is Nikki and I am raising my grandson. He

will be three months old in a week. He was just diagnosed with

plagio and torticollis. He also has other health concerns. We have

just started physio and he will be getting visits from our local

child development center. I am new to all of this and hoping to

connect with others experiencing the same things. So far I am just

learning different ways of holding and moving him. is a big

boy and very determined to stay on his right side. If anyone has

ideas that may help I am open to all suggestions.

Also, I am wondering which children benefit more from the helmets

and when they are used in treatment.

Thanks to the group, and good luck on our common journey.

[Guest guest]

Hi Nikki & welcome to our group!

Glad you found us. Repositioning a plagio baby can be quite

challenging alone, but with torticollis involved, it's even more of a

challenge!! We have a ton of helpful 'REPOSITIONING TIPS/IDEAS' in

both our group FILES & LINKS sections. We have many product links

that might be of help as well. I'm sure Christie will reply w/her

repo tips, she's our resident repo guru

All plagio babies can benefit from a helmet for correction. The

younger in age a baby begins a helmet, the better and faster the

correction will be. Babies head grow the fastest & most in the first

12 mos of their life, esp age 6 mos and younger.

I chked our DATABASE for British Columbia helmet/band providers and

found this IF and/or WHEN you may be interested in pursuing a helmet

for your grandson. There is a provider in BC and here's his info:

Canada - British Columbia

Local Helmet

Valley Orthocare Ltd.,

#118-12414-82nd Avenue,

Surrey, BC V3W 3E9, Canada

Alan H.

(604) 597-4784,

orthocare@... Company Representative's Email

Good luck, pls keep us posted on his progress!

Debbie

MI

> Hello everyone. My name is Nikki and I am raising my grandson. He

> will be three months old in a week. He was just diagnosed with

> plagio and torticollis. He also has other health concerns. We have

> just started physio and he will be getting visits from our local

> child development center. I am new to all of this and hoping to

> connect with others experiencing the same things. So far I am just

> learning different ways of holding and moving him. is a big

> boy and very determined to stay on his right side. If anyone has

> ideas that may help I am open to all suggestions.

> Also, I am wondering which children benefit more from the helmets

> and when they are used in treatment.

> Thanks to the group, and good luck on our common journey.

[Guest guest]

Hello Nikki!

Welcome to the group! I hope we can be a source of support and

information to you regarding your grandson's plagiocephaly.

I noticed that you said your grandson has tort. Torticollis makes

aggressive repositioning almost impossible - it can be incredibly

difficult to get them to keep their head turned off of the flat

area! Usually repo efforts aren't successful until the tort is

resolved, which can take months. If you find that you are unable to

position his head, I would recommend keeping all your efforts toward

keeping him up off his head entirely as much as possible during the

daytime. At nighttime, you might have some luck with sewing a wedge

or bag or rice to the back of one side of his pjs in an effort to

tip him up off of his flat area. You could also try a side sleep

positioner, or a custom piece of memory foam under the head. There

are a lot of repo products you could look through in the LINKS/REPO

AND TUMMY TIME/REPO PRODUCTS to purchase, or maybe give you some

ideas for homemade products. There are also a couple of foam

headrest-type ideas from our members in the FILES/REPO

HEADQUARTERS/REPO PHOTOS folder... if you get a chance, check them

out to see if those ideas might work for you as well!

Because your grandson has tort, and repo may be difficult, it may

benefit you to start finding out about what the timeline/process

would be to get a referral to a specialist for evaluation, etc. You

could also give the facility a call that Debbie gave you in her

reply, and get some initial questions answered about how to go about

getting into a helmet, efficacy of treatment in regards to age of

the baby, etc. Your grandson is so young, that you will have time

to find out about these options at your leisure while you are

addressing his other health concerns as well.

Would you let us know how things are going with your grandson, and

let me know if I can be of any help with repo?

Take care,

Christie (Mom to Repo'd Remy)_

> Hello everyone. My name is Nikki and I am raising my grandson. He

> will be three months old in a week. He was just diagnosed with

> plagio and torticollis. He also has other health concerns. We have

> just started physio and he will be getting visits from our local

> child development center. I am new to all of this and hoping to

> connect with others experiencing the same things. So far I am just

> learning different ways of holding and moving him. is a big

> boy and very determined to stay on his right side. If anyone has

> ideas that may help I am open to all suggestions.

> Also, I am wondering which children benefit more from the helmets

> and when they are used in treatment.

> Thanks to the group, and good luck on our common journey.

[Guest guest]

Hi Nikki,

Welcome to the group. I see Debbie and Christie gave you some hints

on repoing and also explained how difficult it can be, especially in

a baby w/tort! I wish you the best of luck. How would you rate his

severity? There are severity assessments in our links section. I

think it would be beneficial to you to get a referral to a

specialist in the meantime. It could take weeks or months to get in

and if you are happy wiht the repo resutls you could always cancel

it. All babies can benefit from banding through and experienced

orthotist, and the younger the better results you'll see. Good luck

and let us know how the repoing goes.

, mom to Hannah, DOC #3 3/30

Cape Cod, Ma

> Hello everyone. My name is Nikki and I am raising my grandson. He

> will be three months old in a week. He was just diagnosed with

> plagio and torticollis. He also has other health concerns. We have

> just started physio and he will be getting visits from our local

> child development center. I am new to all of this and hoping to

> connect with others experiencing the same things. So far I am just

> learning different ways of holding and moving him. is a big

> boy and very determined to stay on his right side. If anyone has

> ideas that may help I am open to all suggestions.

> Also, I am wondering which children benefit more from the helmets

> and when they are used in treatment.

> Thanks to the group, and good luck on our common journey.

[Guest guest]

Hi Nikki

I am in Vancouver, and have gone thru all the hoops that you need to

for going the helmet route if you decide to go that route in the

future for your grandson. The info that Debbie gave you is correct,

Alan is the only orthotist in BC who does do the helmet, however the

neurosurgeon he worked closely with is no longer in BC, she is now

in Dallas, Texas.

I would suggest strongly that you do all the repo that you can, but

in the meantime if you are even considering the helmet, I would

start by trying to get into see a neurosurgeon at Children's

hospital in Vancouver immediately. I only say that because we had a

bit of a wait, and I am not certain who is the neurosurgeon you

would be seeing (the waitlists can be very long, and with plagio,

time is of the essence). You will need a doctor's referral to get

into Children's hospital.

Please feel free to e-mail me to ask any questions etc. My son was

in the helmet for about 7 months (he started at a year old), so I

have had lots of experience with the locally made helmet here. I

have alot of other connections as well that may make the journey a

bit easier for you if you decide to go that route in the future.

Good luck

, mom to Ethan

Helmet Grad

Vancouver, BC.

> Hello everyone. My name is Nikki and I am raising my grandson. He

> will be three months old in a week. He was just diagnosed with

> plagio and torticollis. He also has other health concerns. We have

> just started physio and he will be getting visits from our local

> child development center. I am new to all of this and hoping to

> connect with others experiencing the same things. So far I am just

> learning different ways of holding and moving him. is a big

> boy and very determined to stay on his right side. If anyone has

> ideas that may help I am open to all suggestions.

> Also, I am wondering which children benefit more from the helmets

> and when they are used in treatment.

> Thanks to the group, and good luck on our common journey.