Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Oh Christel! Thank you for posting that. Thank you to your Mom for keeping it. We're 6 mos into a huge PANDAS backslide. You're timing is perfect. I needed this today.~Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Thanks, Christel: I dream of the day tells me what it was like to be him with autism... Subject: encouragementTo: VermontFamilyNetwork , mb12 valtrex , GFCFKids , AutismSupportDaily , Autismbiomedicalsupportmaine-acceptsub-4zpewjnqrdkjyyflyeuugzjwwpzq , ASDParentsProfessionals , aaware Date: Thursday, June 24, 2010, 6:30 PM our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others ] conversations with my son> > > as you may know levi lost his dx in oct and this has been great and I have been trying to gadge when it was ok to talk to him about his past dx (after not even wanting to go back in time in my mind after all that hard work) but to pick his brain on what he remembers. this morning he fell and banged his head (not in a stim way but from me trying to help him put his pants on in the RIGHT direction while getting ready for school- windpants can be hard to tell) and as I was doing dished tonight my mind floated back to what things were like before, remembering 9/11 and how life differs now. so I sat down over chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers and green beans and a pear on the side to chat. > > mom- levi do you remember when you used to bang your head> > levi- mom it's been along time- at least 5 months ago (bites into pear)> > mom- no levi not when you feel accidently out of bed, when you were little, and autism had you trapped inside. do you remember that> > levi- yeah mom, that was bad> > mom- yeah levi it was. what was going on in your mind when that would happen and how did you feel inside> > levi- mom I was making bad choices then, I don't do that anymore> > mom- I know that. but can you tell me what you were thinking> > levi- yeah mom, I was really little, down on the ground, crawling on my hands (using motions while telling me all this) and knees. I could just do that or go outside and play in the grass mom. but you wanted me to grow up and I didn't want to.> > mom- you didn't want to grow up then?> > levi- no mom, i just wanted to be little and crawl on the ground and be in the grass outside> > mom- do you want to grow up now?> > levi- yup, I want to go to the moon someday mom, I'm gonna be an asturnaut, I'm going up in a spaceship and I will get to fly in the air like space men. up high in a rocket mom, it's gonna be so cool....> > mom- with tears in my eyes realizing that now only has my son lost autism, but he has gained hopes and dreams for a future that was robbed of us before, while loosing things that hurt him and bound him as a POW of autism, levi I am so proud of you, you are growing up to be a wonderful young man> > levi- man?? I'm only 7 right now mom> > mom- I know but someday you will be a man> > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth full of that great coconut icecream and he now has a chocholate beard. hey mom!> > mom- yes levi> > levi- I love you so very much....did you see i made you a heart on the computer?> > I look over to see the heart he has made out of qubees, and squeeze him and give him a HUGE kiss on the forehead, he again tells me loves me and kisses me back with his lips (still covered in chocolate) notices he has smeared me with it and we both laugh....> > levi- mom you look silly> > mom- thanks bud.....you to...look in the mirror> > levi- he looks in the mirror, and laughs and then rubs it on his shirt....> > mom- levi!!! does your shirt look like a napkin? > > levi- yup....laughing again, sorry mom..> > mom- oh levi> > how I will take chocholate on his shirt verses fecal matter on the carpet and celing.....thank you God for your faithfulness to see our son in his misery, and us in pain watching him trapped by autism, and helping us get him back. thank you for the chocholate on the shirt and the conversation I got to have with him, for the ability for him to tell me he loves me, and think of me and draw me pictures on the computer.... .I pray you bless others on this board with the SAME gift and hope to get there....> > christel> > Recovering from Autism is a marathon> NOT a sprint, but FULLY possible!> Read more about it on my BLOGs at> http://www.myspace. com/christelking> http://foggyrock. com/MyPage/ recoveringwishes> http://www.facebook .com/profile. php?id=677063169> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hey all. Can someone explain PANDAS? What do you mean by backslide? I assume you mean regression.What is it? Sent from my iPhone Oh Christel! Thank you for posting that. Thank you to your Mom for keeping it. We're 6 mos into a huge PANDAS backslide. You're timing is perfect. I needed this today.~Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010  PANDAS Is strep that goes autoimmune so the body attacks the brain, lungs and heart any time he is exposed to strep. so they go crazy almost and loose skills once acheieved. our son looses potty training skills, math, hand writting, bevhoairal and emotional control..... it's treated with antibiotics to get levels normal, and with boosting the immune stystem Re: encouragement Hey all. Can someone explain PANDAS? What do you mean by backslide? I assume you mean regression. What is it? Sent from my iPhone On Jun 24, 2010, at 4:12 PM, Gayle Owens <gowens_lmt> wrote: Oh Christel! Thank you for posting that. Thank you to your Mom for keeping it. We're 6 mos into a huge PANDAS backslide. You're timing is perfect. I needed this today. ~Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Christel, This is one of the most wonderful posts I have read and my face is full of happy tears while I was reading your conversation with your son!!! I pray this day is not too far us either and I can ask one day my son about all his thoughts and fears while he was not able to express them (currently he is still non-verbal). Posts like this give me so much hope! Thank you for sharing it with us! Krassi > > our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others > > > > > ] conversations with my son > > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head > > > > levi- mom it's been along time- at least 5 months ago (bites into > pear) > > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that > > > > levi- yeah mom, that was bad > > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside > > > > levi- mom I was making bad choices then, I don't do that anymore > > > > mom- I know that. but can you tell me what you were thinking > > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to. > > > > mom- you didn't want to grow up then? > > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside > > > > mom- do you want to grow up now? > > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool.... > > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man > > > > levi- man?? I'm only 7 right now mom > > > > mom- I know but someday you will be a man > > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom! > > > > mom- yes levi > > > > levi- I love you so very much....did you see i made you a heart on > the computer? > > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh.... > > > > levi- mom you look silly > > > > mom- thanks bud.....you to...look in the mirror > > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt.... > > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom.. > > > > mom- oh levi > > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there.... > > > > christel > > > > Recovering from Autism is a marathon > > NOT a sprint, but FULLY possible! > > Read more about it on my BLOGs at > > http://www.myspace. com/christelking > > http://foggyrock. com/MyPage/ recoveringwishes > > http://www.facebook .com/profile. php?id=677063169 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 and then the achievements come back?  or does the process start over?   PANDAS Is strep that goes autoimmune so the body attacks the brain, lungs and heart any time he is exposed to strep. so they go crazy almost and loose skills once acheieved. our son looses potty training skills, math, hand writting, bevhoairal and emotional control..... it's treated with antibiotics to get levels normal, and with boosting the immune stystem   Re: encouragement  Hey all.  Can someone explain PANDAS?  What do you mean by backslide?  I assume you mean regression. What is it? Sent from my iPhone  Oh Christel! Thank you for posting that. Thank you to your Mom for keeping it. We're 6 mos into a huge PANDAS backslide. You're timing is perfect. I needed this today. ~Gayle -- /ttom@... | tweet: @meat99 | txt: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Beautiful conversation! My daughter, who recovered early on got " stuck " in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster. My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy. I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it? Carol > > our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others > > > > > ] conversations with my son > > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head > > > > levi- mom it's been along time- at least 5 months ago (bites into > pear) > > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that > > > > levi- yeah mom, that was bad > > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside > > > > levi- mom I was making bad choices then, I don't do that anymore > > > > mom- I know that. but can you tell me what you were thinking > > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to. > > > > mom- you didn't want to grow up then? > > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside > > > > mom- do you want to grow up now? > > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool.... > > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man > > > > levi- man?? I'm only 7 right now mom > > > > mom- I know but someday you will be a man > > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom! > > > > mom- yes levi > > > > levi- I love you so very much....did you see i made you a heart on > the computer? > > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh.... > > > > levi- mom you look silly > > > > mom- thanks bud.....you to...look in the mirror > > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt.... > > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom.. > > > > mom- oh levi > > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there.... > > > > christel > > > > Recovering from Autism is a marathon > > NOT a sprint, but