Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Oh Jolie, I am so sorry to hear this. I can't offer any advice except to be there for her.Hugs to you and your friend,ShirleyJolie wrote: Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 I will keep Melody and her baby in my prayers. Hugs nne Oh Jolie, I am so sorry to hear this. I can't offer any advice except to be there for her.Hugs to you and your friend,ShirleyJolie wrote: Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie -- Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 http://www.livingwithtrisomy13.org/ Send her this beautiful link, please ASAP!ok? blessings, Kate : ( Got some bad newsTo: MSersLife > Hi everyone. My friend Melody found out about a week ago that > her baby is a boy. We were so happy, she named him > . After that ultrasound the doctors told her they noticed > some things and she need to have an amniocentisis (sp?) She had > that done and got the results of the test and they say her baby > has trisomy 13, a genetic disorder. The docs are saying she > should terminate her pregnancy. She's already 6 mos. along. I > don't know what to do to help her cope. She doesn't want to > terminate her pregnancy, the doctor told her it's her only > option. If anyone has any advice for me so I can comfort her, I > would appreciate it. Jolie> > Please visit: http://www.bicycleman.comawesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Thanks, everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Jolie, I am so sorry to hear about your friend and her baby. I guess the only advice I can give is just to be there and support whatever decision she makes. She is going to need you no matter what she decides. Take Care Hugs, :)Jolie wrote: Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Peace, Love and Hugs, D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 I don't know what to say except my heart goes out to her. I remember when I was pregnant, they said I had a 33% chance that Robbin would have downs syndrome, they also recommended "termination", especially since there is CF in his genetics (Rob's brother passed from it and his sister is living with it) I told them no way, that if God saw fit for my child to have either (or both) that was good enough for me, I would take my chances. And I am glad I did, but downs is not a "terrible" disease, and both our n and my SIL have proved that it is possible to live a long, full life with CF. I don't know anything about trisomy13, and whereas that website (recommended by both Kate and n) is uplifting, I still didn't find a description of what it IS. I will add your friend, and their unborn, to my prayers. Akiba -- Re: : ( Got some bad news Jolie, I am so sorry to hear about your friend and her baby. I guess the only advice I can give is just to be there and support whatever decision she makes. She is going to need you no matter what she decides. Take Care Hugs, :)Jolie <osoosa2000> wrote: Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Peace, Love and Hugs, D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 prayers for all of them Re: : ( Got some bad news Jolie, I am so sorry to hear about your friend and her baby. I guess the only advice I can give is just to be there and support whatever decision she makes. She is going to need you no matter what she decides. Take Care Hugs, :)Jolie <osoosa2000> wrote: Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need t! o have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Peace, Love and Hugs, D. No virus found in this incoming message.Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1488 - Release Date: 6/6/2008 5:48 PM No virus found in this outgoing message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1488 - Release Date: 6/6/2008 5:48 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 {{{{{{{{Jolie}}}}}}}} My prayers will certainly be with all of you. It is not her only option. I find her doctor's push and statement disgusting. While the doctor should give information, they should not push as this one is. This is going to be a difficult time for your friend and her family and I pray they each find peace. There are sites and Yahoo Groups for Trisomy 13 or Patau Syndrome. Perhaps your friend would be able to join one of the online support groups or even find one locally? Recently, a woman on another list had found her child would not live past the first day after birth. Termination was suggested and she and her husband opted against it, knowing what would come. And it did. It was a very painful experience, though one they would opt for time and again over terminating the pregnancy. The child had life and they shared those hours with their child, holding her, until she passed from this life to the next. A couple quick searches turned these up, if it helps at all... I like the title of this site... LIVING with Trisomy 13. There are not only links to sections on children and adults with Trisomy 13, but specific links to those considering termination/abortion... and I'm including something from that page below... http://www.livingwithtrisomy13.org/ Over the years I've received many emails from women who aborted their Trisomy 13 children. They were amazed and completely surprised that their child could have survived! Or at least grown to a point where they could reach their mothers arms. These women were given NO HOPE that their child would make it to term. They felt they had no option but to terminate with all the pressures around them. These women fall into a unique category, those who felt "pressured to interrupt their pregnancy for medical reasons." These parents have come to the realization that it was not the trisomy 13 that took their child¢s life but it was the termination that ended their child¢s life. A hard place to be, accept and understand, but also the road to their healing and forgiveness. There is an increased awareness with the unspoken shame and pain of abortion. Many women after the procedure wish they could bring their child back. They wish they could change their choice to terminate their child¢s life. We appreciate the courage these women show in sharing their experiences, allowing others to understand the never ending sadness and pain termination for any reason brings. ~ ThereseAnn Read the stories these women share about the pain and regret they have been left with after taking the