Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Morning Ladies! I haven't posted in a couple weeks; work, ear infections, tummy flu (the kiddo's, not me), hubby out of town, etc., have kept me busy. Anyway, 's going in for his DOC band fitting on Thursday. I'm having mixed feelings. On one hand I'm excited, I can't wait to begin the process of rounding out his head. On the other, I'm very nervous and sorry for him. I don't think I would be too comfy with a helmet on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme type A, forgive me ), would anyone be willing to share their first days/nights experiences? I know there are some posts on here already but I'm having a hard time sifting through them. I just would like to know what to expect. I know every kid's different but it would be nice to hear some honest recounts of how it went for you. Thanks so much in advance! Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 , thank you so much!! is also 8 months, he's such a happy baby but also very willful, so one of my concerns is that he's going to pull off the band. I just don't want to smother his happy-go-lucky attitude with all this " torture " , if that makes any sense. We're in Phoenix, so it is PLENTY hot here too and he's pretty much barefoot all the time as it is. One thing I did think of though, they manage to adapt to a diaper, which when wet I think is heavier than the helmet! So I hope he does OK with it. Anyway, I just wanted to say thank you SO much for your words of encouragement. I am extremely grateful he has a treatable condition when some parents have to deal with much, much worse, but sometimes it still sucks. ;-) THANK YOU!! Mia > > Morning Ladies! > > > > I haven't posted in a couple weeks; work, ear infections, tummy flu > > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > > Anyway, 's going in for his DOC band fitting on Thursday. I'm > > having mixed feelings. On one hand I'm excited, I can't wait to > begin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 OK and P.S. I just looked at 's pics.. Her head looked almost exactly like 's does!! And she is a freakin DOLL, I could just chew her, she's so cute! > > Morning Ladies! > > > > I haven't posted in a couple weeks; work, ear infections, tummy flu > > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > > Anyway, 's going in for his DOC band fitting on Thursday. I'm > > having mixed feelings. On one hand I'm excited, I can't wait to > begin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi Mia. I know exactly how you're feeling. I was so devastated when we found that Dylan (now 12 mos) would need a helmet. I cried at the appointment when he first got it, on the way home, and that night. I felt like we weren't going to get through it. Dylan never minded the helmet. The only time he fusses about it is when I stop him to put in on or take it off. He's just so busy at 12 months that he doesn't like to stop for anything. Kids are so resilient - they adapt so quickly! Dylan dealt with it a lot better that my husband and I did. After 3-4 weeks, we were so used to seeing him in the helmet that it was weird to see him with it off. Now that 2 months have gone by, the helmet is just a part of him and we barely notice it anymore. I know what you may be thinking, that you can't imagine getting used to it that much. I was so skeptical of that too because I'm was so emotional about it. Trust me, if I can get used to it, anyone can. The great thing about it now is that he just started walking and it protects his head when he bumps into things. When people ask me what the helmet is for (and believe me, some will ask even if they're strangers) I just say that he has a flat spot and the helmet is reshaping his head. I don't go into a lot of detail. I just act like it's no big deal which really it isn't anymore. I used to feel like I had to go into a long explanation and I don't anymore. We've already seen quite a bit of improvement too so that made us feel so much better about the whole thing. I know the beginning is hard and a little scary. It's never as bad as we anticipate. When you see the progress, you'll be so glad you did it for . Good luck and let us know how it goes. You can see Dylan's pictures in the albums under Dylan F. Beth Mom of Dylan (Starbanded on 3/19/04) Grand Rapids, MI > Morning Ladies! > > I haven't posted in a couple weeks; work, ear infections, tummy flu > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > Anyway, 's going in for his DOC band fitting on Thursday. I'm > having mixed feelings. On one hand I'm excited, I can't wait to begin > the process of rounding out his head. On the other, I'm very nervous > and sorry for him. I don't think I would be too comfy with a helmet > on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme > type A, forgive me ), would anyone be willing to share their first > days/nights experiences? I know there are some posts on here already > but I'm having a hard time sifting through them. I just would like to > know what to expect. I know every kid's different but it would be > nice to hear some honest recounts of how it went for you. Thanks so > much in advance! > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Thank you guys so much! It's such a relief to hear that your kiddos have pulled through just fine. You have no idea how much better I feel after reading that you all had mixed feelings too. I don't feel like such a wuss now. You all are awesome! > Morning Ladies! > > I haven't posted in a couple weeks; work, ear infections, tummy flu > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > Anyway, 's going in for his DOC band fitting on Thursday. I'm > having mixed feelings. On one hand I'm excited, I can't wait to begin > the process of rounding out his