FULLY possible! > > Read more about it on my BLOGs at > > http://www.myspace. com/christelking > > http://foggyrock. com/MyPage/ recoveringwishes > > http://www.facebook .com/profile. php?id=677063169 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010  yes our gains are still there they are just masked, kinda like an extream yeast or clostrida effect.....he had so many flares last year (we were in a toxic house and didn't know it on top of it) that he went from being years ahead in math to now struggleing to keep up, the loss was so great. Re: encouragement Hey all. Can someone explain PANDAS? What do you mean by backslide? I assume you mean regression. What is it? Sent from my iPhone On Jun 24, 2010, at 4:12 PM, Gayle Owens <gowens_lmt> wrote: Oh Christel! Thank you for posting that. Thank you to your Mom for keeping it. We're 6 mos into a huge PANDAS backslide. You're timing is perfect. I needed this today. ~Gayle -- /ttommadewithcomputers | tweet: @meat99 | txt: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 LDN and imuvovir are simliar working on immune system Th1 th2. we saw GREAT things with LDN, NO flares, UNLESS we missed a night, but it was the most stable he was. right now we have been trying prophatic antibiotics but i am ready to go back to LDN. Re: encouragement Beautiful conversation! My daughter, who recovered early on got "stuck" in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster.My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy.I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it?Carol>> our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others> > > > > ] conversations with my son> > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head> > > > levi- mom it's been along time- at least 5 months ago (bites into > pear)> > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that> > > > levi- yeah mom, that was bad> > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside> > > > levi- mom I was making bad choices then, I don't do that anymore> > > > mom- I know that. but can you tell me what you were thinking> > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to.> > > > mom- you didn't want to grow up then?> > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside> > > > mom- do you want to grow up now?> > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool....> > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man> > > > levi- man?? I'm only 7 right now mom> > > > mom- I know but someday you will be a man> > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom!> > > > mom- yes levi> > > > levi- I love you so very much....did you see i made you a heart on > the computer?> > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh....> > > > levi- mom you look silly> > > > mom- thanks bud.....you to...look in the mirror> > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt....> > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom..> > > > mom- oh levi> > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there....> > > > christel> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook .com/profile. php?id=677063169> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Carol. Can I ask what was the course of action your homeopath used to address maturity? Yours is the first I've heard about this. Many thanks. Heidi JHeidi JSender: mb12 valtrex Date: Fri, 25 Jun 2010 19:01:39 -0400To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: encouragement LDN and imuvovir are simliar working on immune system Th1 th2. we saw GREAT things with LDN, NO flares, UNLESS we missed a night, but it was the most stable he was. right now we have been trying prophatic antibiotics but i am ready to go back to LDN. Re: encouragement Beautiful conversation! My daughter, who recovered early on got "stuck" in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster.My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy.I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it?Carol>> our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others> > > > > ] conversations with my son> > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head> > > > levi- mom it's been along time- at least 5 months ago (bites into > pear)> > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that> > > > levi- yeah mom, that was bad> > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside> > > > levi- mom I was making bad choices then, I don't do that anymore> > > > mom- I know that. but can you tell me what you were thinking> > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to.> > > > mom- you didn't want to grow up then?> > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside> > > > mom- do you want to grow up now?> > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool....> > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man> > > > levi- man?? I'm only 7 right now mom> > > > mom- I know but someday you will be a man> > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom!> > > > mom- yes levi> > > > levi- I love you so very much....did you see i made you a heart on > the computer?> > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh....> > > > levi- mom you look silly> > > > mom- thanks bud.....you to...look in the mirror> > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt....> > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom..> > > > mom- oh levi> > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there....> > > > christel> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook .com/profile. php?id=677063169> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2010 Report Share Posted June 26, 2010 cristel, that made me cry. to only be able to have that experience one day. and i think i cried for believing that it IS possible, but also how hard it is right now. but i want to add to anyone who may read this and does need encouragement, that has beenright where ive been for two years. struggling thru this maze; fighting daily to find out whats wrong and how to fix it; battling to understand the diet; the supppliements/meds; the emotion- to be where we are RIGHT NOW where my almost 4 year old is CONNECTING with us!!!! he is happy he is trying to play with his sister! where he doesnt hit his head incessantly anymore! where he is responding to requests and FINALLY immitating!!!! it is thrilling to FINALLY see success for him- only keeps my hope alive for more and more and hoping one day he can speak. thanks though crystal, for that story. please repeat that again one day. meghan t To: Mb12valtrex <mb12 valtrex >Sent: Fri, June 25, 2010 7:11:21 PMSubject: Re: Re: encouragement Carol. Can I ask what was the course of action your homeopath used to address maturity? Yours is the first I've heard about this. Many thanks. Heidi J Heidi J From: "Christel King" <christelking1@ myfairpoint. net> Sender: mb12 valtrex@ yahoogroups. com Date: Fri, 25 Jun 2010 19:01:39 -0400 To: <mb12 valtrex@ yahoogroups. com> ReplyTo: mb12 valtrex@ yahoogroups. com Subject: Re: Re: encouragement LDN and imuvovir are simliar working on immune system Th1 th2. we saw GREAT things with LDN, NO flares, UNLESS we missed a night, but it was the most stable he was. right now we have been trying prophatic antibiotics but i am ready to go back to LDN. Re: encouragement Beautiful conversation! My daughter, who recovered early on got "stuck" in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster.My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy.I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it?Carol>> our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others> > > > > ] conversations with my son> > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head> > > > levi- mom it's been along time- at least 5 months ago (bites into > pear)> > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that> > > > levi- yeah mom, that was bad> > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside> > > > levi- mom I was making bad choices then, I don't do that anymore> > > > mom- I know that. but can you tell me what you were thinking> > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to.> > > > mom- you didn't want to grow up then?> > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside> > > > mom- do you want to grow up now?> > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool....> > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man> > > > levi- man?? I'm only 7 right now mom> > > > mom- I know but someday you will be a man> > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom!> > > > mom- yes levi> > > > levi- I love you so very much....did you see i made you a heart on > the computer?> > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh....> > > > levi- mom you look silly> > > > mom- thanks bud.....you to...look in the mirror> > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt....> > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom..> > > > mom- oh levi> > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there....> > > > christel> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook .com/profile. php?id=677063169> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2010 Report Share Posted June 26, 2010 Well, I would like to contribute to the good new thread as I am very proud to report that I received an unsolicited genuine hug from my 8 year old nephew who has autism and has, up until this very day, barely acknowledged me and has never looked me in the eyes. We had run into each other at the mall today, stopped to chit chat with his mom, and went off in seperate directions -a while later he spotted me in line at check out and ran up and hugged me and he MEANT it!! AND, he looked me right in the eye when he waved goodbye and his mother didn't even have to make him! lol. Man, somebody could've handed me a million bucks and it would've paled in comparison. He's awesome. I'm so proud of him.To: mb12 valtrex Sent: Sat, June 26, 2010 12:12:15 PMSubject: Re: Re: encouragement cristel, that made me cry. to only be able to have that experience one day. and i think i cried for believing that it IS possible, but also how hard it is right now. but i want to add to anyone who may read this and does need encouragement, that has beenright where ive been for two years. struggling thru this maze; fighting daily to find out whats wrong and how to fix it; battling to understand the diet; the supppliements/ meds; the emotion- to be where we are RIGHT NOW where my almost 4 year old is CONNECTING with us!!!! he is happy he is trying to play with his sister! where he doesnt hit his head incessantly