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,Cy,Pierre RE:What to do?

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Dear , Cy and Pierre,

I want to thank you all for the helpful and informative feedback

that you gave our family. I forwarded your suggestions to Geoff.

Your support is so gratefully appreciated. There are so many fears

and anxieties that can come to the surface when faced with any change.

Your answers helped to relieve ours.

From reading your various emails on the message board, I've come to

realize the power and knowledge behind your words. You are incredible

people! You are not victims of this disease. You are heroic

warriors.

Thank You for fighting the fight and sharing what you've learned,

along with your experiences.

Lin and Coe

W4JC@... wrote:

Hi Lin,

........ " First of all, I am wanted to tell you how sorry I am that your

husband has

IgAN. We always are to hear that another person has been diagnosed

with IgAN. I

sincerely hope your stepson is not also afflicted with IgAN.

The standard treatment for IgAN is Ace inhibitor, which has some renal

protective measures......... "

Cy wrote:

Hi Lin,

....... " I'll take a short stab at answering Geoffrey's's questions.

The web page he wants to look at is our parent site, www.igan.ca Geoffrey

can find a wealth of information on many aspects of the disease.

Re " what is someone .... spposed to do about it? " ....... "

Pierre wrote:

" ......It probably wouldn't be a bad idea to start by seeing his

family doctor and

telling him or her about the blood in the urine. If it were to be IgAN, I

can attest that a person can have it and not feel bad for many, many

years..... "

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