Re: Exactly when is chat night

[Guest guest]

i think i read that. Are you working, studying?

>

> I have charge syndrome...

> Re: Exactly when is chat night

> > > > > > >

> > > > > > > >

> > > > > > > > I live in Melbourne and Ballarat (In ). I haven't been

> > > very

> > > > > > > > active for awhile or even had the chance to read many messages

> > > (too

> > > > > > > > much work) but i'm back now

> > > > > > > >

> > > > > > > >

> > > > > > > > Family Options sister to Trinity (13) with congenital

> > > cytomegalovirus,

> > > > > > > > severe CP, profound hearing loss, severe intellectual

> disability.

> > > > > > > > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > > > > > > > Carer to lots of children with various disabilities and

> medical

> > > > > > > > problems, each with their own fantastic personality

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Membership of this email support groups does not constitute

> > > membership

> > > > > in

> > > > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > > > For information about the CHARGE Syndrome

> > > > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > > > please contact marion@... or visit

> > > > > > > > the web site at http://www.chargesyndrome.org. For CHARGE

> Syndrome

> > > > > Canada

> > > > > > > information and membership, please visit

> > > http://www.chargesyndrome.ca,

> > > > > or

> > > > > > > email info@....

> > > > > > > > 7th International

> > > > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24,

> > > 2005.

> > > > > > > Information will be available at www.chargesyndrome.org or by

> > > calling

> > > > > > > 1-.

> > > > > > > >

[Guest guest]

Yeah i study criminal justice and psychology at vic uni

Re: Exactly when is chat night

> > > > > > > >

> > > > > > > > >

> > > > > > > > > I live in Melbourne and Ballarat (In ). I haven't

been

> > > > very

> > > > > > > > > active for awhile or even had the chance to read many

messages

> > > > (too

> > > > > > > > > much work) but i'm back now

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > Family Options sister to Trinity (13) with congenital

> > > > cytomegalovirus,

> > > > > > > > > severe CP, profound hearing loss, severe intellectual

> > disability.

> > > > > > > > > Carer/niece to Ruth (40) who has Down Syndrome and

epilepsy

> > > > > > > > > Carer to lots of children with various disabilities and

> > medical

> > > > > > > > > problems, each with their own fantastic personality

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > Membership of this email support groups does not

constitute

> > > > membership

> > > > > > in

> > > > > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > > > > For information about the CHARGE Syndrome

> > > > > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > > > > please contact marion@... or visit

> > > > > > > > > the web site at http://www.chargesyndrome.org. For CHARGE

> > Syndrome

> > > > > > Canada

> > > > > > > > information and membership, please visit

> > > > http://www.chargesyndrome.ca,

> > > > > > or

> > > > > > > > email info@....

> > > > > > > > > 7th International

> > > > > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July

22-24,

> > > > 2005.

> > > > > > > > Information will be available at www.chargesyndrome.org or

by

> > > > calling

> > > > > > > > 1-.

> > > > > > > > >

[Guest guest]

hey em im sydney you know charge is interesting and fun lol

>

> Yeah i study criminal justice and psychology at vic uni

> Re: Exactly when is chat night

> > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > I live in Melbourne and Ballarat (In ). I haven't

> been

> > > > > very

> > > > > > > > > > active for awhile or even had the chance to read many

> messages

> > > > > (too

> > > > > > > > > > much work) but i'm back now

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Family Options sister to Trinity (13) with congenital

> > > > > cytomegalovirus,

> > > > > > > > > > severe CP, profound hearing loss, severe intellectual

> > > disability.

> > > > > > > > > > Carer/niece to Ruth (40) who has Down Syndrome and

> epilepsy

> > > > > > > > > > Carer to lots of children with various disabilities and

> > > medical

> > > > > > > > > > problems, each with their own fantastic personality

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Membership of this email support groups does not

> constitute

> > > > > membership

> > > > > > > in

> > > > > > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > > > > > For information about the CHARGE Syndrome

> > > > > > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > > > > > please contact marion@... or visit

> > > > > > > > > > the web site at http://www.chargesyndrome.org. For CHARGE

> > > Syndrome

> > > > > > > Canada

> > > > > > > > > information and membership, please visit

> > > > > http://www.chargesyndrome.ca,

> > > > > > > or

> > > > > > > > > email info@....

> > > > > > > > > > 7th International

> > > > > > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July

> 22-24,

> > > > > 2005.