anymore! where he is responding to requests and FINALLY immitating!! !! it is thrilling to FINALLY see success for him- only keeps my hope alive for more and more and hoping one day he can speak. thanks though crystal, for that story. please repeat that again one day. meghan t From: "hmwjohnson@ comcast.net" <hmwjohnsoncomcast (DOT) net>To: Mb12valtrex <mb12 valtrex@ yahoogroups. com>Sent: Fri, June 25, 2010 7:11:21 PMSubject: Re: Re: encouragement Carol. Can I ask what was the course of action your homeopath used to address maturity? Yours is the first I've heard about this. Many thanks. Heidi J Heidi J From: "Christel King" <christelking1@ myfairpoint. net> Sender: mb12 valtrex@ yahoogroups. com Date: Fri, 25 Jun 2010 19:01:39 -0400 To: <mb12 valtrex@ yahoogroups. com> ReplyTo: mb12 valtrex@ yahoogroups. com Subject: Re: Re: encouragement LDN and imuvovir are simliar working on immune system Th1 th2. we saw GREAT things with LDN, NO flares, UNLESS we missed a night, but it was the most stable he was. right now we have been trying prophatic antibiotics but i am ready to go back to LDN. Re: encouragement Beautiful conversation! My daughter, who recovered early on got "stuck" in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster.My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy.I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it?Carol>> our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others> > > > > ] conversations with my son> > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head> > > > levi- mom it's been along time- at least 5 months ago (bites into > pear)> > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that> > > > levi- yeah mom, that was bad> > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside> > > > levi- mom I was making bad choices then, I don't do that anymore> > > > mom- I know that. but can you tell me what you were thinking> > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to.> > > > mom- you didn't want to grow up then?> > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside> > > > mom- do you want to grow up now?> > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool....> > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man> > > > levi- man?? I'm only 7 right now mom> > > > mom- I know but someday you will be a man> > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom!> > > > mom- yes levi> > > > levi- I love you so very much....did you see i made you a heart on > the computer?> > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh....> > > > levi- mom you look silly> > > > mom- thanks bud.....you to...look in the mirror> > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt....> > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom..> > > > mom- oh levi> > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there....> > > > christel> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook .com/profile. php?id=677063169> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2010 Report Share Posted June 26, 2010 Yah! Love good news. Kids talking, showing affection.....great news!nancy j a child is diagnosed with asd every 20 secondsSubject: Re: Re: encouragementTo: mb12 valtrex Date: Saturday, June 26, 2010, 7:19 PM Well, I would like to contribute to the good new thread as I am very proud to report that I received an unsolicited genuine hug from my 8 year old nephew who has autism and has, up until this very day, barely acknowledged me and has never looked me in the eyes. We had run into each other at the mall today, stopped to chit chat with his mom, and went off in seperate directions -a while later he spotted me in line at check out and ran up and hugged me and he MEANT it!! AND, he looked me right in the eye when he waved goodbye and his mother didn't even have to make him! lol. Man, somebody could've handed me a million bucks and it would've paled in comparison. He's awesome. I'm so proud of him.From: First Namemeghan Tarantino <meghantarantino@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Sat, June 26, 2010 12:12:15 PMSubject: Re: Re: encouragement cristel, that made me cry. to only be able to have that experience one day. and i think i cried for believing that it IS possible, but also how hard it is right now. but i want to add to anyone who may read this and does need encouragement, that has beenright where ive been for two years. struggling thru this maze; fighting daily to find out whats wrong and how to fix it; battling to understand the diet; the supppliements/ meds; the emotion- to be where we are RIGHT NOW where my almost 4 year old is CONNECTING with us!!!! he is happy he is trying to play with his sister! where he doesnt hit his head incessantly anymore! where he is responding to requests and FINALLY immitating!! !! it is thrilling to FINALLY see success for him- only keeps my hope alive for more and more and hoping one day he can speak. thanks though crystal, for that story. please repeat that again one day. meghan t From: "hmwjohnson@ comcast.net" <hmwjohnsoncomcast (DOT) net>To: Mb12valtrex <mb12 valtrex@ yahoogroups. com>Sent: Fri, June 25, 2010 7:11:21 PMSubject: Re: Re: encouragement Carol. Can I ask what was the course of action your homeopath used to address maturity? Yours is the first I've heard about this. Many