Re: Does injury cause rsd to spread to new places

[Guest guest]

Yes, it can spread to other parts of the body. I does not always, but it

can. In Joanna's case, she slept wrong on a leg, and it spread from her

hands to the leg. Also, it spread without us knowing, to her heart, and

that caused sufficient damage to her heart to kill her.

Contrary to what all of us think about this disease, it is not only a

pain related disease, but an autoimmune problem. The pain is caused by

the immune system over reacting. And when we injure ourselves, the

immune system kicks in.

Rajiv

jftex1 wrote:

> I am asking this as my foot has been injured 3 times and s once

> but the rsd in her body has spread to both feet, legs and up into

> hips and abdomen. The rsd in my right foot is moving up into my

> ankle now.

> Since I am so clutsy at times and other things that go wrong with

> and myself,will that cause the rsd to spead to my shoulder or

> 's back or shoulder????? And if so is that a medically proven

> thing or based on people knowing people that has had this rsd

> spread? Does this make sense to anyone? Guess if I could get my

> head and fingers to work together would ask it more like if I fall

> and hurt my shoulder and get rsd in my shoulder is it due to the fall

> so now everytime I bump into something, have surgery etc., I will get

> rsd there? Or is it a 50% chance, less than 50% chance?

> Sorry so much to ask. Just trying to know what to expect. Does

> the fact that the Fibro that has been in my body so severly for many

> years, cause me to have higher likelyhood of rsd spreading, or for

> to get Fibro? Oh heck enough of these questions for one

> night,more like enough for a month but sorry I usually cannot keep my

> fingers still that long or keeping my head from thinking about these

> things.

> Hope you all get some rest tonight. Thinking of you Babs and Bev

> and well all of you with hard times going on. Just don't need extra

> problems piled on top of already being in such pain. Have no clue

> how to get government to hear people hurting. I am desperate to know

> for my husband's sake, that we will have prescription protection when

> he retires. He is just to nice to stay with him if we cannot get

> help when he retires. I would have to divorce him to get my medical

> bills off him. Cannot see any other way out. ANother downer

> thought. Gee think before I have you all throwing food at the

> computer yelling at me best hang up, unless it is some good Iowa corn

> Tonia!!!

> s Momma

> JoAnn

>

>

>

>

[Guest guest]

Yes, it definitely can spread to other parts of the body and this is supported by all of the articles that you read about it. It doesn't, however, mean that it definitely will spread. Having had it for many years, I can attest to the "no spread" phenomenon. Whil I have minor problems with my same-side foot, my difficulties are almost exclusively restricted to my arm. My best to you - BarbaraRajiv Bhushan wrote:

Yes, it can spread to other parts of the body. I does not always, but it can. In Joanna's case, she slept wrong on a leg, and it spread from her hands to the leg. Also, it spread without us knowing, to her heart, and that caused sufficient damage to her heart to kill her.Contrary to what all of us think about this disease, it is not only a pain related disease, but an autoimmune problem. The pain is caused by the immune system over reacting. And when we injure ourselves, the immune system kicks in.Rajivjftex1 wrote:> I am asking this as my foot has been injured 3 times and s once > but the rsd in her body has spread to both feet, legs and up into > hips and abdomen. The rsd in my right foot is moving up into my > ankle now. > Since I am so clutsy at times and other things that go wrong with

> and myself,will that cause the rsd to spead to my shoulder or > 's back or shoulder????? And if so is that a medically proven > thing or based on people knowing people that has had this rsd > spread? Does this make sense to anyone? Guess if I could get my > head and fingers to work together would ask it more like if I fall > and hurt my shoulder and get rsd in my shoulder is it due to the fall > so now everytime I bump into something, have surgery etc., I will get > rsd there? Or is it a 50% chance, less than 50% chance? > Sorry so much to ask. Just trying to know what to expect. Does > the fact that the Fibro that has been in my body so severly for many > years, cause me to have higher likelyhood of rsd spreading, or for > to get Fibro? Oh heck enough of these questions for one > night,more like enough for a month but sorry I usually cannot keep my > fingers still

that long or keeping my head from thinking about these > things.> Hope you all get some rest tonight. Thinking of you Babs and Bev > and well all of you with hard times going on. Just don't need extra > problems piled on top of already being in such pain. Have no clue > how to get government to hear people hurting. I am desperate to know > for my husband's sake, that we will have prescription protection when > he retires. He is just to nice to stay with him if we cannot get > help when he retires. I would have to divorce him to get my medical > bills off him. Cannot see any other way out. ANother downer > thought. Gee think before I have you all throwing food at the > computer yelling at me best hang up, unless it is some good Iowa corn > Tonia!!!> s Momma> JoAnn> > > >

[Guest guest]

Rajiv,

Good to see you on here! We'll have to get back on IM again sometime. I've been away from the computer a lot, helping my mother-in-law get settled into a duplex here in town and going to doctor appts. with my daughter, who has a kidney infection, etc. Hope you are doing okay--as well as to be expected, considering what you're going through right now.

