New Plagio Mommie and new DOC band

[Guest guest]

Talk to your orthotist about any red spots you see. They should be able to shave a little off in those areas. Jennicah has one red spot on the side that takes a long time to fade, but no breakdown of skin has occurred. She doesn't seem to be unhappy or pawing at the helmet or anything like that. She has napped in it all week and tonight we go all night. I do not anticipate any problems. We see the orthotist tomorros and once a week for a month. Be in close contact with the orthotist. and Jennicah in Washington

[Guest guest]

Hi everyone,

I have a 5 month old who just got her DOC band today. She was

diagnosed with severe plagio at her 8 week checkup, and its taken

this long to get the CT scans done and insurance denials!

Fortunately we started aggresive repositioning as soon as we learned

what this was and its helped a little. The band will hopefully

round everything back out - although I am struggling with knowing if

I have it on exactly right!

Anyway, she doesn't seem to mind it too much, but she is fair

skinned and hot natured. She's already had sweat dripping and red

spots that fade a little but never go away. I'm worried about her

sleeping all night in the helment (she usually sleeps 10+ hours)

when the red spots do not fade much after just a few hours of wear.

I've read a few emails on this, but didn't see any recommendations

about wearing it all night if the red spots aren't going away. Any

suggestions? Can you tell I'm a paranoid, overprotective mom

already???

Thanks!

[Guest guest]

Thank you so much - that helps. She was having trouble getting to

sleep tonight, so we decided that trying to make her sleep in it

after only wearing it a few hours all day was too much. I'm going

to let her go in gradually. It seems to be what other parents are

doing too, so I feel a lot better. Fortunately I haven't seen any

skin breakdown either, and she hasn't really messed with it all

day. I'll do the naps tomorrow, call CT, and go for longer periods

Wednesday. Maybe we can try it again Wednesday/Thursday night.

Thanks again - and (5 mths), Carolinas

> Talk to your orthotist about any red spots you see. They should

be able to

> shave a little off in those areas. Jennicah has one red spot on

the side that

> takes a long time to fade, but no breakdown of skin has occurred.

She doesn't

> seem to be unhappy or pawing at the helmet or anything like that.

She has

> napped in it all week and tonight we go all night. I do not

anticipate any

> problems. We see the orthotist tomorros and once a week for a

month. Be in close

> contact with the orthotist. and Jennicah in Washington

[Guest guest]

Hi ,

My son Aidan got his doc band last week. I have the same dilemma

about it being on right, it seems that little point is NEVER over his

nose! They told me at CT it will still do the job it was made for! I

think when they start filling into the flat spot it will stay on much

better.

Even though the red tape took so long it's great you got your DD

banded so early. Hopefully you will see quick correction! My son is

fair skinned too, luckily we haven't had any red spots that didn't

fade so I can't be of much help there. I'm sure you'll get some

wonderful suggestions from everyone and you can always call CT first

thing in the morning. Welcome to the group!

& Aidan in CT

10.5 mnoths, doc band 7/21

--- In Plagiocephaly , " brightinaz " <brightinaz@y...>

wrote:

> Hi everyone,

>

> I have a 5 month old who just got her DOC band today. She was

> diagnosed with severe plagio at her 8 week checkup, and its taken

> this long to get the CT scans done and insurance denials!

> Fortunately we started aggresive repositioning as soon as we

learned

> what this was and its helped a little. The band will hopefully

> round everything back out - although I am struggling with knowing

if

> I have it on exactly right!

>

> Anyway, she doesn't seem to mind it too much, but she is fair

> skinned and hot natured. She's already had sweat dripping and red

> spots that fade a little but never go away. I'm worried about her

> sleeping all night in the helment (she usually sleeps 10+ hours)

> when the red spots do not fade much after just a few hours of wear.

>

> I've read a few emails on this, but didn't see any recommendations

> about wearing it all night if the red spots aren't going away. Any

> suggestions? Can you tell I'm a paranoid, overprotective mom

> already???

>

> Thanks!

>

[Guest guest]

Hi ,

Welcome to the group. If the red marks are lasting longer than an

hour you need to keep the band off. Any red mark that doesn't fade

within an hours means you need to get in to see your ortho for an

adjustment. It is very common to need an adjustment or 2 or 3 in the

beginning of treatment before the " just right " fit is found.

Your baby is at a great age to receive awesome correction!!

What Cranial Tech office are you going to?

--- In Plagiocephaly , " brightinaz " <brightinaz@y...>

wrote:

> Hi everyone,

>

> I have a 5 month old who just got her DOC band today. She was

> diagnosed with severe plagio at her 8 week checkup, and its taken

> this long to get the CT scans done and insurance denials!

> Fortunately we started aggresive repositioning as soon as we

learned

> what this was and its helped a little. The band will hopefully

> round everything back out - although I am struggling with knowing

if

> I have it on exactly right!

>

> Anyway, she doesn't seem to mind it too much, but she is fair

> skinned and hot natured. She's already had sweat dripping and red

> spots that fade a little but never go away. I'm worried about her

> sleeping all night in the helment (she usually sleeps 10+ hours)

> when the red spots do not fade much after just a few hours of wear.

