Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Thanks for posting , I've been thinking about you. I hope everything will be ok for you. What a big girl na is! Wow! Keep up with the stretches, they are so very important. We are still battling tort and Aidan just turned 2! Natasha > Hi All, > Sorry I haven't been very active. I've had my own medical crises > recently. The good news is most of the tests have come back > negative. The bad news is the few tests that showed something do not > provide enough data for diagnosis. So, we are treating the symptoms > and will wait and see on a diagnosis. > > Now on to Miss na. She had her 9 month well baby last week. > She's up to 22 lbs 11 oz and 29 3/4 " . She still has her tilt, which > I discussed with the dr. He referred us to PT since we were out of > the DOC band and no longer getting check-ups through CT. She had an > initial evaluation on Monday. She still has full range of motion but > there is some tightness in the other muscle which causes the tilt. > The PT said we had done a good job and should see good results if we > stick to it. na hates the stretches and oh my can (the > PT) do a good stretch on her!! We had another appointment today. It > turns out insurance only approved us for 9 visits. We are going to > try and space them out so we can get full benefit. > > The PT knows all about CT in Charlotte. She says she talks to them > all the time - she's as bad as a new DOC parent : ) She even has a > DOC calendar on the wall. She's going to give my name to a mom that > keeps getting the " it'll grown out " from her ped. She thinks she may > be running out of time. > > On the insurance front - we're still waiting for the reimbursement > check, but I heard it was in the mail - LOL! > > > > mom to na > DOC grad 2/20/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi ! I've been wondering where you've been, you've been missed in the group. I'm so sorry to hear of your own medical concerns. I hope things work out. Please keep us posted. Thanks for your updates. Debbie > Hi All, > Sorry I haven't been very active. I've had my own medical crises > recently. The good news is most of the tests have come back > negative. The bad news is the few tests that showed something do not > provide enough data for diagnosis. So, we are treating the symptoms > and will wait and see on a diagnosis. > > Now on to Miss na. She had her 9 month well baby last week. > She's up to 22 lbs 11 oz and 29 3/4 " . She still has her tilt, which > I discussed with the dr. He referred us to PT since we were out of > the DOC band and no longer getting check-ups through CT. She had an > initial evaluation on Monday. She still has full range of motion but > there is some tightness in the other muscle which causes the tilt. > The PT said we had done a good job and should see good results if we > stick to it. na hates the stretches and oh my can (the > PT) do a good stretch on her!! We had another appointment today. It > turns out insurance only approved us for 9 visits. We are going to > try and space them out so we can get full benefit. > > The PT knows all about CT in Charlotte. She says she talks to them > all the time - she's as bad as a new DOC parent : ) She even has a > DOC calendar on the wall. She's going to give my name to a mom that > keeps getting the " it'll grown out " from her ped. She thinks she may > be running out of time. > > On the insurance front - we're still waiting for the reimbursement > check, but I heard it was in the mail - LOL! > > > > mom to na > DOC grad 2/20/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 , I've been thinking of you, and just mentioned you yesterday hoping we'd hear from you soon. I'm so sorry about your medical situation, and I hope that you are provided with some answers soon. It is certainly excellent news that the majority of tests were negative, and I hope your current protocol relieves the symptoms. Wow, I can't believe na is 22 lbs! Remy was always such a skinny-minny, we barely got her to 20 lbs for her first birthday so we could turn the carseat forward! Please let us know how the PT visits are resolving what little issue she has left with the tilt. Who knows, maybe that reimbursement check IS in the mail!! I would love to see that battle won for good - keep us posted! Take care, Christie (Mom to Repo'd Remy) > Hi All, > Sorry I haven't been very active. I've had my own medical crises > recently. The good news is most of the tests have come back > negative. The bad news is the few tests that