head. On the other, I'm very nervous > and sorry for him. I don't think I would be too comfy with a helmet > on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme > type A, forgive me ), would anyone be willing to share their first > days/nights experiences? I know there are some posts on here already > but I'm having a hard time sifting through them. I just would like to > know what to expect. I know every kid's different but it would be > nice to hear some honest recounts of how it went for you. Thanks so > much in advance! > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Do you have to put something on before the stickers? I think if you use the clear stickers you don't have to use anything. Maybe clear acrylic on the top (that's what I have heard) but I'm not sure about anything else. I'm not too worried about the stares. I have a big mouth and I don't question my ability to take care of that. Every baby is different and beautiful, even more so the ones with challenges. It gives them character I think and makes them extra special. That's how I feel about my little guy anyway. :-) If you get a chance write and let me know how it goes for you tomorrow! Good luck! > I am feeling the same way as you Mia! My son Tony is going in to be fitted > tomorrow morning and I am apprehensive, worried about the responses his > appearance will generate (I know most have positive comments but some people said > they had a few negatives and my son already has developmental delays so I know I > will bristle up at the comments). I also noticed somebody saying that they > took advantage of the first day to do the decorating. And I realized that > sounds like a good idea since after that there will be no time to decorate unless > he is wearing it during that time! So when you put the stickers on what is the > name of the product that you put a coat on before, and after? Thanks. > > Margy > Momma Bear to > My lil Cub > > 12.8.02 > eBay.com Seller List: flowerpower83 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Dear Mia, I am trying this again, I must have erased my previous message somehow. I am the mother of Lucia, 7 months, on DOC band for the last two weeks. I wished I was told that not all babies adapt to the band right away. Were they honest with me, I would have been stronger for Lucia when, during the first week, she went through a very difficult time. She was very sweaty, her head was way too hot, she was nervous, stopped napping and started crying histerically. And note that Lucia is an angel baby otherwise. Now that I know, I can honestly tell you, " Hang in there. " If your son has difficulty adapting like Lucia did, it won't last. After one week the sweat decreased, the head was not so hot, Lucia was back to her 15-16 hour sleep days, and the pulling and banging of the band ceased. If your son has not difficulty adapting, like most babies I have read about, lucky you. Otherwise, know that this also will end sooner than you think. Hug him, cry with him, kiss him, tell him that you love him 10 thousand times a day. And run the storm with him, but rest assured that it is just a question of few days, while the results, hopefully, will last a lifetime. Hugs, Valeria > Morning Ladies! > > I haven't posted in a couple weeks; work, ear infections, tummy flu > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > Anyway, 's going in for his DOC band fitting on Thursday. I'm > having mixed feelings. On one hand I'm excited, I can't wait to begin > the process of rounding out his head. On the other, I'm very nervous > and sorry for him. I don't think I would be too comfy with a helmet > on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme > type A, forgive me ), would anyone be willing to share their first > days/nights experiences? I know there are some posts on here already > but I'm having a hard time sifting through them. I just would like to > know what to expect. I know every kid's different but it would be > nice to hear some honest recounts of how it went for you. Thanks so > much in advance! > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Hi, I am feeling the same way now that Colin will have his first overnight tomorrow night. We have been weaning up and he did 8 hours today. He has handled it very well. i give him a good head scratch when I take it off and he likes it. Gets so relaxed and seems really blissful when I do that! He has handled it very well. Just takes it in stride and is a happy camper. He is 4.5 months old. It has not hindered his movility at all and he still rolls right onto his tummy to play and is happy. It does limit his motion in his neck a bit, but in a week, he has gained strength to overcome this. It is actually helping his neck strength because it is a bit of extra work. I thought he would be upset putting it back on, but he just fidgits for a second and then is back to normal. Hope that helps. He is very happy and the same old baby with is helmet! mish > Morning Ladies! > > I haven't posted in a couple weeks; work, ear infections, tummy flu > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > Anyway, 's going in for his DOC band fitting on Thursday. I'm > having mixed feelings. On one hand I'm excited, I can't wait to begin > the process of rounding out his head. On the other, I'm very nervous > and sorry for him. I don't think I would be too comfy with a helmet > on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme > type A, forgive me ), would anyone be willing to share their first > days/nights experiences? I know there are some posts on here already > but I'm having a hard time sifting through them. I just would like to > know what to expect. I know every kid's different but it would be > nice to hear some honest recounts of how it went for