thanks. Heidi J Heidi J From: "Christel King" <christelking1@ myfairpoint. net> Sender: mb12 valtrex@ yahoogroups. com Date: Fri, 25 Jun 2010 19:01:39 -0400 To: <mb12 valtrex@ yahoogroups. com> ReplyTo: mb12 valtrex@ yahoogroups. com Subject: Re: Re: encouragement LDN and imuvovir are simliar working on immune system Th1 th2. we saw GREAT things with LDN, NO flares, UNLESS we missed a night, but it was the most stable he was. right now we have been trying prophatic antibiotics but i am ready to go back to LDN. Re: encouragement Beautiful conversation! My daughter, who recovered early on got "stuck" in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster.My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy.I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it?Carol>> our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others> > > > > ] conversations with my son> > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head> > > > levi- mom it's been along time- at least 5 months ago (bites into > pear)> > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that> > > > levi- yeah mom, that was bad> > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside> > > > levi- mom I was making bad choices then, I don't do that anymore> > > > mom- I know that. but can you tell me what you were thinking> > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to.> > > > mom- you didn't want to grow up then?> > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside> > > > mom- do you want to grow up now?> > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool....> > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man> > > > levi- man?? I'm only 7 right now mom> > > > mom- I know but someday you will be a man> > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom!> > > > mom- yes levi> > > > levi- I love you so very much....did you see i made you a heart on > the computer?> > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh....> > > > levi- mom you look silly> > > > mom- thanks bud.....you to...look in the mirror> > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt....> > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom..> > > > mom- oh levi> > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there....> > > > christel> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook .com/profile. php?id=677063169> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 I love that kind of news!! I love when it's working! Great news Tammy! laura Ps. YES...Free-ballin' worked!! Thanks!! Great advice! To: mb12 valtrex From: endofautism@...Date: Sat, 26 Jun 2010 20:44:07 -0700Subject: Re: Re: encouragement Yah! Love good news. Kids talking, showing affection.....great news!nancy j a child is diagnosed with asd every 20 secondsFrom: T Lynn <t.lynn28rocketmail>Subject: Re: Re: encouragementTo: mb12 valtrex Date: Saturday, June 26, 2010, 7:19 PM Well, I would like to contribute to the good new thread as I am very proud to report that I received an unsolicited genuine hug from my 8 year old nephew who has autism and has, up until this very day, barely acknowledged me and has never looked me in the eyes. We had run into each other at the mall today, stopped to chit chat with his mom, and went off in seperate directions -a while later he spotted me in line at check out and ran up and hugged me and he MEANT it!! AND, he looked me right in the eye when he waved goodbye and his mother didn't even have to make him! lol. Man, somebody could've handed me a million bucks and it would've paled in comparison. He's awesome. I'm so proud of him.From: First Namemeghan Tarantino <meghantarantino@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Sat, June 26, 2010 12:12:15 PMSubject: Re: Re: encouragement cristel, that made me cry. to only be able to have that experience one day. and i think i cried for believing that it IS possible, but also how hard it is right now. but i want to add to anyone who may read this and does need encouragement, that has beenright where ive been for two years. struggling thru this maze; fighting daily to find out whats wrong and how to fix it; battling to understand the diet; the supppliements/ meds; the emotion- to be where we are RIGHT NOW where my almost 4 year old is CONNECTING with us!!!! he is happy he is trying to play with his sister! where he doesnt hit his head incessantly anymore! where he is responding to requests and FINALLY immitating!! !! it is thrilling to FINALLY see success for him- only keeps my hope alive for more and more and hoping one day he can speak. thanks though crystal, for that story. please repeat that again one day. meghan t From: "hmwjohnson@ comcast.net" <hmwjohnsoncomcast (DOT) net>To: Mb12valtrex <mb12 valtrex@ yahoogroups. com>Sent: Fri, June 25, 2010 7:11:21 PMSubject: Re: Re: encouragement Carol. Can I ask what was the course of action your homeopath used to address maturity? Yours is the first I've heard about this. Many thanks. Heidi J Heidi J From: "Christel King" <christelking1@ myfairpoint. net> Sender: mb12 valtrex@ yahoogroups. com Date: Fri, 25 Jun 2010 19:01:39 -0400 To: <mb12 valtrex@ yahoogroups. com> ReplyTo: mb12 valtrex@ yahoogroups. com Subject: Re: Re: encouragement LDN and imuvovir are simliar working on immune system Th1 th2. we saw GREAT things with LDN, NO