Strep/PANDAS/Tonsillectomy

June 16, 2010

Hi Caryn:

I just came from a doctor’s visit where we talked about

this very topic. Some docs are starting to believe that you can’t

get rid of the strep low grade infection unless you remove the tonsils. There

is a psychiatrist in TX who is actually having success in treating PANDAS this

was. However, you have to know where the strep is hiding. My son’s

is in his gut and while gamma or alpha strep in the gut do not cause strep

throat, it doesn’t mean that his immune system is backing off. His strep

titers are still high, even on antibiotics daily. We just changed to

Biaxin, 500mg per day. What do you consider a high dose and how long

before you beat it?

Heidi J

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Caryn_Reid

Sent: Wednesday, June 16, 2010 4:27 PM

Subject: Re: Strep/PANDAS/Tonsillectomy

I don't believe in most things autoimmune are a

response to a previous infection. The idea that your immune system is sure that

there is an infection in your body, but the dr claims that there is not, but

that your immunce system is mistaken does not fly with me. I believe that the

infection is still there and that is why the immune system is reacting.

We have not eliminated strep or PANDAS behaviors in my son yet, but I have

eliminate several other autoimmune diseases in myself and my husband with long

term, high dose antibiotic therapy.

Caryn

>

> tonsils how ever can HOUSE a cronic infection, so if that is where they

are hybranating it can be helpful to get rid of them. IF You have them out have

them tested after

>

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