weight loss

[Guest guest]

I am losing weight rapidly....about 3 lbs a week. Cannot stop even

though I'm eating more than I used to because I live with constant

spasms. Every breath I take is impacted by muscle spasms. Add to

this dramatic mood swings--which at times means I skip meals and

meds. My doctor doesn't realize the gravity of my situation because

he is self educating on mito disease. I have actually asked for a

stomach pump and worried that I am going to die and no one will take

me seriously.I spasm constantly.

Please, any advice is welcome.

[Guest guest]

I'm going to try to get into Cleveland or UVA asap I'm going to talk

to my general practitioner who knows nothing but will help as he can

to get me to the best place to go. deafness dystonia is considered

one of the mitochondrial diseases but for some reason is a bit

different and I've been told the UVA guys are the best with this

one. We shall see.

Thank you

> >

> > I am losing weight rapidly....about 3 lbs a week. Cannot stop

even

> > though I'm eating more than I used to because I live with

constant

> > spasms. Every breath I take is impacted by muscle spasms. Add to

> > this dramatic mood swings--which at times means I skip meals and

> > meds. My doctor doesn't realize the gravity of my situation

because

> > he is self educating on mito disease. I have actually asked for

a

> > stomach pump and worried that I am going to die and no one will

take

> > me seriously.I spasm constantly.

> >

> > Please, any advice is welcome.

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

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> >

> >