showed something do not > provide enough data for diagnosis. So, we are treating the symptoms > and will wait and see on a diagnosis. > > Now on to Miss na. She had her 9 month well baby last week. > She's up to 22 lbs 11 oz and 29 3/4 " . She still has her tilt, which > I discussed with the dr. He referred us to PT since we were out of > the DOC band and no longer getting check-ups through CT. She had an > initial evaluation on Monday. She still has full range of motion but > there is some tightness in the other muscle which causes the tilt. > The PT said we had done a good job and should see good results if we > stick to it. na hates the stretches and oh my can (the > PT) do a good stretch on her!! We had another appointment today. It > turns out insurance only approved us for 9 visits. We are going to > try and space them out so we can get full benefit. > > The PT knows all about CT in Charlotte. She says she talks to them > all the time - she's as bad as a new DOC parent : ) She even has a > DOC calendar on the wall. She's going to give my name to a mom that > keeps getting the " it'll grown out " from her ped. She thinks she may > be running out of time. > > On the insurance front - we're still waiting for the reimbursement > check, but I heard it was in the mail - LOL! > > > > mom to na > DOC grad 2/20/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 , I'm so sorry to hear about your medical problems. I have you in my prayers. Well, Miss na!!! Isn't she just the chunk! Ok, maybe is just tiny, she weighed a whopping 24 lbs on Friday and she is 2 weeks away of being 2! lol I hope your able to help her with the tightness through more PT. Please keep us update. The check is in the mail?! lol Dustie > Hi All, > Sorry I haven't been very active. I've had my own medical crises > recently. The good news is most of the tests have come back > negative. The bad news is the few tests that showed something do not > provide enough data for diagnosis. So, we are treating the symptoms > and will wait and see on a diagnosis. > > Now on to Miss na. She had her 9 month well baby last week. > She's up to 22 lbs 11 oz and 29 3/4 " . She still has her tilt, which > I discussed with the dr. He referred us to PT since we were out of > the DOC band and no longer getting check-ups through CT. She had an > initial evaluation on Monday. She still has full range of motion but > there is some tightness in the other muscle which causes the tilt. > The PT said we had done a good job and should see good results if we > stick to it. na hates the stretches and oh my can (the > PT) do a good stretch on her!! We had another appointment today. It > turns out insurance only approved us for 9 visits. We are going to > try and space them out so we can get full benefit. > > The PT knows all about CT in Charlotte. She says she talks to them > all the time - she's as bad as a new DOC parent : ) She even has a > DOC calendar on the wall. She's going to give my name to a mom that > keeps getting the " it'll grown out " from her ped. She thinks she may > be running out of time. > > On the insurance front - we're still waiting for the reimbursement > check, but I heard it was in the mail - LOL! > > > > mom to na > DOC grad 2/20/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi , Good to hear from you! I hope your medical stuff comes to a happy ending and soon . You are missed around here! I'm glad to hear Miss na is doing well, and I hope the PT will help with the tilt. Keep us updated when you get the chance. , mom to Hannah, DOC #3 3/30 Cape Cod, Ma > Hi All, > Sorry I haven't been very active. I've had my own medical crises > recently. The good news is most of the tests have come back > negative. The bad news is the few tests that showed something do not > provide enough data for diagnosis. So, we are treating the symptoms > and will wait and see on a diagnosis. > > Now on to Miss na. She had her 9 month well baby last week. > She's up to 22 lbs 11 oz and 29 3/4 " . She still has her tilt, which > I discussed with the dr. He referred us to PT since we were out of > the DOC band and no longer getting check-ups through CT. She had an > initial evaluation on Monday. She still has full range of motion but > there is some tightness in the other muscle which causes the tilt. > The PT said we had done a good job and should see good results if we > stick to it. na hates the stretches and oh my can (the > PT) do a good stretch on her!! We had another appointment today. It > turns out insurance only approved us