Re: loose helmet adjustment/OKLAHOMA

[Guest guest]

Hi ,

The adjustments you mentioned that your orthotist made to your son's

Starband sound strange to me, but perhaps someone more knowledgeable

here at the group with band experience can speak to what is normally

expected. We used aggressive repositioning only to treat our

daughter Remy's plagio/brachy, so I don't have any personal

experience!

I want to post to you to tell you that we have several members who

have gone to Bill Barringer in OKC for treatment. From what I have

read, he is an extremely experienced orthotist, and the parents have

been very happy with him. His facility is listed in the HELMET/BAND

DATABASE in the DATABASE section of the group, if you are interested

in his info, as well as the email addresses of group members who

have been there. I put OK in the subject header in hopes of getting

the attention of anyone in your area - maybe there will be someone

who has experience at your same facility, and could provide you with

some feedback on their care there.

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " mlendan " <mlendan@c...>

wrote:

> I live in Bartlesville and drive to Tulsa (1hour). Tulsa has 2

orthotists and OKC (3 hours) has one. Both of the places in Tulsa

have less experience than I would like. I am not really sure about

the place in OKC. The wrong information I am talking about is he

said he could go in the pool or bath with his helmet. He didn't

know what to do about a heat rash, except say it would probably go

away. He was pretty relaxed about the time period adjustments in

the beginning. He did give me written instructions that

contradicted all of that and that is what I have been following. I

do feel like he made a good casting. I don't know. I just like to

follow instructions to a T, especially when it comes to my son.

>

>

>

> Re: loose helmet adjustment

>

>

> Hi ,

> I didn't have a starband, let alone an active band, so I am not

the

> person to address this. I have never heard of this being done,

but

> that doesn't necessarily mean it hasn't. I am sure someone with

a

> Star or DOC will chime in soon.

>

> I am a bit unsettled by the fact that this guy has given you

wrong

> information before and has little experience with bands. Has

anyone

> in this group been to this orthotist before?

>

> Where are you at ?

>

> , mom to Makenna LLUMC helmet grad.

>

> --- In Plagiocephaly , " mlendan " <mlendan@c...>

wrote:

> > I went to the orthotist today and he said Nate's STARband

helmet

> was too loose. First he took out the spacer, but that scrunched

up

> his forehead and eyes too much so he put it back in. He decided

to

> glue a oval shaped piece of blue vinyl/plastic to the forehead

part

> of his helmet. His helmet does not shift anymore, but it has a

big

> gap in the front where it didn't before. I am going to a guy

that

> makes probably a dozen helmets a year so I want to make sure he

knows

> what he is talking about. He has already given me wrong

information

> concerning some of the little things that have to do with the

care of

> the helmet, so I want to at least know he knows what to do about

the

> big things. Has anyone else had vinyl pieces glued to their

baby's

> helmet? Is it ok to have gaps where he didn't just yesterday?

Any

> insight would be appreciated. Sometimes I feel like the only

ones

> who really know anything about plagiocephaly are this group.

Thanks

> again!

> >

> >

>

>

>

> For more plagio info