Re: After two consults at CT, confused... sarah

[Guest guest]

-

Thanks for your comments!

I am trying to accept that my daughter's condition went from mild at

4 1/2 mos. to moderate at 5 1/2 mos. And to fight off the guilt

associated with not being aggressive enough about repo'g or not

knowing the correct repo'g techniques.

We are at 5 3/4 months and I feel like we are running out of time and

sometimes feel that she may continue to get worse.

However, with her current headshape, I just don't think I can justify

putting her in a band (money issues aside- that is a lot of money)for

a moderate case. Many people that I mention it to right now think

it's no big deal and why would I invest so much time, energy and

money to fix something that is a moderate, cosmetic problem. There

is no doubt in my mind that if her case was severe, we would band

her. I also know that other people are not the ones that will have

to live with it... I wish I could know what Rylee would like for me

to do. Being a parent is a hard job, is it not?

Anyway, I feel that we will take until she is 6 1/2 months old to

decide. I will try to post pictures this weekend. Please take a

look and let me know what you think.

Thanks again-

Terri

> > > > I am hoping that someone here has insight to offer- sorry the

> > > > background will be kinda long.

> > > >

> > > > At my daughter's 2 month ped. appt., he recommended

> > repositioning.

> > > I

> > > > wish he had fully explained HOW to do it and how aggressive

to

> be

> > > or

> > > > that I had put more effort into researching this at that

> point.

> > > > Anyway, at her 4 month appt., her head was still flat across

> the

> > > > lower part of her head with the right side being slightly

more

> > > flat

> > > > (she does not have torticollis, though), so he gave us a

> > > prescription

> > > > for CT. We went at 4 1/2 months for a free consult. They took

> > > > pictures and measurements.

> > > >

> > > > At that point, the top of her head was completely round. She

> just

> > > had

> > > > flattening in the lower back (increased on right), some small

> > > bulging

> > > > over her ears and some increased height to the top of the

back

> of

> > > her

> > > > head. She had no facial asymmetry. By all accounts and these

> > > > measurements, I considered her to have a mild case of plagio.

> The

> > > CT

> > > > therapist said mild to moderate, and said that it would be up

> to

> > > us

> > > > about the band. I'm not even really sure that it is

considered

> > > > plagio, since the top of her head was completely round- in

all

> of

> > > the

> > > > online research I have done and pics I have seen, the babies

> with

> > > > plagio/brachio, etc. all have odd shapes when looking at the

> top

> > > of

> > > > their heads. Can someone address this for me?

> > > >

> > > > We got more aggressive about repositioning, and asked them to

> at

> > > > daycare, but definitely would fall short of the efforts I've

> seen

> > > > many of you discuss. Nevertheless, my husband and I and other

> > > family

> > > > members were sure that her head was beginning to round out

> some

> > at

> > > > the bottom. We went back to CT for a 5 1/2 mo. free consult.

> My

> > > > husband and I honestly expected them to say it was better.

The

> > > > therapist immediately said- the bulges over her ears are

> bigger.

> > > > Let's take measurements. The measurements she took indicated

a

> > > slight

> > > > amount of facial asymmetry (like 3mm), the same ratio of

depth

> > > > measurements and increased width measurements. Again, they

> took

> > > > pictures and placed them side by side for us to look at. The

> > > rounding

> > > > at the bottom of her head is undeniably better. The top of

her

> > > head

> > > > is still round, with maybe the forehead becoming ever so

> slightly

> > > > flat. But the therapist said that overall she is worse,

> because

> > of

> > > > the increasing width vs. depth of her head. She said that the

> > > height

> > > > in the back was worse and that the angle of her head height/

> > > forehead

> > > > is worse (still moderate, however) and that she would

> recommend

> > > the

> > > > band. We were shocked! I can see what she is saying from the

> > > > pictures, but is it not possible that her head will grow more

> > > depth

> > > > in future months- can it grow wide one month and deep the

> next?

> > > Are

> > > > we not on to a different issue (head width) than what we were

> > sent

> > > > there for in the first place (flat head)? I'm so confused.

> > > >

> > > > I don't know whether to seek a second opinion (maybe a

> specialist

> > > > DOCTOR- the people at CT are 'therapists') or to think it is

a

> > > crock

> > > > and continue repositioning and not worry about it. (Sidebar:

> My

> > > older

> > > > daughter has a small hemangioma under her eye. We decided not

> to

> > > seek

> > > > treatment for it and it has almost completely involuted by

> almost

> > > age

> > > > 3. Based on this, my gut is to leave this alone as well.)

> > > >

> > > > I read some comments at ivillage that were very interesting,

> > > > especially someone wrote about the need for a new norm for

the

> > > > cephalic ratio (increased width vs. depth of head) due to the

> > back

> > > to

> > > > sleep campaign. Any more insight would be greatly

appreciated.

[Guest guest]

Hi Terri,

I think you're doing great w/this by trying to avoid banding if you

can, but also setting a realistic deadline for reevaluation. There

is alot of guilt associated w/plagio (my daughter's was already

severe at 3 mos!) and it makes you that much more anxious to be sure

you're doing the right thing. Did I read in another post you

ordered a bumbo seat too? I think it was you . That should be

very helpful both at home and at daycare for keeping her off her

head. Hopefully she'll improve on her own in the next month! Be

sure to keep us posted and let us know when you get the pics up.

> > > > > I am hoping that someone here has insight to offer- sorry

the

> > > > > background will be kinda long.

> > > > >

> > > > > At my daughter's 2 month ped. appt., he recommended

> > > repositioning.

> > > > I

> > > > > wish he had fully explained HOW to do it and how

aggressive

> to

> > be

> > > > or

> > > > > that I had put more effort into researching this at that

> > point.

> > > > > Anyway, at her 4 month appt., her head was still flat

across

> > the

> > > > > lower part of her head with the right side being slightly

> more

> > > > flat

> > > > > (she does not have torticollis, though), so he gave us a

> > > > prescription

> > > > > for CT. We went at 4 1/2 months for a free consult. They

took

> > > > > pictures and measurements.

> > > > >

> > > > > At that point, the top of her head was completely round.

She

> > just

> > > > had

> > > > > flattening in the lower back (increased on right), some

small

> > > > bulging

> > > > > over her ears and some increased height to the top of the

> back

> > of

> > > > her

> > > > > head. She had no facial asymmetry. By all accounts and

these

> > > > > measurements, I considered her to have a mild case of

plagio.

> > The

> > > > CT

> > > > > therapist said mild to moderate, and said that it would be

up

> > to

> > > > us

> > > > > about the band. I'm not even really sure that it is

> considered

> > > > > plagio, since the top of her head was completely round- in

> all

> > of

> > > > the

> > > > > online research I have done and pics I have seen, the

babies

> > with

> > > > > plagio/brachio, etc. all have odd shapes when looking at

the

> > top

> > > > of

> > > > > their heads. Can someone address this for me?

> > > > >

> > > > > We got more aggressive about repositioning, and asked them

to

> > at

> > > > > daycare, but definitely would fall short of the efforts

I've

> > seen

> > > > > many of you discuss. Nevertheless, my husband and I and

other

> > > > family

> > > > > members were sure that her head was beginning to round out

> > some

> > > at

> > > > > the bottom. We went back to CT for a 5 1/2 mo. free

consult.

> > My

> > > > > husband and I honestly expected them to say it was better.

> The

> > > > > therapist immediately said- the bulges over her ears are

> > bigger.

> > > > > Let's take measurements. The measurements she took

indicated

> a

> > > > slight

> > > > > amount of facial asymmetry (like 3mm), the same ratio of

> depth

> > > > > measurements and increased width measurements. Again, they

> > took

> > > > > pictures and placed them side by side for us to look at.

The

> > > > rounding

> > > > > at the bottom of her head is undeniably better. The top of

> her

> > > > head

> > > > > is still round, with maybe the forehead becoming ever so

> > slightly

> > > > > flat. But the therapist said that overall she is worse,

> > because

> > > of

> > > > > the increasing width vs. depth of her head. She said that

the

> > > > height

> > > > > in the back was worse and that the angle of her head

height/

> > > > forehead

> > > > > is worse (still moderate, however) and that she would

> > recommend

> > > > the

> > > > > band. We were shocked! I can see what she is saying from

the

> > > > > pictures, but is it not possible that her head will grow

more

> > > > depth

> > > > > in future months- can it grow wide one month and deep the

> > next?

> > > > Are

> > > > > we not on to a different issue (head width) than what we

were

> > > sent

> > > > > there for in the first place (flat head)? I'm so confused.

> > > > >

> > > > > I don't know whether to seek a second opinion (maybe a

> > specialist

> > > > > DOCTOR- the people at CT are 'therapists') or to think it

is

> a

> > > > crock

> > > > > and continue repositioning and not worry about it.

(Sidebar:

> > My

> > > > older

> > > > > daughter has a small hemangioma under her eye. We decided

not

> > to

> > > > seek

> > > > > treatment for it and it has almost completely involuted by

> > almost

> > > > age

> > > > > 3. Based on this, my gut is to leave this alone as well.)

> > > > >

> > > > > I read some comments at ivillage that were very

interesting,

> > > > > especially someone wrote about the need for a new norm for

> the

> > > > > cephalic ratio (increased width vs. depth of head) due to

the

> > > back

> > > > to

> > > > > sleep campaign. Any more insight would be greatly

> appreciated.

[Guest guest]

I am sure you are struggling with this, and although I haven't had

time to read them through, I'm sure you have gotten excellent advice

from the other moms on this group. I just wanted to mention that I

aggressively repositioned my son starting at about 4 mos and he got

worse. At 15 months he was still getting worse. It isn't always about

what you did. Some of those little heads are just kind of squashy!

There are moms who went through the plagio nightmare with one child,

did everything obsessively right with the next, and still had to get

a helmet for the second baby! It is not your fault. Six or seven

months is a great age for correction, especially with an active band

like the DOC Band. You still have some time to think.

, 20 mos, tort, plagio, DOC Band 5/7

> -

>

> Thanks for your comments!

>

> I am trying to accept that my daughter's condition went from mild

at

> 4 1/2 mos. to moderate at 5 1/2 mos. And to fight off the guilt

> associated with not being aggressive enough about repo'g or not

> knowing the correct repo'g techniques.

>

> We are at 5 3/4 months and I feel like we are running out of time

and

> sometimes feel that she may continue to get worse.

>

> However, with her current headshape, I just don't think I can

justify

> putting her in a band (money issues aside- that is a lot of money)

for

> a moderate case. Many people that I mention it to right now think

> it's no big deal and why would I invest so much time, energy and

> money to fix something that is a moderate, cosmetic problem. There

> is no doubt in my mind that if her case was severe, we would band

> her. I also know that other people are not the ones that will have

> to live with it... I wish I could know what Rylee would like for

me

> to do. Being a parent is a hard job, is it not?

>

> Anyway, I feel that we will take until she is 6 1/2 months old to

> decide. I will try to post pictures this weekend. Please take a

> look and let me know what you think.

>

> Thanks again-

>

> Terri

>