flares, UNLESS we missed a night, but it was the most stable he was. right now we have been trying prophatic antibiotics but i am ready to go back to LDN. Re: encouragement Beautiful conversation! My daughter, who recovered early on got "stuck" in her emotional growth - still calling me mommy at age 9 and wanting me to hold her like a baby. I worked with a good classical homeopath and focused on maturity. Right away she started talking about becoming a teenager one day, started calling me mom, and never again acted like a baby. Now she is 11 and new issues are coming up. I am extremely grateful for how well she is doing, but it's like being on an exteme roller coaster.My not-yet-recovered son went through a PANDAS stage a few months ago - developed tics, handwashing, etc. He got over the tics with TCM & homeopathy.I just got a prescription for Imunovir - I am hopeful for more gains and stability. Has anybody else tried it? Anything to share? Best place to buy it?Carol>> our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others> > > > > ] conversations with my son> > > > > > as you may know levi lost his dx in oct and this has been great and > I have been trying to gadge when it was ok to talk to him about his > past dx (after not even wanting to go back in time in my mind after > all that hard work) but to pick his brain on what he remembers. this > morning he fell and banged his head (not in a stim way but from me > trying to help him put his pants on in the RIGHT direction while > getting ready for school- windpants can be hard to tell) and as I was > doing dished tonight my mind floated back to what things were like > before, remembering 9/11 and how life differs now. so I sat down over > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > and green beans and a pear on the side to chat. > > > > mom- levi do you remember when you used to bang your head> > > > levi- mom it's been along time- at least 5 months ago (bites into > pear)> > > > mom- no levi not when you feel accidently out of bed, when you were > little, and autism had you trapped inside. do you remember that> > > > levi- yeah mom, that was bad> > > > mom- yeah levi it was. what was going on in your mind when that > would happen and how did you feel inside> > > > levi- mom I was making bad choices then, I don't do that anymore> > > > mom- I know that. but can you tell me what you were thinking> > > > levi- yeah mom, I was really little, down on the ground, crawling > on my hands (using motions while telling me all this) and knees. I > could just do that or go outside and play in the grass mom. but you > wanted me to grow up and I didn't want to.> > > > mom- you didn't want to grow up then?> > > > levi- no mom, i just wanted to be little and crawl on the ground > and be in the grass outside> > > > mom- do you want to grow up now?> > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > asturnaut, I'm going up in a spaceship and I will get to fly in the > air like space men. up high in a rocket mom, it's gonna be so cool....> > > > mom- with tears in my eyes realizing that now only has my son lost > autism, but he has gained hopes and dreams for a future that was > robbed of us before, while loosing things that hurt him and bound him > as a POW of autism, levi I am so proud of you, you are growing up to > be a wonderful young man> > > > levi- man?? I'm only 7 right now mom> > > > mom- I know but someday you will be a man> > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > full of that great coconut icecream and he now has a chocholate > beard. hey mom!> > > > mom- yes levi> > > > levi- I love you so very much....did you see i made you a heart on > the computer?> > > > I look over to see the heart he has made out of qubees, and squeeze > him and give him a HUGE kiss on the forehead, he again tells me loves > me and kisses me back with his lips (still covered in chocolate) > notices he has smeared me with it and we both laugh....> > > > levi- mom you look silly> > > > mom- thanks bud.....you to...look in the mirror> > > > levi- he looks in the mirror, and laughs and then rubs it on his > shirt....> > > > mom- levi!!! does your shirt look like a napkin? > > > > levi- yup....laughing again, sorry mom..> > > > mom- oh levi> > > > how I will take chocholate on his shirt verses fecal matter on the > carpet and celing.....thank you God for your faithfulness to see our > son in his misery, and us in pain watching him trapped by autism, and > helping us get him back. thank you for the chocholate on the shirt > and the conversation I got to have with him, for the ability for him > to tell me he loves me, and think of me and draw me pictures on the > computer.... .I pray you bless others on this board with the SAME > gift and hope to get there....> > > > christel> > > > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook .com/profile. php?id=677063169> >> The New Busy is not the old busy. 