Re: Exactly when is chat night

[Guest guest]

Hey everyone I thought chat was last night and Wednesday? Also we got good

news when Sara went to the doctor last week she had 2nd degree kidney reflux

she had the VCUG the same day she went to doctor and it said the reflux

resolved itself with antibotics we are so happy cause they were going to do

surgery

if not thank god well take care all The

Snows ton SC

[Guest guest]

Well in South Carolina it is 9:21am Sunday

[Guest guest]

its supposed to be wednesday and saturdays, you

are right about chat night. Only problem is the

yahoo chat page dosnt work most of the time and

if it does work, it spews people out for no

reason.

You have to be patient, Belinda is working on it

when she gets a chance.

Chantelle

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Just wondering, what time is it whereever you are? I'm in Australia

and it is 11pm Sunday night.

I think America is around 15hours earlier

Family Options sister to Trinity (13) with congenital cytomegalovirus,

severe CP, profound hearing loss, severe intellectual disability.

Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

Carer to lots of children with various disabilities and medical

problems, each with their own fantastic personality

[Guest guest]

well on wednesday cause of when i work it starts

9:30 pm and lasts till maby 11pm Toronto/NYC time

so thats eastern daylight/standard time.

Saturdays it would be as early as 7pm my time and

ends whenever the last person leaves (could be

the next morning, lol!)

However as i just mentioned in the previous post,

we have to wait patiently for Belinda. She is

very busy these days and dosnt have time to get

the chat room up. I would have prefered to do the

chat room but belinda knows more then i do so she

is doing it.

Chantelle

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Thankyou. COmputers can be very frustrating if they aren't doing what

you want. I have tried another group chat room and it seemed to be

having the same probs.

[Guest guest]

That must be towards the west coast?

Thankyou

>

> Well in South Carolina it is 9:21am Sunday

>

>

>

[Guest guest]

Thats the same time here. South carolina and

Ontario canada are the xsame.

Chantelle

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Hey Em.. where in Oz are you... from Oz

> Just wondering, what time is it whereever you are? I'm in Australia

> and it is 11pm Sunday night.

> I think America is around 15hours earlier

>

>

> Family Options sister to Trinity (13) with congenital cytomegalovirus,

> severe CP, profound hearing loss, severe intellectual disability.

> Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> Carer to lots of children with various disabilities and medical

> problems, each with their own fantastic personality

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca, or

> email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at www.chargesyndrome.org or by calling

> 1-.

>

[Guest guest]

lol, no south carolina is on the eastern seaboard

actualy.

Chantelle

Overheard in the office of the food and drug administration: If laughter is the

best medicin, shouldnt we be regulating it?

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Thanks, the times must be as different as i though

>

> lol, no south carolina is on the eastern seaboard

> actualy.

>

>

> Chantelle

>

> Overheard in the office of the food and drug administration: If laughter is

the best medicin, shouldnt we be regulating it?

>

> ______________________________________________________________________

> Post your free ad now! http://personals.yahoo.ca

>

>

> Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or email

info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at www.chargesyndrome.org or by calling

1-.

>

[Guest guest]

That's the best news!

Bonnie

[Guest guest]

emily an aussie where r u ive seen u on here i think but never relised

ur oz im sydney

>

> That's the best news!

>

> Bonnie

>

>

>

[Guest guest]

I live in Melbourne and Ballarat (In ). I haven't been very

active for awhile or even had the chance to read many messages (too

much work) but i'm back now

Family Options sister to Trinity (13) with congenital cytomegalovirus,

severe CP, profound hearing loss, severe intellectual disability.

Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

Carer to lots of children with various disabilities and medical

problems, each with their own fantastic personality

[Guest guest]

cool nice to know you im a nineteen ;year old charger im in the mild

to moderate stage of it i have many tummy problems hearing loss and

vision imparemtns and growth trouble hope to talk often as we r in aus

nice to know more aussies as we al so cose anyway

>

> I live in Melbourne and Ballarat (In ). I haven't been very

> active for awhile or even had the chance to read many messages (too

> much work) but i'm back now

>

>

> Family Options sister to Trinity (13) with congenital cytomegalovirus,

> severe CP, profound hearing loss, severe intellectual disability.

> Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> Carer to lots of children with various disabilities and medical

> problems, each with their own fantastic personality

>

>

> Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or email

info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at www.chargesyndrome.org or by calling

1-.

>

[Guest guest]

That would be great, it is good having someone on the same times as

me!!! I'm 20, 21 in June which is a bit scary. I work with a boy who

has more severe CHARGE, he has complete hearing loss, bowel problems,

behavioural problems, intellectual disability, they think maybe Autism

too.

Family Options sister to Trinity (13) with congenital cytomegalovirus,

severe CP, profound hearing loss, severe intellectual disability.

Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

Carer to lots of children with various disabilities and medical

problems, each with their own fantastic personality

[Guest guest]

june im 20 on the 28th of jjune when are you we c ould be almost twins

lol if you have msn and want to chat to me im ellenhowe@...

