Re: Plastic surgeon tomorrow

[Guest guest]

,

Good luck tomorrow! Let us know how you make out. Remember it's not

up to the specialist whether or not to band or baby or when, it's

YOUR decision to make. The younger a baby is banded the better and

faster the correction. If the place you're going to uses passive

helmets you really need to get the ball rolling. Head growth slows

significantly.

> We have our 2nd appt. with the plastic surgeon tomorrow. He will

> decide then whether to go ahead and band/helmet Connor now or wait a

> while more. Connor is 5 1/2 mos. now, so I'm hoping that they say

to

> do it now. His tort has improved quite a bit in the past month,

> although he still has his tilt. The only thing I'm really worried

> about the eczema on his head. I'm hoping we can get it under

control

> before he gets his band/helmet. I'm getting a little nervous about

> the appt. I'm afraid I'll forget to ask the right questions. I

don't

> know what type of band/helmet they will recommend. There are

several

> in the St. Louis area to choose from, I think. Any advice? Also,

I'm

> dreading dealing with the insurance. We have BC/BS of MO (Alliance

> Choice PPO) Thanks.

>

>

> Connor (10/15/03 - tort/plagio)

> St. Louis, MO

[Guest guest]

Hi . I think 5 1/2 to six months is really at the end of when

you'd see some spontaneous correction, or when repo can be most

effective. If you are really convinced that Connor will benefit from

a helmet, then make that clear to the doc; even insist on a

prescription, don't be shy. I freely admit to being very agressive

about early treatment, becasue we got the runaround from all the docs

for months wanting to wait and see, and in the end our daughter was

approved for treatment like we always expected, and we absolutely

regret the lost time and opportunity for early intervention.

Remember, no one is as good an advocate for your kid as you are.

Anyway, that's just my advice. Good luck

Matt

> We have our 2nd appt. with the plastic surgeon tomorrow. He will

> decide then whether to go ahead and band/helmet Connor now or wait a

> while more. Connor is 5 1/2 mos. now, so I'm hoping that they say

to

> do it now. His tort has improved quite a bit in the past month,

> although he still has his tilt. The only thing I'm really worried

> about the eczema on his head. I'm hoping we can get it under

control

> before he gets his band/helmet. I'm getting a little nervous about

> the appt. I'm afraid I'll forget to ask the right questions. I

don't

> know what type of band/helmet they will recommend. There are

several

> in the St. Louis area to choose from, I think. Any advice? Also,

I'm

> dreading dealing with the insurance. We have BC/BS of MO (Alliance

> Choice PPO) Thanks.

>

>

> Connor (10/15/03 - tort/plagio)

> St. Louis, MO

[Guest guest]

,

I hope your appt. goes well tomorrow! Have you seen any great

improvement in Connors' headshape since your last appt. with the

plastic surgeon? Do you have any photos from around the time of

that last appointment until now to take to the specialist for

evaluation? If you are hoping that the specialist will recommend

the band, speak up and tell them you are ready for Connor to have

the band. They may indeed have a helmet/band recommendation, but

hopefully they will write the prescription in such a way that you

can choose the brand of your choice. Have you looked in the

HELMET/BAND DATABASE in the DATABASE section of the group for any

listed facilities near you? Maybe it would help to write down any

questions you have tonight before you go to the appointment. There

is a link to " Questions for the Doctor " here at the site in the

LINKS/HELMETS AND BANDS folder, if you would like to take an look

and see if any of those questions are of interest to you.

Please post and let us know how the appt. went when you have time!

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " " <andileigh@h...>

wrote:

> We have our 2nd appt. with the plastic surgeon tomorrow. He will

> decide then whether to go ahead and band/helmet Connor now or wait

a

> while more. Connor is 5 1/2 mos. now, so I'm hoping that they say

to

> do it now. His tort has improved quite a bit in the past month,

> although he still has his tilt. The only thing I'm really worried

> about the eczema on his head. I'm hoping we can get it under

control

> before he gets his band/helmet. I'm getting a little nervous about

> the appt. I'm afraid I'll forget to ask the right questions. I

don't

> know what type of band/helmet they will recommend. There are

several

> in the St. Louis area to choose from, I think. Any advice? Also,

I'm

> dreading dealing with the insurance. We have BC/BS of MO (Alliance

> Choice PPO) Thanks.

>

>

> Connor (10/15/03 - tort/plagio)

> St. Louis, MO

[Guest guest]

Hi ;

Good luck. There's a helpful list of questions for the Dr to print

out at http://www.plagiocephaly.org/support and I think also at

http://www.cappskids.org

Let us know how it goes.

Debbie

> --- In Plagiocephaly , " " <andileigh@h...>

wrote:

> > We have our 2nd appt. with the plastic surgeon tomorrow. He will

> > decide then whether to go ahead and band/helmet Connor now or

wait a

> > while more. Connor is 5 1/2 mos. now, so I'm hoping that they

say

> to

> > do it now. His tort has improved quite a bit in the past month,

> > although he still has his tilt. The only thing I'm really worried

> > about the eczema on his head. I'm hoping we can get it under

> control

> > before he gets his band/helmet. I'm getting a little nervous

about

> > the appt. I'm afraid I'll forget to ask the right questions. I

> don't

> > know what type of band/helmet they will recommend. There are

> several

> > in the St. Louis area to choose from, I think. Any advice?

Also,

> I'm

> > dreading dealing with the insurance. We have BC/BS of MO (Alliance

> > Choice PPO) Thanks.

> >

> >

> > Connor (10/15/03 - tort/plagio)

> > St. Louis, MO

[Guest guest]

Let us know how it goes!

Dustie

--- In Plagiocephaly , " " <andileigh@h...>

wrote:

> We have our 2nd appt. with the plastic surgeon tomorrow. He will

> decide then whether to go ahead and band/helmet Connor now or wait

a

> while more. Connor is 5 1/2 mos. now, so I'm hoping that they say

to

> do it now. His tort has improved quite a bit in the past month,

> although he still has his tilt. The only thing I'm really worried

> about the eczema on his head. I'm hoping we can get it under

control

> before he gets his band/helmet. I'm getting a little nervous about

> the appt. I'm afraid I'll forget to ask the right questions. I

don't

> know what type of band/helmet they will recommend. There are

several

> in the St. Louis area to choose from, I think. Any advice? Also,

I'm

> dreading dealing with the insurance. We have BC/BS of MO (Alliance

> Choice PPO) Thanks.

>

>

> Connor (10/15/03 - tort/plagio)

> St. Louis, MO