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Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Hi I worked with an experienced classical homeopath (who is retired now). We first tried pulsatilla and saw some gains in maturity, but she soon plateaued. Then we went to Baryta Carb., which I hadn't thought of because it is usually indicated for children with a low IQ and my daughter was at grade level academically except for writing. However, it can be for people who are just " stuck " at a stage of development (even a 40-year old man going through mid-life crisis), but can also have one area of weakness like my daughter and writing. Anyway, Baryta Carb. helped her so much. She has a more mature attitude, better focus and attention, converses in a more grown-up way, and is interested in grown-up movies and topics. We started with 30c, then later went to 200c, then later 1M. I have been studying homeopathy & have experience with it. It is best to go to an experienced homeopath. Carol > > > > our son I think is going through a PANDAS flare starting 3 days ago and I am going through such discouragement and my mom sent this to me this morning, something I had posted many years ago. I have drawn strength from it today and hope it can help others > > > > > > > > > > ] conversations with my son > > > > > > > > > as you may know levi lost his dx in oct and this has been great and > > I have been trying to gadge when it was ok to talk to him about his > > past dx (after not even wanting to go back in time in my mind after > > all that hard work) but to pick his brain on what he remembers. this > > morning he fell and banged his head (not in a stim way but from me > > trying to help him put his pants on in the RIGHT direction while > > getting ready for school- windpants can be hard to tell) and as I was > > doing dished tonight my mind floated back to what things were like > > before, remembering 9/11 and how life differs now. so I sat down over > > chocholate gfcfsf ice cream, rice wraps with chicken and cucumbers > > and green beans and a pear on the side to chat. > > > > > > mom- levi do you remember when you used to bang your head > > > > > > levi- mom it's been along time- at least 5 months ago (bites into > > pear) > > > > > > mom- no levi not when you feel accidently out of bed, when you were > > little, and autism had you trapped inside. do you remember that > > > > > > levi- yeah mom, that was bad > > > > > > mom- yeah levi it was. what was going on in your mind when that > > would happen and how did you feel inside > > > > > > levi- mom I was making bad choices then, I don't do that anymore > > > > > > mom- I know that. but can you tell me what you were thinking > > > > > > levi- yeah mom, I was really little, down on the ground, crawling > > on my hands (using motions while telling me all this) and knees. I > > could just do that or go outside and play in the grass mom. but you > > wanted me to grow up and I didn't want to. > > > > > > mom- you didn't want to grow up then? > > > > > > levi- no mom, i just wanted to be little and crawl on the ground > > and be in the grass outside > > > > > > mom- do you want to grow up now? > > > > > > levi- yup, I want to go to the moon someday mom, I'm gonna be an > > asturnaut, I'm going up in a spaceship and I will get to fly in the > > air like space men. up high in a rocket mom, it's gonna be so cool.... > > > > > > mom- with tears in my eyes realizing that now only has my son lost > > autism, but he has gained hopes and dreams for a future that was > > robbed of us before, while loosing things that hurt him and bound him > > as a POW of autism, levi I am so proud of you, you are growing up to > > be a wonderful young man > > > > > > levi- man?? I'm only 7 right now mom > > > > > > mom- I know but someday you will be a man > > > > > > levi- yup (deep in thought) a SPACE man!! a large pause for a mouth > > full of that great coconut icecream and he now has a chocholate > > beard. hey mom! > > > > > > mom- yes levi > > > > > > levi- I love you so very much....did you see i made you a heart on > > the computer? > > > > > > I look over to see the heart he has made out of qubees, and squeeze > > him and give him a HUGE kiss on the forehead, he again tells me loves > > me and kisses me back with his lips (still covered in chocolate) > > notices he has smeared me with it and we both laugh.... > > > > > > levi- mom you look silly > > > > > > mom- thanks bud.....you to...look in the mirror > > > > > > levi- he looks in the mirror, and laughs and then rubs it on his > > shirt.... > > > > > > mom- levi!!! does your shirt look like a napkin? > > > > > > levi- yup....laughing again, sorry mom.. > > > > > > mom- oh levi > > > > > > how I will take chocholate on his shirt verses fecal matter on the > > carpet and celing.....thank you God for your faithfulness to see our > > son in his misery, and us in pain watching him trapped by autism, and > > helping us get him back. thank you for the chocholate on the shirt > > and the conversation I got to have with him, for the ability for him > > to tell me he loves me, and think of me and draw me pictures on the > > computer.... .I pray you bless others on this board with the SAME > > gift and hope to get there.... > > > > > > christel > > > > > > Recovering from Autism is a marathon > > > NOT a sprint, but FULLY possible! > > > Read more about it on my BLOGs at > > > http://www.myspace. com/christelking > > > http://foggyrock. com/MyPage/ recoveringwishes > > > http://www.facebook .com/profile. php?id=677063169 > > > > > > Quote Link to comment Share on other sites More sharing options...
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