Re: Do you agree with this approach?

[Guest guest]

Hi H,

I may have missed a previous post from you - I wanted to welcome you

to the group!

I think that Children's Healthcare of Atlanta is currently

conducting a large scale study on the various treatments and

outcomes, and is scanning the babies periodically to mark their

progress... I am very eager to see the results, myself, being the

repositioning moderator (we have so few studies out comparing

treatments and ages, etc.) Is the study you are participating in at

this location? I'd love to know who else is out there conducting a

study such as this one so that we could keep in touch with any group

members participating and get the word when the studies come out!

My only feedback on your situation is that usually repo is much more

difficult if you are also dealing with tort. Is your daughter still

sleeping on her flat area at nighttime? During the day, besides

tummy time, are you continuing to use devices such as a bouncie or

swing? The upside is that in babies as young as your daughter, repo

results are usually swift and dramatic if repo is going to work. I

would also like to ask what sort of flatness your daughter has - is

it plagio (flatness on one side of the back of the head) or brachy

(flatness all across the back of the head) by any chance? If your

baby has brachy, and you are batting tort tilt as well, etc., then

you may want to consider banding sooner to avoid any unintentional

widening of the head during nighttime or daytime repo. Otherwise, I

think banding by 5 months sounds fine if that's the repo deadline

you are comfortable setting. If you'd like to give repo a try, as

they are suggesting, we have lots of repo tips in the links/repo and

tummy time section, and I also recently created a few repo documents

in the files/repo headquarters folder.

I sincerely wish we had some official way of tracking my own

daughter Remy's progress during our repo efforts. We used repo only

and relied on homemade evaluation techniques to help us decide to

keep going. What a wonderful opportunity to have periodic official

measurements taken at a medical facility!

Would you let me know what you decide to do, and let me know if I

can be of any help with repo if you pursue that option?

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " tbustermom " <tbustermom@y...>

wrote:

> Curious whether the " experts " here will agree with the approach

we're

> taking to my 12 week old daughter's tort and plagio. We're

currently

> going to PT once a week for her tort, and I'm trying to fit as

many

> neck stretches and as much tummy time into our days as I can with

a 2

> 1/2 year old son underfoot. (This means that there are days where

we

> only manage a couple of decent stretch/tummy time sessions.) This

> will only get tougher when I return to work next month...

>

> We saw a pediatric neurosurgeon today about my daughter's plagio,

and

> we're going to get involved with a local plagio study. This will

> allow us to track her flatness/rounding at no charge. We're going

> back to the neurosurgeon in 6 weeks, when she's 18 weeks old (4

1/2

> months).

>

> My plan is to push for a helmet by 5 months if we haven't seen

much

> improvement in the next 6 weeks. My rationale is that my son --

who

> also had plagio -- got his helmet (through Cranial Tech) at 5

months,

> and only had to wear it for 8 weeks.

>

> Any downsides to pushing forward with helmeting ASAP? Also, how

long

> should I expect to have weekly PT sessions? This is going to get

> tough when I return to work and have very limited sick leave for

> kiddie doctor/PT appointments!

>

> H

[Guest guest]

Hello H

Welcome to the group. My daughter Willow also had torticollis which

made repo a lost battle. Not always though, just in our case. My

daughter was put in Dr. Blecher's helmet at 6months and she wore it

for 10wks.

She was in PT for 7months total, plus we had Early intervention come

by as well. Atfirst she had 3sessions a wk and slowing down from

there. We put her on her tummy as much as I could through out the

day, and did streches everytime I gave her a bottle as it was easier

than.

Good luck, and let us know how the repo goes.

Sandy WIllow's Mom

Cranio Germany Grad 02/04

--- In Plagiocephaly , " tbustermom " <tbustermom@y...>

wrote:

> Curious whether the " experts " here will agree with the approach

we're

> taking to my 12 week old daughter's tort and plagio. We're

currently

> going to PT once a week for her tort, and I'm trying to fit as

many

> neck stretches and as much tummy time into our days as I can with

a 2

> 1/2 year old son underfoot. (This means that there are days where

we

> only manage a couple of decent stretch/tummy time sessions.) This

> will only get tougher when I return to work next month...

>

> We saw a pediatric neurosurgeon today about my daughter's plagio,

and

> we're going to get involved with a local plagio study. This will

> allow us to track her flatness/rounding at no charge. We're going

> back to the neurosurgeon in 6 weeks, when she's 18 weeks old (4

1/2

> months).

>

> My plan is to push for a helmet by 5 months if we haven't seen

much

> improvement in the next 6 weeks. My rationale is that my son --

who

> also had plagio -- got his helmet (through Cranial Tech) at 5

months,

> and only had to wear it for 8 weeks.

>

> Any downsides to pushing forward with helmeting ASAP? Also, how

long

> should I expect to have weekly PT sessions? This is going to get

> tough when I return to work and have very limited sick leave for

> kiddie doctor/PT appointments!

>

> H

[Guest guest]

H,

I am assuming that you would be putting you daughter through CT for

her helmet since you son went through them?

I think your plan is great. You can benefit from the study and

hopefully have enough rounding to avoid the helmet and if you do

choose to go with the helmet, 5 months is a wonderful age to start!

Please keep us posted while this study is being performed (and after

ofcourse:-), the knowledge you gain will be of great benefit to our

members!!

, mom to Makenna LLUMC helmet grad '03

--- In Plagiocephaly , " tbustermom " <tbustermom@y...>

wrote:

> Curious whether the " experts " here will agree with the approach

we're

> taking to my 12 week old daughter's tort and plagio. We're

currently

> going to PT once a week for her tort, and I'm trying to fit as many

> neck stretches and as much tummy time into our days as I can with a

2

> 1/2 year old son underfoot. (This means that there are days where

we

> only manage a couple of decent stretch/tummy time sessions.) This

> will only get tougher when I return to work next month...

>

> We saw a pediatric neurosurgeon today about my daughter's plagio,

and

> we're going to get involved with a local plagio study. This will

> allow us to track her flatness/rounding at no charge. We're going

> back to the neurosurgeon in 6 weeks, when she's 18 weeks old (4 1/2

> months).

>

> My plan is to push for a helmet by 5 months if we haven't seen much

> improvement in the next 6 weeks. My rationale is that my son --

who

> also had plagio -- got his helmet (through Cranial Tech) at 5

months,

> and only had to wear it for 8 weeks.

>

> Any downsides to pushing forward with helmeting ASAP? Also, how

long

> should I expect to have weekly PT sessions? This is going to get

> tough when I return to work and have very limited sick leave for

> kiddie doctor/PT appointments!

>

> H