Love,

Re: Does injury cause rsd to spread to new places

Yes, it can spread to other parts of the body. I does not always, but it can. In Joanna's case, she slept wrong on a leg, and it spread from her hands to the leg. Also, it spread without us knowing, to her heart, and that caused sufficient damage to her heart to kill her.Contrary to what all of us think about this disease, it is not only a pain related disease, but an autoimmune problem. The pain is caused by the immune system over reacting. And when we injure ourselves, the immune system kicks in.Rajivjftex1 wrote:> I am asking this as my foot has been injured 3 times and s once > but the rsd in her body has spread to both feet, legs and up into > hips and abdomen. The rsd in my right foot is moving up into my > ankle now. > Since I am so clutsy at times and other things that go wrong with > and myself,will that cause the rsd to spead to my shoulder or > 's back or shoulder????? And if so is that a medically proven > thing or based on people knowing people that has had this rsd > spread? Does this make sense to anyone? Guess if I could get my > head and fingers to work together would ask it more like if I fall > and hurt my shoulder and get rsd in my shoulder is it due to the fall > so now everytime I bump into something, have surgery etc., I will get > rsd there? Or is it a 50% chance, less than 50% chance? > Sorry so much to ask. Just trying to know what to expect. Does > the fact that the Fibro that has been in my body so severly for many > years, cause me to have higher likelyhood of rsd spreading, or for > to get Fibro? Oh heck enough of these questions for one > night,more like enough for a month but sorry I usually cannot keep my > fingers still that long or keeping my head from thinking about these > things.> Hope you all get some rest tonight. Thinking of you Babs and Bev > and well all of you with hard times going on. Just don't need extra > problems piled on top of already being in such pain. Have no clue > how to get government to hear people hurting. I am desperate to know > for my husband's sake, that we will have prescription protection when > he retires. He is just to nice to stay with him if we cannot get > help when he retires. I would have to divorce him to get my medical > bills off him. Cannot see any other way out. ANother downer > thought. Gee think before I have you all throwing food at the > computer yelling at me best hang up, unless it is some good Iowa corn > Tonia!!!> s Momma> JoAnn> > > >

[Guest guest]

Thanks Deb so do I but tonight sure is not one that is encouraging. Really know have to get some help just hate going looking for someone that knows something and won't make a judgement based on fact have Fibro and on strong pain meds already and think I am just looking for some more meds. Don't ya'll just hate going from doctor to doctor...I truly am way past unhappy about this junk...that is end of my ranting. Going to play the South song again with the banjo's that makes me smile!

s Momma

JoAnn

Re: Does injury cause rsd to spread to new places

's back or shoulder????? And if so is that a medically proven thing or based on people knowing people that has had this rsd spread? Hi JoAnn,Not necessarily. The rsd could just stay in your foot. Not all rsd'ers experience spreading. Some can have surgery without spreading, nothing is medically proven either way. Hope your one of the people that is doesn't experience spreading. Take care.Hugs and a pain free minute,Deb (Deborah Genatossio)Founder of RSD-CRPSofAmericaDebgena@...

[Guest guest]

JoAnn,

I don't know if the number of blocks is a factor, but I do know that having blocks can help keep it from spreading. The physiatrist that did my nerve conduction test said that he didn't think I had RSD because it hadn't spread in a year. I told him that the pain doctor said the blocks sometimes keep it from spreading. Where he ever got that notion, I don't know, but there are several I know who haven't had it spread.

Love,

Re: Does injury cause rsd to spread to new places

Yes, it definitely can spread to other parts of the body and this is supported by all of the articles that you read about it. It doesn't, however, mean that it definitely will spread. Having had it for many years, I can attest to the "no spread" phenomenon. Whil I have minor problems with my same-side foot, my difficulties are almost exclusively restricted to my arm. My best to you - BarbaraRajiv Bhushan wrote: Yes, it can spread to other parts of the body. I does not always, but it can. In Joanna's case, she slept wrong on a leg, and it spread from her hands to the leg. Also, it spread without us knowing, to her heart, and that caused sufficient damage to her heart to kill her.Contrary to what all of us think about this disease, it is not only a pain related disease, but an autoimmune problem. The pain is caused by the immune system over reacting. And when we injure ourselves, the immune system kicks in.Rajivjftex1 wrote:> I am asking this as my foot has been injured 3 times and s once > but the rsd in her body has spread to both feet, legs and up into > hips and abdomen. The rsd in my right foot is moving up into my > ankle now. > Since I am so clutsy at times and other things that go wrong with > and myself,will that cause the rsd to spead to my shoulder or > 's back or shoulder????? And if so is that a medically proven > thing or based on people knowing people that has had this rsd > spread? Does this make sense to anyone? Guess if I could get my > head and fingers to work together would ask it more like if I fall > and hurt my shoulder and get rsd in my shoulder is it due to the fall > so now everytime I bump into something, have surgery etc., I will get > rsd there? Or is it a 50% chance, less than 50% chance? > Sorry so much to ask. Just trying to know what to expect. Does > the fact that the Fibro that has been in my body so severly for many > years, cause me to have higher likelyhood of rsd spreading, or for > to get Fibro? Oh heck enough of these questions for one > night,more like enough for a month but sorry I usually cannot keep my > fingers still that long or keeping my head from thinking about these > things.> Hope you all get some rest tonight. Thinking of you Babs and Bev > and well all of you with hard times going on. Just don't need extra > problems piled on top of already being in such pain. Have no clue > how to get government to hear people hurting. I am desperate to know > for my husband's sake, that we will have prescription protection when > he retires. He is just to nice to stay with him if we cannot get > help when he retires. I would have to divorce him to get my medical > bills off him. Cannot see any other way out. ANother downer > thought. Gee think before I have you all throwing food at the > computer yelling at me best hang up, unless it is some good Iowa corn > Tonia!!!> s Momma> JoAnn> > > >