you. Thanks so > much in advance! > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Hi Mia! I know I am late in replying, but I just wanted to share my experience with you. has been in his band exactly one week. He has adjusted very well. The only problem we have had was he developed a heat rash after the 3rd day. We just put some hydrocortisone on it during his 'free time' and it cleared up in a couple of days. Honestly, it is amazing how quickly the babies adapt to wearing the band. I thought he was going to have a problem because he hates to wear hats, but he does not even seem to know the band is there! Good luck and let us know how the fitting goes. Jill (mom to --7 months tomorrow!) DOC band-5/20 Dallas > Morning Ladies! > > I haven't posted in a couple weeks; work, ear infections, tummy flu > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > Anyway, 's going in for his DOC band fitting on Thursday. I'm > having mixed feelings. On one hand I'm excited, I can't wait to begin > the process of rounding out his head. On the other, I'm very nervous > and sorry for him. I don't think I would be too comfy with a helmet > on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme > type A, forgive me ), would anyone be willing to share their first > days/nights experiences? I know there are some posts on here already > but I'm having a hard time sifting through them. I just would like to > know what to expect. I know every kid's different but it would be > nice to hear some honest recounts of how it went for you. Thanks so > much in advance! > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Hi Mia! I know I am late in replying, but I just wanted to share my experience with you. has been in his band exactly one week. He has adjusted very well. The only problem we have had was he developed a heat rash after the 3rd day. We just put some hydrocortisone on it during his 'free time' and it cleared up in a couple of days. Honestly, it is amazing how quickly the babies adapt to wearing the band. I thought he was going to have a problem because he hates to wear hats, but he does not even seem to know the band is there! Good luck and let us know how the fitting goes. Jill (mom to --7 months tomorrow!) DOC band-5/20 Dallas > Morning Ladies! > > I haven't posted in a couple weeks; work, ear infections, tummy flu > (the kiddo's, not me), hubby out of town, etc., have kept me busy. > Anyway, 's going in for his DOC band fitting on Thursday. I'm > having mixed feelings. On one hand I'm excited, I can't wait to begin > the process of rounding out his head. On the other, I'm very nervous > and sorry for him. I don't think I would be too comfy with a helmet > on 23 hours a day. Anyway, just to prepare myself (yes, I'm extreme > type A, forgive me ), would anyone be willing to share their first > days/nights experiences? I know there are some posts on here already > but I'm having a hard time sifting through them. I just would like to > know what to expect. I know every kid's different but it would be > nice to hear some honest recounts of how it went for you. Thanks so > much in advance! > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Hi ,You will find in this group comfort, friendship, advise and friends. Doctors told me my girl has a mild case of aspergers and I thought that myself until I spent more time with her. Before my sister used to take care of her, I was working two jobs and I see thinks, but it did not look too bad until I spend more time with her and saw her in action... Sometimes she has her good days, sometimes she has her bad days. When you see her you think nothing is wrong with her until something happens that trigger a change of behave.I love this group. Some advise are very funny and made my day after a grumpy day at work....Give yourself time, read the posting and eventually you will see if the group is the right group for you.. ( ) mixed feelingsI am feeling really blessed that my daughter has a "mild "case of Asperger's. We are not having a lot of the problems that I am reading about. She has her quirks, but that is what makes her who she is. However, I hesitate to write about my questions because they seem minor or not as important as some of the stuff I am reading about. I am wondering if this is the group for me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 , I would say ask away, it will help you ferret out what is normal at that age stage behavior and what is her asperger's if anything, and that is helpful when hitting the middle school and high school years! And for me the college years! I get mixed up sometimes, is it her normal pulling away from me for independence or is it her asperger's??? I find the postings on here very helpful even though sometimes I feel like I have the oldest one. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Definitely stay. I gotta admit that I have 2 sides to how I feel about my son. He is not as severe as some,,,,,,,,,,but worse than others. We are all in that "spot". I'm grateful that he is as good-off as he is. But,,,,,this leads to less understanding and more "demands" of good, appropriate behavior from him. That's the bad, scary part of having a kid with AS.....and a not-so-severe form of it. So,,,,,,,,,,stay. You never know when you'll need to talk or scream or cry. Or even be able to help someone else!!! It really is simple. Just treat others kindly and with respect. Robin From: tfitzge134@... <tfitzge134@...>Subject: Re: ( ) mixed feelings Date: Thursday, February 11, 2010, 8:11 AM Hi ,You will find in this group comfort, friendship, advise and friends. Doctors told me my girl has a mild case of aspergers and I thought that myself until I spent more time with her. Before my sister used to take care of her, I was working two jobs and I see thinks, but it did not look too bad until I spend more time with her and saw her in action... Sometimes she has her good days, sometimes she has her bad days. When you see her you think nothing is wrong with her until something happens that trigger a change of behave.I love this group. Some advise are very funny and made my day after a grumpy day at work....Give yourself time, read the posting and eventually you will see if the group is the right group for you.. ( ) mixed feelingsI am feeling really blessed that my daughter has a "mild "case of Asperger's. We are not having a lot of the problems that I am reading about. She has her quirks, but that is what makes her who she is. However, I hesitate to write about my questions because they seem minor or not as important as some of the stuff I am reading about. I am wondering if this is the group for me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 I agree.. I read a lot of what everyone goes through with school and whilst none of that pertains to me with Zak being home schooled Its important for me to know what’s going on with Aspergers in all walks of life… If he wanted to go back to school (which is highly unlikely) I’d have more information. What I love to read is the level of comittment from all of the parents in this group to giving their kids the best life possible for them individually. I’m thinking of joining the aspergers homeschooling list and will probably do that when I find the time! In the meantime I love reading the postings here. Keep coming back … Namaste Dawn in Tucson From: [mailto: ] On Behalf Of tfitzge134@... Sent: Thursday, February 11, 2010 7:11 AM Subject: Re: ( ) mixed feelings Hi , You will find in this group comfort, friendship, advise and friends. Doctors told me my girl has a mild case of aspergers and I thought that myself until I spent more time with her. Before my sister used to take care of her, I was working two jobs and I see thinks, but it did not look too bad until I spend more time with her and saw her in action... Sometimes she has her good days, sometimes she has her bad days. When you see her you think nothing is wrong with her until something happens that trigger a change of behave. I love this group. Some advise are very funny and made my day after a grumpy day at work.... Give yourself time, read the posting and eventually you will see if the group is the right group for you.. ( ) mixed feelings I am feeling really blessed that my daughter has a " mild " case of Asperger's. We are not having a lot of the problems that I am reading about. She has her quirks, but that is what makes her who she is. However, I hesitate to write about my questions because they seem minor or not as important as some of the stuff I am reading about. I am wondering if this is the group for me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Hi there, As we got to know and understand the diagnosis of my son, i felt the same way. 'how can i complain, he looks fine compared to the other cases i read about!' but you know, the more i get involved and really understanding the problems on a cognitive level- not just present behavior- and what will/would happen to him without therapy etc...i can realize the gravity of the situation, even though it may appear 'minor' on the outset, or 'barely a problem' to well meaning family and friends. i find it so frustrating when ppl who obviously have the best intentions tell me " oh he seems fine, he'll grow out of it " when the last 15 months of my life have been hell working through this whole situation and getting him what he needs. its like only ppl who are up close in the field can realize the severity of the situation. sure, when they're four and have high functioning aspergers, it can look like a spaced out slightly awkward kid. but what will that look like at age twenty? i don't know about you, but i definitely need the support! i feel that from the most major to the most 'minor' issues on the spectrum, we can all help each other and give comfort because to whatever degree we are all going through the same challenges and the camaraderie can do wonders! best of luck, and don't feel bad to feel bad- we're parents; its our job to worry and stress over our kids!! > > >I am feeling really blessed that my daughter has a " mild " case of > >Asperger's. We are not having a lot of the problems that I am reading about. She > >has her quirks, but that is what makes her who she is. However, I > >hesitate to write about my questions because they seem minor or not as important > >as some of the stuff I am reading about. I am wondering if this is the > >group for me? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 I've got a " mild " aspie son. 9 y.o. lol. takes all i've got to give him what he needs. geo - ( ) Re: mixed feelings I am positive you are not the only one on here dealing with " mild " aspergers. Our son is probably on the milder end. I mean it still affects our daily life in every way, but he is more quirky than anything. Just some of his quirks interfere with life in general. I was told that no two children with AS display symptoms the same way and this group is great for support when you are having a hard time or even just don't want to feel alone as a parent. > > I am feeling really blessed that my daughter has a " mild " case of > Asperger's. We are not having a lot of the problems that I am reading about. She > has her quirks, but that is what makes her who she is. However, I > hesitate to write about my questions because they seem minor or not as important > as some of the stuff I am reading about. I am wondering if this is the > group for me? > > > Quote Link to comment Share on other sites More sharing options...
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