>

> I've read a few emails on this, but didn't see any recommendations

> about wearing it all night if the red spots aren't going away. Any

> suggestions? Can you tell I'm a paranoid, overprotective mom

> already???

>

> Thanks!

>

[Guest guest]

Hello

Welcome to the group. What a great age your daughter is in to be

banded. You will see some good correction. I totally agree with

what told you. I would leave the band off at night as well

till you can get it adjusted. Please call there, and see that you

can get in as soon as possible. Let us know how it goes.

Sandy WIllow's Mom (we had 2 adjustments in the first 2wks as well)

Germany

--- In Plagiocephaly , " brightinaz " <brightinaz@y...>

wrote:

> Hi everyone,

>

> I have a 5 month old who just got her DOC band today. She was

> diagnosed with severe plagio at her 8 week checkup, and its taken

> this long to get the CT scans done and insurance denials!

> Fortunately we started aggresive repositioning as soon as we

learned

> what this was and its helped a little. The band will hopefully

> round everything back out - although I am struggling with knowing

if

> I have it on exactly right!

>

> Anyway, she doesn't seem to mind it too much, but she is fair

> skinned and hot natured. She's already had sweat dripping and red

> spots that fade a little but never go away. I'm worried about her

> sleeping all night in the helment (she usually sleeps 10+ hours)

> when the red spots do not fade much after just a few hours of wear.

>

> I've read a few emails on this, but didn't see any recommendations

> about wearing it all night if the red spots aren't going away.

Any

> suggestions? Can you tell I'm a paranoid, overprotective mom

> already???

>

> Thanks!

>

[Guest guest]

Thanks. I did keep it off of her last night, and put it back on

this morning. She is napping in it right now (for the first time).

We are going to the Cranial Tech office in Charlotte, NC, but we

live about 2 hours away (which is not that bad I guess). We have

another appointment Monday, but it sounds like we may have to drive

back again this week. The red spots do fade a little, but never

completely go away. I called them this morning and they want me to

do skin checks again today and report back this afternoon (since she

didn't sleep in it last night).

Yes, I'm glad I've gotten the band on her this early too. I tried

to do it even earlier since I've been out of work on leave, but it

just didn't work out. I have to go back to work next week, so this

is bad timing for the 5 hour roundtrips to NC. Maybe we can get a

good fit this week and be okay when I have to go back to work. If

not, we will just do what we have to. This is important to her

physical and emotional health. Hopefully she won't have to wear it

long.

She's a tummy sleeper now (her ped told us to sleep her on her tummy

during the day after her diagnoses, and once that started she

refused to sleep on her back again). So, I'm worried that the

helmet will " tweak " her neck again because of the lift and

preference to sleep on the smooth side vs the velcro side. To be

honest, we had a chiropractor friend help with her slight case of

tort. She was much better after just one treatment. It wasn't a

typical adult treatment - just a little tap and a massage. It

worked wonders for her range of motion. I hope tummy sleeping with

the helment doesn't cause other neck problems.

Thanks again for all the support and suggestions. This is

definitely a big adjustment for moms and dads. My heart goes out to

all of you who must drive or fly for hours/days for treatment!

Now I need to work on my insurance appeal!

> > Hi everyone,

> >

> > I have a 5 month old who just got her DOC band today. She was

> > diagnosed with severe plagio at her 8 week checkup, and its

taken

> > this long to get the CT scans done and insurance denials!

> > Fortunately we started aggresive repositioning as soon as we

> learned

> > what this was and its helped a little. The band will hopefully

> > round everything back out - although I am struggling with

knowing

> if

> > I have it on exactly right!

> >

> > Anyway, she doesn't seem to mind it too much, but she is fair

> > skinned and hot natured. She's already had sweat dripping and

red

> > spots that fade a little but never go away. I'm worried about

her

> > sleeping all night in the helment (she usually sleeps 10+ hours)

> > when the red spots do not fade much after just a few hours of

wear.

> >

> > I've read a few emails on this, but didn't see any

recommendations

> > about wearing it all night if the red spots aren't going away.

Any

> > suggestions? Can you tell I'm a paranoid, overprotective mom

> > already???

> >

> > Thanks!

> >

[Guest guest]

How's it going? Did you make a trip to CT today?

> > > Hi everyone,

> > >

> > > I have a 5 month old who just got her DOC band today. She was

> > > diagnosed with severe plagio at her 8 week checkup, and its

> taken

> > > this long to get the CT scans done and insurance denials!

> > > Fortunately we started aggresive repositioning as soon as we

> > learned

> > > what this was and its helped a little. The band will hopefully

> > > round everything back out - although I am struggling with

> knowing

> > if

> > > I have it on exactly right!

> > >

> > > Anyway, she doesn't seem to mind it too much, but she is fair

> > > skinned and hot natured. She's already had sweat dripping and

> red

> > > spots that fade a little but never go away. I'm worried about

> her

> > > sleeping all night in the helment (she usually sleeps 10+

hours)

> > > when the red spots do not fade much after just a few hours of

> wear.

> > >

> > > I've read a few emails on this, but didn't see any

> recommendations

> > > about wearing it all night if the red spots aren't going away.

> Any

> > > suggestions? Can you tell I'm a paranoid, overprotective mom

> > > already???

> > >

> > > Thanks!

> > >