[Guest guest]

JoAnn - I know that some of the RSD links have extra links that name docs that have expertise in RSD. You might want to try that. Also, I have read that we shoud be pursuing only docs that have the addition accreditaion (have done a specialized fellowship) in pain management. I will check to see if I can find out some of this information for you. What area do you live in? BarbaraBarbara Roman wrote:

Hi JoAnn, Hey hang in there. I know right now with no good dr to go to is really depressing but you will find a good one. It take time unfortunately. I wish I could say different but that is the truth. There really are very few of us that have gone to a dr right from the beginning that is good with RSD patients. When I started with RSD 23 years ago it was even harder than today. So keep trying to find one, ok. It is so important that you get started on a good treatment plan. Once you have found that then your pain will be mostly controlled. It took me a long time to get to this point, but it will happen. Take care and have a good night. I will keep you in my prayers.

Hugs,

babs

Re: Does injury cause rsd to spread to new places

's back or shoulder????? And if so is that a medically proven thing or based on people knowing people that has had this rsd spread? Hi JoAnn,Not necessarily. The rsd could just stay in your foot. Not all rsd'ers experience spreading. Some can have surgery without spreading, nothing is medically proven either way. Hope your one of the people that is doesn't experience spreading. Take care.Hugs and a pain free minute,Deb (Deborah Genatossio)Founder of RSD-CRPSofAmericaDebgena@...

[Guest guest]

In a message dated 9/14/2003 9:20:45 AM Central Daylight Time, > Contrary to what all of us think about this disease, it is not only a > pain related disease, but an autoimmune problem. The pain is caused by > the immune system over reacting. And when we injure ourselves, the > immune system kicks in.> > Rajiv

Is RSD an autoimmune problem? IF caused by an auto accident then it can still be said to be the victim's problem and not due to the injury by another? ( in my case a guy in truck hit me by running a sign)... I was just wondering.. Thanks for anyone' s thoughts..

Take Care, Nan

[Guest guest]

No, Injury is still the triggering factor. So in that case, it is still due to the injury.Rajiv

Dear Rajiv,

Thanks for your answer..

Take Care,

Nan

[Guest guest]

No, Injury is still the triggering factor. So in that case, it is still

due to the injury.

Rajiv

Nanoo312@... wrote:

> In a message dated 9/14/2003 9:20:45 AM Central Daylight Time, >

> Contrary to what all of us think about this disease, it is not only

> a

> > pain related disease, but an autoimmune problem. The pain is

> caused by

> > the immune system over reacting. And when we injure ourselves, the

> > immune system kicks in.

> >

> > Rajiv

>

>

>

>

> Is RSD an autoimmune problem? IF caused by an auto accident then it can

> still be said to be the victim's problem and not due to the injury by

> another? ( in my case a guy in truck hit me by running a sign)... I was

> just wondering.. Thanks for anyone' s thoughts..

>

> Take Care, Nan

>

> *

[Guest guest]

Nan, Unfortunately, from everything that I have read, not exactly. That is why it is so hard to dx, treat, and prove in a court.

tonia

P.s. They aren't exactly sure what RSD is exactly from what I've read and remember......although, since I haven't read anything lately, I could be wrong. I gave up doing my research....

-------Original Message-------

In a message dated 9/14/2003 9:20:45 AM Central Daylight Time, > Contrary to what all of us think about this disease, it is not only a > pain related disease, but an autoimmune problem. The pain is caused by > the immune system over reacting. And when we injure ourselves, the > immune system kicks in.> > Rajiv

Is RSD an autoimmune problem? IF caused by an auto accident then it can still be said to be the victim's problem and not due to the injury by another? ( in my case a guy in truck hit me by running a sign)... I was just wondering.. Thanks for anyone' s thoughts..

Take Care, Nan