Re: Cole's 1st week in his STARband

[Guest guest]

,

Thanks for sharing such an awesome update with us. It's really great

to hear how well Cole is adjusting! Good luck to Eden on her first

day of preschool. Keep us posted on Cole's progress.

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though. I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

Hey ,

I'm so glad to hear Cole is doing so well. You are so right about all

the worrying we did, I feel the same way. Aidan is even getting his

first tooth this week and he's still the same baby. At least we can

take a great big sigh of relief now!

Ooooh your baby is going to preschool! So cute!

& Aidan in CT

10.5 months doc band 7/21

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though. I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

I'm glad that you are so relieved! It has been much harder on you

then Cole, huh? Sounds like things are going great, I'm so happy for

you.

Natasha

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though. I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

that is so great. Colin slept better too - isn't that

crazy?? It makes it so much easier on you. I'm glad that you have

had good public experiences. Good luck to Eden on her first day of

preschool and keep up the great temperment Cole! Way to keep mommy

happy!

Sue

Colin F.

Starband 6/29

Buffalo, NY

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though. I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

Hi ,

I'm so glad you guys are having such a good experience! What a

relief, huh? It's great to be well informed, but sometimes it makes

you worry more too! I'm looking forward to seeing the picutres.

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though.

I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

,

This is just fantastic to hear. It sounds like Cole's banding

experience has so far been the best case scenario possible, and I'm

so pleased for you all! Such a good fit so soon will hopefully

translate into some quick correction.

Keep us updated on how his adjustment appointments are going!

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though.

I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

,

Hi I am new to this group as of today. Your post caught my eye

because my baby's name is Cole as well! He is 6 1/2 months old and

we have our first appointment with Cranial Technologies next week.

I already know that Cole will probably need to be banded. I am so

nervous, upset, and a bit emotional about this. I feel that our

peds were not proactive about this condition at all and I am

literally doing everything on my own to learn more about dealing

with Plagio. I just wish we would have been more informed from the

get-go. I am happy to hear your Cole is doing well with the band.

I am sure you will be seeing me on the chat boards for support and

postings!

New to this,

Deidra

Let me know the age of your Cole.

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi everyone,

>

> Well, today makes 1 week that Cole has had his band, and I am so

> shocked at how easily he has adjusted. He is wearing his band 23

> hours everyday with no problems. Depending on which way he sleeps,

> he doesn't even get any red spots. It seems like all the worring I

> did for so long was just wasted time. Cole sleeps just as well, if

> not better, he is still just as happy as always, and we haven't

even

> gotten any funny looks or anything when we take him out in public.

> He has even really adjusted to the tempurature, he still sweats

> some, but not real bad at all. I promise that I will get some pics

> added soon...I'm gonna have to buy a new camera on payday though.

I

> have been using a dispossible one for now to take pics of his head

> for future refs. I want to take some weekly to monitor his

progress.

> Eden is starting her first day of preschool on Monday, and I wanna

> use the camera to take some pics. of her then I will have it

> developed and get some pics posted. Thanks for all the advice and

> support...you guys were right all along....this isn't so bad. I am

> so glad we made the choice to band.

> , mommy to Cole (STARband 7/22/04) and Eden

> Lake PLacid, Fl.

[Guest guest]

Hi Deidra,

Welcome to the group. Our ped. wasn't much help either, in fact not

at all. This group is where I have learned everything I know about

Plagio. I was lucky enough to find this group fairly early so the

parents here have helped me every step of the way. Cranial

Technologies is an excellent. Many of babies here have DOCbands from

CT, and I am sure that many of the parents who use CT will be able

to help you with any questions you may have about them. Also, where

are you located, and what CT will you be going to? We may have other

members who are in your area and use the same CT. Do you ahve a Rx

for a band yet? I do know that CT has to have a Rx to be able to

give your Cole a DOCband, if you do not already have one ask at CT

if they can recommend a craniofacial specialist or a neurosurgion in

your area that may give you the Rx. We also have a list of doctors

here, you may be able to find one in your area. Look

under " database " then referring Drs address and phone #'s " . I hope

this info helps you some. I know that CT will be honest with you, if

Cole does not need to be banded they will tell you so, and if they

think he will get correction from banding they will tell you so. I

know one of my main concerns with the evaluation was if the person

doing the eval. was only telling me he needed banded to make money.

We are not using CT with our Cole though, due to travel time and

insurance, but I did have alot of contact with CT before we decided

to go with the STARband, and I loved them. My Cole will be 8 months

on the 11th of this month, we started the whole process of trying to

get him banded right before he turned 5 months, so it has been a

long process already. Getting the band was the hard part though, now

that Cole is wearing his band 23 hours a day there isn't much to it.

Good luck next week at CT, and please keep us posted as to how Cole

is doing and what CT has to say.

, mommy to Cole (STARband 7/22/04) and Eden

> > Hi everyone,

> >

> > Well, today makes 1 week that Cole has had his band, and I am so

> > shocked at how easily he has adjusted. He is wearing his band 23

> > hours everyday with no problems. Depending on which way he

sleeps,

> > he doesn't even get any red spots. It seems like all the worring

I

> > did for so long was just wasted time. Cole sleeps just as well,

if

> > not better, he is still just as happy as always, and we haven't

> even

> > gotten any funny looks or anything when we take him out in

public.

> > He has even really adjusted to the tempurature, he still sweats

> > some, but not real bad at all. I promise that I will get some

pics

> > added soon...I'm gonna have to buy a new camera on payday

though.

> I

> > have been using a dispossible one for now to take pics of his

head

> > for future refs. I want to take some weekly to monitor his

> progress.

> > Eden is starting her first day of preschool on Monday, and I

wanna

> > use the camera to take some pics. of her then I will have it

> > developed and get some pics posted. Thanks for all the advice

and

> > support...you guys were right all along....this isn't so bad. I

am

> > so glad we made the choice to band.

> > , mommy to Cole (STARband 7/22/04) and Eden

> > Lake PLacid, Fl.