Re: Our visit to the neurosurgeon - Xray vs CT

[Guest guest]

Jocelyn,

The only way to get a true diagnoses for cranio is a CT Scan. If

they sutures are VERY visably open through an x-ray, that is

normally all they will do. had 3-D X-rays done in order to

rule it out and that was enough for the craniofacial surgeon to rule

cranio out and write an rx for the DOCBand. Good luck!

I'm wondering if it would be worth your wild to just go ahead and

see Dr. Hobar at Childrens in Dallas for the dx and rx since you

will be using the Dallas CTI? What do you think?

Dustie

>

> > Jocelyn,

> >

> > Are you saying that neither your primary ped nor this neurosurg

> > ordered xrays yet to rule out craniosynostosis? I wish you much

> > better luck with Dr. Aronin.

> >

> > Sue

> > Colin F. 10 mos.

> > STARband 6/29

> > Buffalo, NY

> >

> > --- In Plagiocephaly , Jocelyn <jocelynrm@e...>

wrote:

> > > Well, we went to visit Dr. J. . He " never

recommends

> > the

> > > band. " Because humans are assymetrical. He said the only

study

> > ever

> > > done comparing banded to repo'ed babies showed that the

outcomes

> > were

> > > the same. He said that someone named Moss (same guy

> > that " invented " the

> > > band) did the study.

> > >

> > > So...I don't think we'll be getting an RX from that guy.

> > >

> > > I think we WILL get to CT to rule out craniosyntosis. But,

we're

> > gonna

> > > get a second opinion and keep our appt. with the other

neurosurgeon

> > > ( Aronin).

> > >

> > > Onward....

> > >

> > > Jocelyn

> >

> >

> >

> > For more plagio info