Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 My name is . I posted here awhile back about my son Maddux (now 4 months old). At the time I thought he had Plagio combined with Tort. He had a well check on March 11 with a new more through ped. He ordered an immediate CT scan of my sons head. We got the results back on Monday and he was diagnosed with Lamboid Craniosynostosis. We are going next month to a neurosurgeon at Childrens Hospital in Oklahoma City. I know this is a forum for Plagio but, I was wondering does anyone here know anything about this condition? I have searched and read everything I can and still have not come up with a straight answer. Everything I read is conflicting. Thank you so much. Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Hi , I'm sorry, but I don't have any experience with your son Maddux's diagnosis - but I'm sure it would help to communicate with other parents in your same situation. The Cappskids website link you were given in an earlier reply will be a good place to start - it can be a huge source of comfort to speak with other parents who have experience in cranio. I know they really are a caring and supportive group. They may even know about getting second opinions, and CT scan interpretation if you have any questions about that, and I'm sure they can answer your questions about the " conflicting " information you have come across. Take care, Christie (Mom to Repo'd Remy) --- In Plagiocephaly , " amanda " <girlgukdtieufh@y...> wrote: > My name is . I posted here awhile back about my son Maddux > (now 4 months old). At the time I thought he had Plagio combined > with Tort. He had a well check on March 11 with a new more through > ped. He ordered an immediate CT scan of my sons head. We got the > results back on Monday and he was diagnosed with Lamboid > Craniosynostosis. We are going next month to a neurosurgeon at > Childrens Hospital in Oklahoma City. I know this is a forum for > Plagio but, I was wondering does anyone here know anything about > this condition? I have searched and read everything I can and still > have not come up with a straight answer. Everything I read is > conflicting. Thank you so much. > > Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 http://www.geocities.com/thyroide http://www.armourthyroid.com http://www.optimox.com http://www.stopthethyroidmadness.com gracia > Just stumbled across this group while searching for info on > hypothyroidism. > I am a 53 year old woman who has sufered for most of my adult life > with this condition and all of its' side effects. To say that this > condition has changed my life more than once, would be a gross > understatement. > Five years ago, after going through much of the same as others have > posted, my physician performed a thyroidectomy. Citing the presence > of a very large nodule as his reasoning. At this point in my life, I > didn't care what they did, I only wanted to feel and look better > than I did. Since then, I have been taking Levoxyl in varying doses, > along with 25 mgs of Prozac, to keep me " happy??? " . Presently I only > take .05 mg per day. I also have Mitral Valve Prolapse syndrom, so > they do not want me to have palpatations from too much of the > meds...blah, blah.. > Anyway, I am posting this to inquire from others who have had their > thyroids removed as to what works for them as I am fed up with > levoxyl and it's relative drugs. They work for a bit, then I'm back > to being depressed, puffy faced, overweight and tired. > Any suggestions greatly appreciated...thanks, d. > > > > > > > > -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.4.4/319 - Release Date: 4/19/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Wow....you had your whole thyroid removed because of one nodule? Was it hot?...cold? You said you have had trouble for most of your adult life...so things were ok with you as a child? Do you recall having any specific childhood illnesses...virus, or fever etc... prior to you developing thyroid trouble? Have you always taken synthetic medication, and is the Prozac to help balance your mood, or is it to mimimize depression for you? Sorry for so many questions...but it sounds like there could be an underlying missed condidtion for your thyroid trouble... Very similar to my sister in law..who underwent RAI. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 It was a " cold " nodule, ie: not malignant. The only chronic health problems that I recall from childhood is ear infections. Mostly attributed to spending lots of time swimming in the ocean. I grew up in Miami, and spent most of my free time at the beach. Which brings me to the topic of iodine. In my own throid research, it has been suggeted that people who live near the sea and spend time bathing in it seldom develop these problems. Interestingly, my illness developed after living for several years many miles inland, near Lake Tahoe. Don't know if there's a connection, but ... As for the Prozac, it's a minimal dose prescribed to alleviate depression. I suppose it takes some of the edge off, as I am not feeling deeply depressed, but I still do not feel that I am enjoying life to it's fullest. I am curious about alternatives to the meds I am on, and I intend to discuss Alivar with my Doctor at my next appt (in three weeks). I've read many emails from the group and not come across others who are living life without a thyroid, hence my quest...thanks for your response. --------------------------------- Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
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