for 9 visits. We are going to > try and space them out so we can get full benefit. > > The PT knows all about CT in Charlotte. She says she talks to them > all the time - she's as bad as a new DOC parent : ) She even has a > DOC calendar on the wall. She's going to give my name to a mom that > keeps getting the " it'll grown out " from her ped. She thinks she may > be running out of time. > > On the insurance front - we're still waiting for the reimbursement > check, but I heard it was in the mail - LOL! > > > > mom to na > DOC grad 2/20/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Hi Everyone, It's been awhile. I lurk every now and then and I am always available via email if anyone has any questions about insurance, treatments in SC or the Charlotte CT office. I wanted to let you know how na is doing. She will be 1 next Friday - my how time flies. Her head still looks great, however as a member of the plagio police I can still see some flat areas. She is still in PT for the tort but only every 3 weeks. She has a slight tilt. However, she does have full range of motion. She still hates and fights the stretches. If all looks well on the 8th we will go to once a month and then possibly be done. She is walking (has been since late April) and getting into everything. Still no words. I just updated our family website if you would like to see the latest pics. www.thefilyaws.com mom to na DOC 1 10/27 - 11/26 DOC 2 12/10 - 2/20/04 Tort - unresolved Florence, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Sounds like she's doing great! I'm glad her PT is almost over for you guys. I hope na has a very happy first birthday! I'm sure she'll be chatting your ear off before you know it . , mom to Hannah, DOCband #3 3/30 Cape Cod, Ma > Hi Everyone, > It's been awhile. I lurk every now and then and I am always > available via email if anyone has any questions about insurance, > treatments in SC or the Charlotte CT office. > > I wanted to let you know how na is doing. She will be 1 next > Friday - my how time flies. Her head still looks great, however as a > member of the plagio police I can still see some flat areas. She is > still in PT for the tort but only every 3 weeks. She has a slight > tilt. However, she does have full range of motion. She still hates > and fights the stretches. If all looks well on the 8th we will go to > once a month and then possibly be done. She is walking (has been > since late April) and getting into everything. Still no words. > > I just updated our family website if you would like to see the latest > pics. www.thefilyaws.com > > > > mom to na > DOC 1 10/27 - 11/26 > DOC 2 12/10 - 2/20/04 > Tort - unresolved > Florence, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 , I am so happy to hear from you; your posts are missed around here! How are you feeling? That is wonderful news that there is light at the end of the tunnel as far as na's tort pt goes! It sounds like she won't miss the stretches one bit. I can't believe she is almost 1 already! I find it difficult to take off my " plagio glasses, " too, but Remy jumping with both feet into the Terrible Twos does a great job of distracting me. Post when you can, and keep us updated on na, Christie (Mom to Repo'd Remy) > Hi Everyone, > It's been awhile. I lurk every now and then and I am always > available via email if anyone has any questions about insurance, > treatments in SC or the Charlotte CT office. > > I wanted to let you know how na is doing. She will be 1 next > Friday - my how time flies. Her head still looks great, however as a > member of the plagio police I can still see some flat areas. She is > still in PT for the tort but only every 3 weeks. She has a slight > tilt. However, she does have full range of motion. She still hates > and fights the stretches. If all looks well on the 8th we will go to > once a month and then possibly be done. She is walking (has been > since late April) and getting into everything. Still no words. > > I just updated our family website if you would like to see the latest > pics. www.thefilyaws.com > > > > mom to na > DOC 1 10/27 - 11/26 > DOC 2 12/10 - 2/20/04 > Tort - unresolved > Florence, SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Welcome back ! I'm so glad you are healthy! It scared me when you left us! I hope you're able to share your plagio knowledge with all the new members! You are awesome! Great for na! Go baby girl grow! Dustie > hi All, > I know I haven't been around in awhile. I had a health scare in > March that they still haven't