>

> That would be great, it is good having someone on the same times as

> me!!! I'm 20, 21 in June which is a bit scary. I work with a boy who

> has more severe CHARGE, he has complete hearing loss, bowel problems,

> behavioural problems, intellectual disability, they think maybe Autism

> too.

>

>

> Family Options sister to Trinity (13) with congenital cytomegalovirus,

> severe CP, profound hearing loss, severe intellectual disability.

> Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> Carer to lots of children with various disabilities and medical

> problems, each with their own fantastic personality

>

>

> Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or email

info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at www.chargesyndrome.org or by calling

1-.

>

[Guest guest]

Hey , i live in Melbourne to,

Belinda

21 yr CHARGEr

Re: Exactly when is chat night

>

> I live in Melbourne and Ballarat (In ). I haven't been very

> active for awhile or even had the chance to read many messages (too

> much work) but i'm back now

>

>

> Family Options sister to Trinity (13) with congenital cytomegalovirus,

> severe CP, profound hearing loss, severe intellectual disability.

> Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> Carer to lots of children with various disabilities and medical

> problems, each with their own fantastic personality

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or

email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at www.chargesyndrome.org or by calling

1-.

>

[Guest guest]

Where abouts in Melb if you don't mind. I'm in Preston, originally

from Ballarat (about an hour and half away)

I think this group has the most people in Aust that I've seen so far

: )

>

> Hey , i live in Melbourne to,

> Belinda

> 21 yr CHARGEr

> Re: Exactly when is chat night

>

> >

> > I live in Melbourne and Ballarat (In ). I haven't been very

> > active for awhile or even had the chance to read many messages (too

> > much work) but i'm back now

> >

> >

> > Family Options sister to Trinity (13) with congenital cytomegalovirus,

> > severe CP, profound hearing loss, severe intellectual disability.

> > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > Carer to lots of children with various disabilities and medical

> > problems, each with their own fantastic personality

> >

> >

> >

> > Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca, or

> email info@....

> > 7th International

> > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at www.chargesyndrome.org or by calling

> 1-.

> >

[Guest guest]

Hey Em, nah i havent lived in Ballarat, been there a fair bit though, my

friend use to live there for a few years with her (now ex) boyfriend.

do u have a child with charge?

Re: Exactly when is chat night

> > > >

> > > > >

> > > > > I live in Melbourne and Ballarat (In ). I haven't been

very

> > > > > active for awhile or even had the chance to read many messages

(too

> > > > > much work) but i'm back now

> > > > >

> > > > >

> > > > > Family Options sister to Trinity (13) with congenital

cytomegalovirus,

> > > > > severe CP, profound hearing loss, severe intellectual disability.

> > > > > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > > > > Carer to lots of children with various disabilities and medical

> > > > > problems, each with their own fantastic personality

> > > > >

> > > > >

> > > > >

> > > > > Membership of this email support groups does not constitute

membership

> > in

> > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > For information about the CHARGE Syndrome

> > > > > Foundation or to become a member (and get the newsletter),

> > > > > please contact marion@... or visit

> > > > > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> > Canada

> > > > information and membership, please visit

http://www.chargesyndrome.ca,

> > or

> > > > email info@....

> > > > > 7th International

> > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24,

2005.

> > > > Information will be available at www.chargesyndrome.org or by

calling

> > > > 1-.

> > > > >

[Guest guest]

oooh i just read this, im 21 and 22 in May hehe

Re: Exactly when is chat night

>

> That would be great, it is good having someone on the same times as

> me!!! I'm 20, 21 in June which is a bit scary. I work with a boy who

> has more severe CHARGE, he has complete hearing loss, bowel problems,

> behavioural problems, intellectual disability, they think maybe Autism

> too.

>

>

> Family Options sister to Trinity (13) with congenital cytomegalovirus,

> severe CP, profound hearing loss, severe intellectual disability.

> Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> Carer to lots of children with various disabilities and medical

> problems, each with their own fantastic personality

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or

email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at www.chargesyndrome.org or by calling

1-.

>

[Guest guest]

No, i work with a boy in ballarat with CHARGE and an adult in Melb with it.

U?

>

> Hey Em, nah i havent lived in Ballarat, been there a fair bit though, my

> friend use to live there for a few years with her (now ex) boyfriend.

>

> do u have a child with charge?

> Re: Exactly when is chat night

> > > > >

> > > > > >

> > > > > > I live in Melbourne and Ballarat (In ). I haven't been

> very

> > > > > > active for awhile or even had the chance to read many messages

> (too

> > > > > > much work) but i'm back now

> > > > > >

> > > > > >

> > > > > > Family Options sister to Trinity (13) with congenital

> cytomegalovirus,

> > > > > > severe CP, profound hearing loss, severe intellectual disability.

> > > > > > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > > > > > Carer to lots of children with various disabilities and medical

> > > > > > problems, each with their own fantastic personality

> > > > > >

> > > > > >

> > > > > >

> > > > > > Membership of this email support groups does not constitute

> membership

> > > in

> > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > For information about the CHARGE Syndrome

> > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > please contact marion@... or visit

> > > > > > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

> > > Canada

> > > > > information and membership, please visit

> http://www.chargesyndrome.ca,

> > > or

> > > > > email info@....

> > > > > > 7th International

> > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24,

> 2005.

> > > > > Information will be available at www.chargesyndrome.org or by

> calling

> > > > > 1-.

> > > > > >

[Guest guest]

I have charge syndrome...

Re: Exactly when is chat night

> > > > > >

> > > > > > >

> > > > > > > I live in Melbourne and Ballarat (In ). I haven't been

> > very

> > > > > > > active for awhile or even had the chance to read many messages

> > (too

> > > > > > > much work) but i'm back now

> > > > > > >

> > > > > > >

> > > > > > > Family Options sister to Trinity (13) with congenital

> > cytomegalovirus,

> > > > > > > severe CP, profound hearing loss, severe intellectual

disability.

> > > > > > > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > > > > > > Carer to lots of children with various disabilities and

medical

> > > > > > > problems, each with their own fantastic personality

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Membership of this email support groups does not constitute

> > membership

> > > > in

> > > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > > For information about the CHARGE Syndrome

> > > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > > please contact marion@... or visit

> > > > > > > the web site at http://www.chargesyndrome.org. For CHARGE

Syndrome

> > > > Canada

> > > > > > information and membership, please visit

> > http://www.chargesyndrome.ca,

> > > > or

> > > > > > email info@....

> > > > > > > 7th International

> > > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24,

> > 2005.

> > > > > > Information will be available at www.chargesyndrome.org or by

> > calling

> > > > > > 1-.

> > > > > > >

[Guest guest]

Hey did u go to any of the last 2 charge conferences? i remember one of the

guys i foget bhus name, is it edward or phillip? i remember at the

conference one of them ahd a carer, was that you? lol

Belinda

Re: Exactly when is chat night

> > > > > >

> > > > > > >

> > > > > > > I live in Melbourne and Ballarat (In ). I haven't been

> > very

> > > > > > > active for awhile or even had the chance to read many messages

> > (too

> > > > > > > much work) but i'm back now

> > > > > > >

> > > > > > >

> > > > > > > Family Options sister to Trinity (13) with congenital

> > cytomegalovirus,

> > > > > > > severe CP, profound hearing loss, severe intellectual

disability.

> > > > > > > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > > > > > > Carer to lots of children with various disabilities and

medical

> > > > > > > problems, each with their own fantastic personality

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Membership of this email support groups does not constitute

> > membership

> > > > in

> > > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > > For information about the CHARGE Syndrome

> > > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > > please contact marion@... or visit

> > > > > > > the web site at http://www.chargesyndrome.org. For CHARGE

Syndrome

> > > > Canada

> > > > > > information and membership, please visit

> > http://www.chargesyndrome.ca,

> > > > or

> > > > > > email info@....

> > > > > > > 7th International

> > > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24,

> > 2005.

> > > > > > Information will be available at www.chargesyndrome.org or by

> > calling

> > > > > > 1-.

> > > > > > >

[Guest guest]

i haven't been to any charge conferences. Are they good?

Do you have a child with CHARGE?

>

> Hey did u go to any of the last 2 charge conferences? i remember one of the

> guys i foget bhus name, is it edward or phillip? i remember at the

> conference one of them ahd a carer, was that you? lol

> Belinda

> Re: Exactly when is chat night

> > > > > > >

> > > > > > > >

> > > > > > > > I live in Melbourne and Ballarat (In ). I haven't been

> > > very

> > > > > > > > active for awhile or even had the chance to read many messages

> > > (too

> > > > > > > > much work) but i'm back now

> > > > > > > >

> > > > > > > >

> > > > > > > > Family Options sister to Trinity (13) with congenital

> > > cytomegalovirus,

> > > > > > > > severe CP, profound hearing loss, severe intellectual

> disability.

> > > > > > > > Carer/niece to Ruth (40) who has Down Syndrome and epilepsy

> > > > > > > > Carer to lots of children with various disabilities and

> medical

> > > > > > > > problems, each with their own fantastic personality

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Membership of this email support groups does not constitute

> > > membership

> > > > > in

> > > > > > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > > > > > > > For information about the CHARGE Syndrome

> > > > > > > > Foundation or to become a member (and get the newsletter),

> > > > > > > > please contact marion@... or visit

> > > > > > > > the web site at http://www.chargesyndrome.org. For CHARGE

> Syndrome

> > > > > Canada

> > > > > > > information and membership, please visit

> > > http://www.chargesyndrome.ca,

> > > > > or

> > > > > > > email info@....

> > > > > > > > 7th International

> > > > > > > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24,

> > > 2005.

> > > > > > > Information will be available at www.chargesyndrome.org or by

> > > calling

> > > > > > > 1-.

> > > > > > > >