advice to terminate after a Trisomy 13 diagnosis. These women are also available to you for immediate phone support. Laurie-Beth (CA California)Cara (NC North Carolina) (WA Washington) After experiencing the effects of an abortion with a previous pregnancy, these women share their experiences with carrying to term a child with Patau Syndrome - Trisomy 13.Debbie Joslin (AK Alaska)beth Slotkin (FL Florida) Click here to share your regret story Again... shame on her doctor! Here's another site, a non-profit support organization... http://www.trisomy.org/index.php There are many more listed on the Goggle search I did. And in Yahoo Groups, I see many listings both specific to and including Trisomy 13. This must be very hard for you, as well, as a friend and caring woman. I'm very sorry any of you are going through this. With love and hugs, Challis : ( Got some bad news Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 I see you have already gotten some really good responses. I am angry with that doctor! How dare he say it's her only option! Shame on him. Sharonhttp://health.groups.yahoo.com/group/MSersHEALTH/This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. : ( Got some bad news Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 I completely agree with Challis. I just don't understand how soem doctors can put on so much pressure to choose what they want done. Her child could survive. It may not, but she'll never never know, if she terminates. That would be a hard "what if" to live with for me. I am praying for her, and you. hugs, TristaSmyelin groovy wrote: {{{{{{{{Jolie}}}}}}}} My prayers will certainly be with all of you. It is not her only option. I find her doctor's push and statement disgusting. While the doctor should give information, they should not push as this one is. This is going to be a difficult time for your friend and her family and I pray they each find peace. There are sites and Yahoo Groups for Trisomy 13 or Patau Syndrome. Perhaps your friend would be able to join one of the online support groups or even find one locally? Recently, a woman on another list had found her child would not live past the first day after birth. Termination was suggested and she and her husband opted against it, knowing what would come. And it did. It was a very painful experience, though one they would opt for time and again over terminating the pregnancy. The child had life and they shared those hours with their child, holding her, until she passed from this life to the next. A couple quick searches turned these up, if it helps at all... I like the title of this site... LIVING with Trisomy 13. There are not only links to sections on children and adults with Trisomy 13, but specific links to those considering termination/abortion... and I'm including something from that page below... http://www.livingwithtrisomy13.org/ Over the years I've received many emails from women who aborted their Trisomy 13 children. They were amazed and completely surprised that their child could have survived! Or at least grown to a point where they could reach their mothers arms. These women were given NO HOPE that their child would make it to term. They felt they had no option but to terminate with all the pressures around them. These women fall into a unique category, those who felt "pressured to interrupt their pregnancy for medical reasons." These parents have come to the realization that it was not the trisomy 13 that took their child¢s life but it was the termination that ended their child¢s life. A hard place to be, accept and understand, but also the road to their healing and forgiveness. There is an increased awareness with the unspoken shame and pain of abortion. Many women after the procedure wish they could bring their child back. They wish they could change their choice to terminate their child¢s life. We appreciate the courage these women show in sharing their experiences, allowing others to understand the never ending sadness and pain termination for any reason brings. ~ ThereseAnn Read the stories these women share about the pain and regret they have been left with after taking the advice to terminate after a Trisomy 13 diagnosis. These women are also available to you for immediate phone support. Laurie-Beth (CA California)Cara (NC North Carolina) (WA Washington) After experiencing the effects of an abortion with a previous pregnancy, these women share their experiences with carrying to term a child with Patau Syndrome - Trisomy 13.Debbie Joslin (AK Alaska)beth Slotkin (FL Florida) Click here to share your regret story Again... shame on her doctor! Here's another site, a non-profit support organization... http://www.trisomy.org/index.php There are many more listed on the Goggle search I did. And in Yahoo Groups, I see many listings both specific to and including Trisomy 13. This must be very hard for you, as well, as a friend and caring woman. I'm very sorry any of you are going through this. With love and hugs, Challis : ( Got some bad news Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Blessings, Trista Christians who stand strong are like flowers; the more you crush them, the stronger the fragrance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Aww, I like that outlook, Akiba, and am so glad you have it and shared it! ) Love & Hugs, Challis Re: : ( Got some bad news Jolie, I am so sorry to hear about your friend and her baby. I guess the only advice I can give is just to be there and support whatever decision she makes. She is going to need you no matter what she decides. Take Care Hugs, :)Jolie <osoosa2000yahoo (DOT) com> wrote: Hi everyone. My friend Melody found out about a week ago that her baby is a boy. We were so happy, she named him . After that ultrasound the doctors told her they noticed some things and she need to have an amniocentisis (sp?) She had that done and got the results of the test and they say her baby has trisomy 13, a genetic disorder. The docs are saying she should terminate her pregnancy. She's already 6 mos. along. I don't know what to do to help her cope. She doesn't want to terminate her pregnancy, the doctor told her it's her only option. If anyone has any advice for me so I can comfort her, I would appreciate it. Jolie Peace, Love and Hugs, D. Quote Link to comment Share on other sites More sharing options...
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