> > > > > > > > > Information will be available at www.chargesyndrome.org or

> by

> > > > > calling

> > > > > > > > > 1-.

> > > > > > > > > >

[Guest guest]

Yes charge is interesting... but no its not fun.

I hate the behavioural crap and being treated

like everyone is afraid of me. If i dont use my

white cane everyone thinks im drunk. I dont have

the best balance cause I have scoliosis and

ostioperosis. I can see well enoug that i dont

really need my cane durring the day unless im

walking beside someone who walks quickly.

I dont like to use my white cane durring the day

but most people i work with and most of the

parents at the kids centre mostly know i use a

cane.

It has been funny that a couple moms were

bothered by that im visualy impared and hearing

impared and cancled their membership, but they

were just idiots anyways. I didnt take it

personaly. I gotta work right!

Chantelle

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Chantelle-

That's crazy that people would be afraid of your vision and hearing

impairment. I don't really get that, but then, there are lots of things

about this world that I don't get. There must be a lot of anger and

frustration involved in handling others' misconceptions about you. I

can't imagine living with that on a daily basis. Stay strong,

girlfriend! And thanks for sharing the " not fun " side of CHARGE. It's

important for us to understand all of it -- the good and the bad.

Michele W

Aubrie's mom

Chantelle McLaren wrote:

>

> Yes charge is interesting... but no its not fun.

> I hate the behavioural crap and being treated

> like everyone is afraid of me. If i dont use my

> white cane everyone thinks im drunk. I dont have

> the best balance cause I have scoliosis and

> ostioperosis. I can see well enoug that i dont

> really need my cane durring the day unless im

> walking beside someone who walks quickly.

>

> I dont like to use my white cane durring the day

> but most people i work with and most of the

> parents at the kids centre mostly know i use a

> cane.

>

> It has been funny that a couple moms were

> bothered by that im visualy impared and hearing

> impared and cancled their membership, but they

> were just idiots anyways. I didnt take it

> personaly. I gotta work right!

>

> Chantelle

>

> Overheard in the office of the food and drug administration: If

> laughter is the best medicin, shouldnt we be regulating it?

>

>

> ______________________________________________________________________

> Post your free ad now! http://personals.yahoo.ca

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> Canada information and membership, please visit

> http://www.chargesyndrome.ca, or email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at www.chargesyndrome.org or by calling

> 1-.

>

>

> ------------------------------------------------------------------------

> *

[Guest guest]

Chantelle, where do you work that people cancelled their memberships cause

you had charge? that's the most absurd thing i've ever heard... people are

really dumb sometimes!

Cole

>

>

> Yes charge is interesting... but no its not fun.

> I hate the behavioural crap and being treated

> like everyone is afraid of me. If i dont use my

> white cane everyone thinks im drunk. I dont have

> the best balance cause I have scoliosis and

> ostioperosis. I can see well enoug that i dont

> really need my cane durring the day unless im

> walking beside someone who walks quickly.

>

> I dont like to use my white cane durring the day

> but most people i work with and most of the

> parents at the kids centre mostly know i use a

> cane.

>

> It has been funny that a couple moms were

> bothered by that im visualy impared and hearing

> impared and cancled their membership, but they

> were just idiots anyways. I didnt take it

> personaly. I gotta work right!

>

> Chantelle

>

> Overheard in the office of the food and drug administration: If laughter

> is the best medicin, shouldnt we be regulating it?

>

>

> ______________________________________________________________________

> Post your free ad now! http://personals.yahoo.ca

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca, or

> email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at

www.chargesyndrome.org<http://www.chargesyndrome.org/>or by calling

1-.

>

>

> ------------------------------

> *

[Guest guest]

noone cancled their membership because i had

charge, its because im deafblind and i work at a

baby sitting centre attached to a fitness centre.

Chantelle

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

oh... that's just as bad

>

> noone cancled their membership because i had

> charge, its because im deafblind and i work at a

> baby sitting centre attached to a fitness centre.

>

>

> Chantelle

>

> Overheard in the office of the food and drug administration: If laughter

> is the best medicin, shouldnt we be regulating it?

>

>

> ______________________________________________________________________

> Post your free ad now! http://personals.yahoo.ca

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca, or

> email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at

www.chargesyndrome.org<http://www.chargesyndrome.org/>or by calling

1-.

>

>

> ------------------------------

> *

[Guest guest]

yah but thats their problem. It would be bad if i

got fired cause of it. I think thats what happend

at macdonalds and Tammy's place.

Chantelle.

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca