Guest guest Posted July 3, 2003 Report Share Posted July 3, 2003 --- Dear Liz, I read your letter yesterday and still can not stop thinking about you...I am really very sorry that you have to go through such hard chemo therapy treatment...I don't know what " wise " words I could say to you....(I a mother of 16 years old boy myself...so you are just at the same age...) Liz, my thoughts and prayers are with you girl. I will pray for good and prompt results of this treatment. Taka care, Elvira In iga-nephropathy , " Liz Enza " <babyenza69@h...> wrote: > dear Rose > > Im very sad to hear about your son. I myself was diagnosed with IgA just in > January of this year, and i am only 15. I can say it was very hard getting > through treatments and still is , as i will be treated with medications for > the rest of 2003 and 2004. I had to endure some harsh chemo therapy > treatments as to suppress my immnue system so it would not attack my > kidneys. I had all the side affects as people with cancer do when being > treated with chemo(e.x. my hair fell out). But i would have to say one thing > kept me under controll, my parents. My mother was so immportant to me always > there sitting with me during the night when the nausea and vomiting and all > the terrible things would happen, she would get up and feed me bring > breakfast in bed. she Helped me understand my homework as i missed so much > of the school time.And even though i was supposed to not go to school i made > the decision that i would take on as much as possible so i went.And the days > when i said i felt ok and im just tired and i don't wanna go she was the one > telling me there will be other times when you are more sick and you will > need to miss those days so you should go and have a nap in class. It made > all the difference in an education for me. As many parents do feel when > there child is sick, my father felt distressed and almost guilty, he cryed > when i found out i had IgA and then he explained to me that he never even > knew what it was yet he felt my pain and he also explained i shoudl be > healthy liek the rest of the 3 children he had, i am no different ,and me > being the youngest, it isn't fair to you at all that you should have an > abnormal childhood not being able to go out with your friends as you once > did. He still does not understand to this day,but i understand that a parent > should not have to see there child suffer, and a parent should not have to > think that they may have to burry there child before there child burries > them. Though he felt sad he still tryed as hard as he could to make me > smile, but whiped away tears as he could not control how he felt. I would > have to say if those two people where not there in my time of need i would > not have been able to be treated , therefore these people saved my life, > that is why i think that if a child so young will have to be treated as i > did then they should have both of there parents around not just one because > thet both make all the difference from breakfast in bed to a simple smile on > your face! > > >From: " Rose " <roseg_tex_3@y...> > >Reply-To: iga-nephropathy > >To: iga-nephropathy > >Subject: I need your support > >Date: Tue, 01 Jul 2003 17:37:25 -0000 > > > > My son is 5 now he was diagnosed w/ IGA of March 2002. He has the > >support of me and his father. My family is going through another > >crises. iel's father is from Mexico and might be deported, > >we go to trial in August. I need some of you to explain how important > >it would be for iel to have both of his parents through out his > >illness. I put my sons medical records in the court files, with a > >brief explanation of the diease so the judge can understand. I think > >hearing from people w/ this same disease and is going through what > >iel will in the future will help the judge understand how > >support is very important to iel.Thank you! > > > > > > Rose > > > > _________________________________________________________________ > Help STOP SPAM with the new MSN 8 and get 2 months FREE* > http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
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