diagnosed. On the good side I went > through another round of tests in June and all is back to normal and > no signs of the illness. It could just be a one time occurance. - > Yeah. > > Ok now on to dear na. She turned 1 almost a month ago. I can't > believe it. She is walking (has been for awhile), no talking. Her > head still looks great if not a slight improvement. I'll have to > take some bath shots that only this group would appreciate. And the > great news ... her tort is RESOLVED. She was discharged from PT > this past Tuesday. There may still be the tiniest bit of a tilt but > only the tort police or pt would see it. She had a growth spurt in > June and it didn't get worse in fact it got better. > > Her website is www.thefilyaws.com > > I still need votes on which pic for the DOC calendar. I grouped some > together on her website (http://www.thefilyaws.com/Album%20to% > 20publish/DOCcalendar.html) or you can just go through her other pics > (October - February) and let me know. > > > > > mom to na (6/11/03), moderate plagio > Doc 1 10/27 - 11/26 > Doc 2 12/10 - 2/20 > Tort - RESOLVED > South Carolina (Treated in Charlotte) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hi YAY for you both! In the 2nd picture in - doc1b, her after pictures are on the left yes? She looks wonderful and I just want to squoosh her cheeks. Happy 1st birthday na! I'm trying to get the link to work.... Sue Colin F. 9 mos, brachy, rt plag STARband 6/29 Buffalo, NY > hi All, > I know I haven't been around in awhile. I had a health scare in > March that they still haven't diagnosed. On the good side I went > through another round of tests in June and all is back to normal and > no signs of the illness. It could just be a one time occurance. - > Yeah. > > Ok now on to dear na. She turned 1 almost a month ago. I can't > believe it. She is walking (has been for awhile), no talking. Her > head still looks great if not a slight improvement. I'll have to > take some bath shots that only this group would appreciate. And the > great news ... her tort is RESOLVED. She was discharged from PT > this past Tuesday. There may still be the tiniest bit of a tilt but > only the tort police or pt would see it. She had a growth spurt in > June and it didn't get worse in fact it got better. > > Her website is www.thefilyaws.com > > I still need votes on which pic for the DOC calendar. I grouped some > together on her website (http://www.thefilyaws.com/Album%20to% > 20publish/DOCcalendar.html) or you can just go through her other pics > (October - February) and let me know. > > > > > mom to na (6/11/03), moderate plagio > Doc 1 10/27 - 11/26 > Doc 2 12/10 - 2/20 > Tort - RESOLVED > South Carolina (Treated in Charlotte) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi , So good to hear from you! I'm glad na is doing so well! I looked at her pics and liked the 1/1 one best I think. They're all so cute though! Thats great her tort is resolved too. Thanks for the wonderful update! , mom to Hannah, DOCband #3 3/30 Cape Cod, Ma > --- In Plagiocephaly , " monicash " <filyaw@b...> wrote: > > hi All, > > I know I haven't been around in awhile. I had a health scare in > > March that they still haven't diagnosed. On the good side I went > > through another round of tests in June and all is back to normal > and > > no signs of the illness. It could just be a one time occurance. - > > Yeah. > > > > Ok now on to dear na. She turned 1 almost a month ago. I > can't > > believe it. She is walking (has been for awhile), no talking. Her > > head still looks great if not a slight improvement. I'll have to > > take some bath shots that only this group would appreciate. And > the > > great news ... her tort is RESOLVED. She was discharged from PT > > this past Tuesday. There may still be the tiniest bit of a tilt > but > > only the tort police or pt would see it. She had a growth spurt in > > June and it didn't get worse in fact it got better. > > > > Her website is www.thefilyaws.com > > > > I still need votes on which pic for the DOC calendar. I grouped > some > > together on her website (http://www.thefilyaws.com/Album%20to% > > 20publish/DOCcalendar.html) or you can just go through her other > pics > > (October - February) and let me know. > > > > > > > > > > mom to na (6/11/03), moderate plagio > > Doc 1 10/27 - 11/26 > > Doc 2 12/10 - 2/20 > > Tort - RESOLVED > > South Carolina (Treated in Charlotte) Quote Link to comment Share on other sites More sharing options...
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